Help babies with serious heart conditions

by Tiny Tickers
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Help babies with serious heart conditions
Help babies with serious heart conditions
Help babies with serious heart conditions
Help babies with serious heart conditions
Help babies with serious heart conditions

Project Report | Jun 15, 2012
June 2012 Update from Tiny Tickers

By Carla Miller | Project Leader and CEO

Tiny Tickers has been working hard to improve the detection, diagnosis and care of heart babies in the UK, and we're able to do that thanks to your generous donations.  Here are a few of the areas in which we've been making progress...

1. Think HEART - we collaborated with the Children's Heart Federation on Children's Heart Week in May 2012 which aimed to raise awareness of the symptoms of heart problems in newborn babies amongst health professionals and parents.  The events included an expert panel and a reception at the Houses of Parliament and we were represented on stage at both events, sharing our expertise and experience.

2. Heart Champions - we've been very busy planning this exciting 2 year pilot which will create local Heart Champions based in maternity hospitals and which we hope will launch later in 2012.  At the moment we are signing up London based hospitals to participate in the pilot and seeking funding.

3.We've been meeting with the Fetal Anomaly Screening Programme (FASP) and the Newborn and Infant Physical Examination Programme (NIPE) to advise them on the content of leaflets for parents on antenatal screening and tests which can help identify congenital heart disease in newborns.

4.  We are pleased to announce that Dr Andy Ewer, Senior Lecturer and Honorary Consultant in Neonatal Pediatrics at the University of Birmingham and Scientific Member, National Medicines for Children Clinical Studies Group is joining our panel of expert medical advisers.  Andy has been a leading voice for the introduction of a simple test called Pulse Oximetry for newborns to detect problems with oxygen saturation which often indicates congenital heart defects.  Together we will be campaigning for all infants to have this test, which research shows could save hundreds of lives each year.

5. We're working with a company to put posters in every maternity hospital to refresh sonographers' knowledge of how heart defects look on the ultrasound and to raise awareness of the need to look in detail at the heart.

Families are kind enough to share with us their experiences of having a baby with a congenital heart defect.  If you would like to read their stories they can be found at http://www.tinytickers.org/content/experiences

Thank you very much for all your support.

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Organization Information

Tiny Tickers

Location: Leeds, West Yorks - United Kingdom
Website:
Facebook: Facebook Page
Twitter: @tinytickers
Project Leader:
Jon Arnold
London , London United Kingdom
$27,228 raised of $35,000 goal
 
508 donations
$7,772 to go
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