Our work to improve life-extending treatment for those sick with Chronic Kidney Disease of nontraditional causes (CKDnT, formerly CKDu) is moving forward. To improve quality of care for those suffering in CKDnT’s final stages, which are also the final stages of life, we must start evaluating the current peritoneal dialysis care landscape. La Isla Foundation (LIF) is working with our partners at the National University of Nicaragua in Leon (UNAN Leon) and others to do a comprehensive evaluation of what is happening. With those findings we will be able to come up with treatment recommendations to improve treatment and hope to implement those changes in the future.
This project is unique because we are working to improve treatment options for people who are sick with CKDnT right now. Most current research is focused on the long-term goal of prevention, which relies on understanding CKDnT’s exact cause(s).Those research initiatives, although critical, have a much longer timeline and have little impact on those who are currently sick. Conversely, LIF’s project will improve the lives of people who are sick now, like Juan in the photo above. He is self-administering peritoneal dialysis four times a day, every day. This photo was taken in his home is less than ideal conditions.
The findings of our research will help extend the time that sick fathers and husbands, like Juan, can be with their families.
Although it is a slow process, step-by-step, LIF is helping those who are sick, while we also work to end this epidemic. Most importantly, we could not do this critical work without your support. Thanks again!
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