By Fiona Heath, | Supporter Engagement & Fundraising Manager
Little Skylah-Mae is the face of our campaign, and a beautiful one too. We thought you’d like to hear how Skylah-Mae’s treatment is coming along and how many trips her family have made to hospitals and clinics for check ups and treatments. Lesley, the CHECT support worker says "Skylah-Mae's family have averaged a trip every three weeks and these are vitally important in assessing whether Skylah-Mae's tumours are responding to treatment, for vital chemotherapy and other treatments". Like Skylah-Mae’s family these visits which can costs some families £100s.
Mum Gemma says “We've been to treatment clinics and for scans every month this year, sometimes twice in a month - we drive up even though we only get 15p a mile and have to pay £8 for parking each time. If we came by train I would get my travel free but it is too expensive to pay for Skylah-Mae's dad too, and of course he wants to be supporting me and Skylah-Mae".
Despite everything that little Skylah-Mae has had to endure in her young life she is a delightful little girl and the latest photo shows Skylah-Mae with Jacob, who also is battling against Retinblastoma - both children have been attending the Royal London Hospital for the nearly two years. Support worker Lesley says "children with bi-lateral Rb (in both eyes) often undergo years and years of treatment to try to save their sight and eye/s.”
Since CHECT launched this appeal, and with your support we have funded 23 families to a total of £4,600. This is great but we means we are constantly fundraising to provide families with a £200 grant each year of treatment. Please share Skylah-Mae's story amongst your friends and any further support you can give will be greatly appreciated.
Thank you from all of us here at CHECT.
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