By Anil Gujar | Secretary Maharashtra Arogya Mandal
Maharashtra Arogya Mandal’s Sickle Cell Project
Sickle Cell Activities –January and March 2015 Activities report
Maharashtra Arogya Mandal (MAM) conducted free Sickle Cell Health check up camp from 24th to 26th January 2015. During the Pune to Dhadgaon journey we had medical check-up and medicinal kit was given to our 4 old diagnosed sickle cell patients at Dhule, Maharashtra.
The work started with Memory Prayer on occasion of Anniversary of founder Member Late Dr. S.T.Gujar, Paediatrician Late Dr.Dhairyasheel Shirole, Late Smt Hansabai Kate (Mother of Dr.S.L.Kate- Head Sickle Cell Department). On this occasion distribution of laddo_s was done amongst Sickle Cell Patients and Relatives.
On Sunday 25/01/2015 395 old diagnosed sickle cell patients attended the camp. They all were clinically examined and were given free medications and counselling.
On the same day screening of new 168 tribal individuals attended the camp their blood samples were taken and subjected to laboratory investigations.
On the basis of their laboratory reports we classify them into
1) Normal Status (A+A Pattern)) without sickle cell
2) Carrier Status (A+S Pattern)
3) Sufferer Status (S+S Pattern))
During the screening 35 patients were identified as sufferers who were clinically examined and provided with free medications. In remaining 133 tribal population 88 were identified as carriers and 45 as Normal i.e without sickle cell. They were provided with cards on the basis of their Sickle Cell Status. i.e. Yellow card for carrier and white card for Normal . All the individuals were provided with marriage counselling.
On Monday 26th Jan. 2015 similarly 288 old patients had been given examined and provided with medications and 50 new tribal individuals were screened for sickle cell disease. In newly screened 11 patients were diagnosed as sufferers and 30 were diagnosed as carriers and 9individuals were diagnosed as normal i.e. without sickle cell.
All the individuals were from different tribal parts of Nandurbar, Dhule district of Maharashtra and from the neighbouring state viz. Gujarat and Madhya Pradesh mostly from low socio economic class. During this camp distribution of Sweaters, Cloths and Nutritious food supplement was done to sickle cell patients.
During this camp two patients were suffering from Acute Sickle Cell crisis who were treated during the camp.
On 28th January 2015 National conference of Indian Society of Human Genetics was held in Mumbai Dr.S.L.Kate HOD Sickle Cell Department and Dr.Girish Kulkarni attended the conference where Dr.S.L.Kate was felicitated with Lifetime achievement Award for his basic contribution in genetics research. Dr.Girish Kulkarni presented a poster in this Conference.
On 26th March 2015 Maharashtra Arogya Mandal’s Sumatibhai Shah Ayurved Mahavidyalaya (SSAM) and Dept. of Sickle Cell Anaemia in collaboration with Maharashtra University of Health Sciences Nasik organised a National Seminar on Sickle Cell Anaemia.
Academic and Non Academic Staff of SSAM and 285 delegates including Medical officers from National Rural Health Mission Govt of Maharashtra and paramedics from various states of India attended the conference.
This conference was inaugurated by Dr.K.Gosh Former Director of National Institute of Immuno-Haematology (NIIH) (ICMR) Mumbai. Dignitaries from (NIIH) (Indian Council of Medical Research) Mumbai Dr.Roshan Colah, Dr.Kushnuma Italia, Dr. Ajit Gorakshakar presented various topics in Sickle cell Anaemia Research. Dr. R.Manchanda (Director-Pathology KEM Pune), Dr.Jyotish Patel (Paediatrician and Director Vision Medical Foundation for Rural Health & Research (Bardoli), Dr. Yazdi Italia, Dr.Sirin Patel Dr. Anant Bagul Dr.Vasudev Charan elaborated various topics on sickle cell disease.
In this seminar publication ceremony of Books written by Dr.S.L.Kate, regarding Laboratory Diagnosis of Sickle Cell and other abnormal haemoglobins) and Dr.Jyotish Patel regarding treatment, councelling and clinical diagnosis of sickle cell in hindi was done by auspicious hands of Dr.K.Gosh Ex-Director -NIIH) (ICMR) Mumbai. Dr.S.L.Kate (President of Seminar and Head Sickle Cell Anaemia Dept.), Mr. Anil Gujar (Secretary MAM) , Dr.S.F.Patil (President-MAM) , Dr. Neelakshi Pradhan (Princepal SSAM) , Dr. Prashant Dalvi (Vice President-Seminar) , Dr.Girish Kulkarni (Organising Secretary-Seminar) Dr. Mukund P. Erande were the dignitaries present on this occasion.
Dr. Arun Jamkar Vice Chancellor Maharashtra University of Health Sciences Nasik –Chief patron of this seminar was chief guest for the valedictory function. In his speech he emphasised the work on the genetics and appreciated the efforts taken by Maharashtra Arogya Mandal on work taken as a medico-social mission.
In this seminar Mr.Manoj Pawara, Mr.Hari Yeola, Mr and Mrs Kulkarni were felicitated by for their commendable contribution for Sickle cell anaemia by Mr. Arun Gujar.
In these seminar representatives from Oddisa (Dr.Satyabrata Meher) , Maharashtra (Dr.Yogesh Prabhune. Mr.Dadaji Kothe) , Chhattisgarh (Dr.Pradeep Devengun) , Kerala (Dr.Anuj Singhal) , Gujarat (Dr.Bhavesh Kolcha), Madhya Pradesh (Dr.Ajit Gorakshakar) displayed poster presentations about sickle cell prevalence in their respected states.
Dr.Pranita Joshi-Deshmukh, Dr.Nilesh Kulkarni, Dr.Vishakha Gaikwad, Dr. Sachinkumar S.Patil, Dr.Abhijit Chitnis coordinated the sessions of seminar.
We also conducted a free sickle cell health check up camp from 28/3/2015 to 30/03/2015. During the Pune to Dhadgaon journey we had medical check-up and medicinal kit was given to our 4 old diagnosed sickle cell patients at Dhule, Maharashtra.
On Sunday 29/3/2015, 417 old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 120 tribal individuals was done among which 60 were diagnosed as carriers and 26 patients were identified as sufferers. Advice and counselling regarding the dietary and behavioural regime was given to both old and new patients. The carriers were provided with counselling, emphasis was given on pre/ post marital guidance. The 34individuals were diagnosed as without sickle cell disease were also guided for this socio-medical problem.
On Monday 30/03/2015 similarly 347 old patients had been given examined and provided with medications and 51 new tribal individuals were screened for sickle cell disease. In newly screened 11 patients were diagnosed as sufferers and 30 were diagnosed as carriers and 10 individuals were diagnosed as normal i.e. without sickle cell.
During this camp distribution of Cloths and fruits was done to sickle cell patients.
We are thankful to our kind donors who donated us warm clothing’s and also to volunteers who helped us to manage this task.
Thanks and Regards
Anil Gujar
Secretary
Maharashtra Arogya Mandal
Malwadi, Hadapsar
Pune-411028 (India)
+91-09850730341
astgujar@gmail.com
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