By Samantha Thompson | Donor Relations Specialist
Sarai is quiet and shy at first, but when she finally breaks into a radiant smile, it’s well worth the wait. The best way to get her to open up is to make animal noises, something her Grandpa Jorge just happens to be very good at. “She adores animals, especially horses,” he explained.
When Sarai was born, she was diagnosed with a rare genetic condition called Pompe disease, which inhibits muscle growth and can cause respiratory issues. Her treatment requires ongoing infusions, which isn’t much fun for a four-year-old. That’s where her Chemo Pal, Rachel, comes in.
When Rachel was matched with Sarai two years ago, the pair quickly formed a bond over Play-Doh dates, coloring books, and of course, playing with toy animals. Their friendship has also meant a lot to Sarai’s mother, Rosa.
“I really like that Sarai has someone that she can play with and look forward to seeing,” said Rosa. “Before Rachel came along, she wouldn’t talk at all. Now she’s starting to warm up and get a lot more chatty.”
Rachel has noticed a difference as well. “Every time I visit I’m impressed by Sarai’s resilience and patience,” she explained. “I feel so lucky to be her Chemo Pal.”
This little lady has big hopes of meeting a real horse someday and even going for a ride. Sarai hasn’t quite decided what she wants to be when she grows up, but with strength and courage like hers, she’ll undoubtedly be anything she sets her mind to.
Sarai was recently named a 2017 CCA Hero and was honored at a ceremony in May alongside friends and family.
Sarai is one of the 250 Pacific Northwest children and teens CCA’s Chemo Pal® Mentor Program has brought the joy of friendship in the past year. Trained Chemo Pal mentors have devoted 5,800 hours forging and strengthening friendships and family bonds, bringing diversion, fun, and activities to kids during their treatment. Chemo Pal mentors also give parents a much-needed break to grab a cup of coffee, talk with doctors, or spend time with their other children.
In 2013, Oregon Mentors awarded CCA’s Chemo Pal Mentor Program with their most prestigious award for mentoring excellence, recognizing the program for exceeding standards of excellence and quality.
With your support, we can match even more seriously ill children and teens with compassionate adults who offer supportive relationships throughout treatments.
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