By Hermana Rebecca Trujillo | Directora de Familias Especiales
Jared, has cerebal palsy and lives in a small rural community, now 16 years old, he has never had a wheelchair, his parents have carried him to any activity that he needed to attend, like visits to the rural health center but mostly he stayed at home, hidden. Today he has a wheel chair and his parents can't believe how this mobility has changed his life and theirs. They are considering coming to Matagalpa a long bus ride from their community once a month for horsetherapy which is indicated for Jared’s condition. They are also looking into his attendance in the one room rural school in their community.
In April the young men who work in the wheelchair workshop( taller) were busy helping many more children and young people to become more mobile. Two brigades from USA came down to work with them and the social workers from FE to make more dreams come true for families who have suffered far too long from lack of mobility for one of their members. This brigade helps the young men who have different disABILTIES themselves, to hone their skills in the adaption of wheelchairs working individually with each person to make sure that their wheelchair is perfectly fitted and that the family understands the care of this mobility aide.
When someone comes for a wheelchair we have to take their measurements and understand their disABILITY. Each child is unique in their needs and these young men have to identify those needs. The brigade which comes each year specializes in fitting wheel chairs and in discovering the needs of each child, and thus teaching new skills to our wheelchair workers.
Ernesto is one of the wheelchair workers with more senority, he was born deaf and mute. When he first started in the taller he became the legs and arms for the taller because the other young people at that time were in wheelchairs and we realized that we needed someone who could be agile in their movements and assist those in wheelchairs. He now dominates the knowledge of how wheelchairs are made and knows where every piece of equipment is in the taller. If he has a wheelchair that doesn't meet the needs of the child he can find the parts or invent them. His skills have improved each year and he works with many children and families who come into the wheelchair workshop looking for repairs and maintenance for their chairs. He has learned to communicate with more than words as he notices the expressions on the child’s face and finds ways to meet their needs.
The wheelchair workshop continues to give out 100s of wheel chairs as well as mobility aides like walkers, and crutches. It is important that only those who really need a wheelchair receive one. If a person has the possibility to become mobile with a walker or canes or crutches having a wheelchair will make them dependent on the wheelchair instead and thus less mobile. That is why a doctor’s exam is required to receive a wheelchair. Our goal is mobility with dignity for each person who comes into the workshop.
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By Hermana Rebecca Trujillo | Directora Special Families Saint Julie Billiart
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