By Brett Stempel | Project Leader
3-year-old Annalise and 5-year-old Bryce have a rare form of Leukodystrophy, an incurable neurological disorder that limits the body’s ability to function by interrupting signals from the brain. When Bryce was diagnosed and then later Annalise, Tammy and John Clayton had to quickly adjust their lives to manage their conditions and 24/7 care while still managing to maintain the needs of their three older children. A stay at Ryan House gives the Claytons a chance to share time as a family without having to worry about giving medicine or preparing special foods.
“The Care Team takes over Bryce and Annalise’s care,” Tammy said, “I can spend time snuggling and playing with Bryce and Annalise as a mom instead of caregiver. Ryan House has also helped our older boys realize that they are not alone in having siblings with special needs. John and I have also become very close friends with some of other parents that we have met.”Annalise loves the playground and the fact that she is able to go up on it in her walker all by herself. Bryce loves to be outside and chase his brothers as they ride the power cars around the playground. They both love the dogs that come to visit, the pool and the sensory room.
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