Boston Children's Hospital Every Child Fund

by Boston Children's Hospital
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Boston Children's Hospital Every Child Fund
Boston Children's Hospital Every Child Fund
Boston Children's Hospital Every Child Fund
Boston Children's Hospital Every Child Fund
Boston Children's Hospital Every Child Fund
Feb 1, 2018

Boston Children's Hospital Report February 2018

Meet Harken
Meet Harken

Our most vital fund, the Every Child Fund empowers us to respond to a changing world with one goal: to give every child a healthy future. Your support enables us to treat the whole child, support families, and fund world-changing research.

To care for a sick child, parents may need to leave their jobs, put their lives on hold, and face overwhelming choices. Your gift supports our family-centered care: from big needs, like temporary housing and financial assistance, to small kindnesses that relieve stress. Families can focus on what's most important, their child. These services, so necessary and compassionate, are not covered by insurance.

  • This year families spent 14,678 nights in safe, subsidized housing
  • Over 20,000 meal vouchers sustained families
  • Our parking program helps over 1,300 families in need
  • Yoga classes, Reiki, massages, family coffee groups and other services ease stress
  • Social workers and support sessions make families feel less alone

Many patients, like Harken use these services. Read her story, told by her mom Brooke to know what an impact you’ve made by donating to the Every Child Fund.

Bret and Brooke had built a wonderful life. But when their baby girl, Harken, got sick, they had to sacrifice everything to keep their family together. "You have visions of who they're going to be when they grow up. In one day, that was all over."

When one-year-old Harken failed a hearing test twice, her doctor sent her to Boston Children's. "The diagnosis was devastating," said Brooke. "Harken had Hurler's syndrome, also known as MPS1, a rare degenerative disease that attacks her whole body."

The first treatment step was a Bone Marrow Transplant. "It was hard to see her lose her hair and lose her being a kid. But our caregivers assured us that all we love about her would come back. Boston Children's was the best place to be. Everyone involved supported us with kindness and reassurance throughout the whole process of living at the hospital. Even massage sessions were provided to parents to lessen the stress."

"Then we brought Harken home. I was saddened to leave Boston Children's—they felt like family. We had to keep Harken quarantined for a year. I quit my job as a teacher to be with her all the time. No visitors were allowed into our home scrubbing the floors and toys were an everyday thing. We couldn't even have a Christmas tree. It was hard on Leyland: he had a sister he couldn't hug too tight or touch without washing his hands. Because I no longer worked, we struggled. But Boston Children's found us financial support. They helped with meals and parking. They even found Leyland a support group for siblings of terminally ill kids.”

After a while, we started to feel like a normal family again. I remember the first year we were allowed to have a real Christmas tree in our home again! Harken turned to me Christmas morning and said "I love you, Mom." The first time she said 'mom'. That meant the world to me."

"Today Harken attends preschool, which is amazing. You'd never know she has a terminal illness. She loves to come to Boston Children's for her treatments. They make it fun with stickers and art projects.

When they say 'Until every child is well,' that's how every person in Boston Children's feels. It's a beautiful place to deal with a not so beautiful ordeal. I would never go anywhere else."

Thank you for donating to the Every Child Fund.

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Organization Information

Boston Children's Hospital

Location: Boston, MA - USA
Website:
Facebook: Facebook Page
Twitter: @BostonChildrens
Project Leader:
Korinne Durando
Boston, MA United States
$62,727 raised of $99,999 goal
 
1,135 donations
$37,272 to go
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