Help babies with serious heart conditions

Supporting bereaved heart parents is an important part of our work. We want to share their stories. We want to help them celebrate their children. We want to connect them with other bereaved parents. We want them to know they are not alone.

If you are a bereaved heart parent, please visit our website where you can find details of our bereaved heart parents support group, read other parents' stories and find information and advice on living with loss.  

Oscar's Story  

At her 12 week scan, Liz was surprised to find out she was expecting twins. Her 20 week scan showed that one twin, Oscar, had a heart condition. Sadly, at 27 weeks, Oscar passed away. She delivered both her boys at 33 weeks and tragically Oscar’s brother, Felix, also passed away in while in NICU.

Liz says, "Six years later we still struggle to process what happened. We’ve since had our rainbow who has now started school. It can feel like Oscar got lost in the nightmare following his death, so writing this is to help redress the balance. One of the hardest things was trying to explain what was happening to our older children and to keep going for them whilst our world fell apart around us."

Read Oscar's story: https://www.tinytickers.org/2021/10/11/oscars-story/

Forever in our hearts

Many bereaved parents find comfort in creating an online tribute page for their child. This space, like an online memory box, can be filled with memories (photos, music and videos) and shared with family and friends. You can also share funeral details, light candles, write messages and give gifts. It is possible to use your tribute page to fundraise in memory of your child, but this is by no means obligatory.

 https://www.tinytickers.org/support-info/bereavement/forever-in-our-hearts/