Childhood Cancer Fund Rugut

The objectives of the Childhood Cancer Fund Rugut is to extend aid and charity to children who are or have been ill with cancer, to help their families, as well as to support the development of the science and practice of oncology in Lithuania. The Fund organizes different projects in order to ensure a versatile help for the families hit with child's oncological disease. The Fund cooperates with other Lithuanian, as well as foreign, organizations and funds.
Mar 16, 2016

Let's Help Children With Cancer - Report 2016-03

Report (December 2015, January and February 2016)

Childhood Cancer Fund Rugute continues to provide financial support to families with children that have been diagnosed with oncological diseases. During the last three months, the Fund provided monthly and non-recurring charity of 3,600.00 Eur to such families. The families used this money to purchase necessary medical care supplies, to cover travelling expenses and other costs that they could not have avoided due to their child’s disease.

The physician of Oncology and Haematology Unit of Kaunas Clinics contacted Fund Rugute and asked for our assistance in purchasing medication Avastin (bevacizumab), the supply of which has been cut in Lithuania. This medication was necessary to continue treatment of the little patient Gabija. Since Lithuanian Government does not cover the expenses of this drug to childhood cancer patients, last spring Fund Rugute allocated 8,400.00 Eur to purchase it. In December 2015, Fund allocated 5,470.75 Eur to purchase more of this particular medication.

Fund also helped purchase medication Puri-Nethol 50 mg (mercaptopurine), the supply of which has been also cut in Lithuania. Total cost: 545.73 Eur.

Fund also assisted in purchasing medication Vfend 200 mg (voriconazole), the antifungal drug that is prescribed to patients suffering from weakened immunity as a side effect of chemotherapy. Total cost: 653.98 Eur.

Fund Rugute continues to support little brave girl Aiste, whose childhood was put on hold by a second strike of an oncological disease. In order to continue immunotherapy and other treatment methods for this girl, Fund allocated 13,782.12 Eur.

One of the most common side effects of chemotherapy is mouth ulcerations that worsen the physical and emotional condition of the young patient: children are unable to eat and suffer severe pain. In order to ease these symptoms, Fund purchased a quantity of mouthwash solution Aftamed for 459.23 Eur.

Fund continues to work on improving psychological well-being of the little patients. In order to help them avoid pain and multiple peripheral catheter insertion procedures, Fund purchased 12 items of long-term central venous catheters and the special needles (240 items) for 3,788.39 Eur.

Rugute has covered travelling expenses for three nurses who will be going to participate at a medical conference in Reykjavik (Iceland) on the 27th–31st of May 2016.

A few years ago, Fund Rugute helped Eugenijus (dad of a childhood cancer patient) develop his idea to install aquariums in the hallways of Children’s Disease Clinic of Kaunas Clinics. Typical hospital environment causes fear and anxiety to children and has a depressing effect on their parents. It has been proven that stress and fear, experienced by patients, reduce the effectiveness of treatment. On the other hand, the pleasant and positive environment is especially important to children who spend many months in the hospital. Therefore, we allocated 676.37 Eur to renew the hospital aquariums (to replace the fish, filters, lampas and decorations), and to make sure that little patients and their parents have a source of serenity and peace inside cold hospital corridors.

Rugute continues to maintain its premises called Rugute’s Home. Children and their families are welcome to come here and stay for a night or two, whenever they need it. It is a place where everyone, who has been touched by an oncological disease, is welcome and loved.

On the 11th of December, Rugute’s partners from Sweden arrived to Lithuania for the 9th time in a row. The Swedish guests traditionally visited all the childhood cancer patients being treated in Vilnius and Kaunas hospitals, as well as several children staying at home. They brought gifts to the children and created a true Christmas miracle for them.

Little David’s impressions about the Swedish Elves’ visit to his home:

The last time Swedish Elves visited us, was five years ago, so it was especially fun to meet them after such a long time. We were looking forward to meet them and kept walking to the window, hoping to see them arriving. Just like before, the Elves filled our home with merry and festive spirit. They are so fun and creative, especially the Senior Elf. It was fun to sing a song about a frog and jump along with it. We enjoyed juggling and, of course, opening the presents given to us by Swedish pupils. It is a pity that the Elves stayed at our home for a very short while, since they had to visit other children as well. Thank you, dear Elves and fund Rugute, for the joy you brought to our home.

 

On behalf of our little patients and their families, we sincerely thank you for your kindness and for your generous donations!

Dec 17, 2015

Let's Help Children With Cancer - Report 2015-12

Report (September, October and November, 2015)

During the months of September, October and November of 2015, Childhood Cancer Fund Rugute successfully carried out a number of continuous projects and activities.

Fund Rugute continues to provide financial support to families with children that have been diagnosed with oncological diseases. During the last three months, Fund provided monthly and non-recurring charity of 3,100.00 Eur to such families. The families used this money to purchase necessary medical care supplies, medications and food products, were able to cover their travelling expenses.

The Fund helps to purchase specific medications that are needed for individual childhood cancer patients. Some of these medications are not covered by the Government, and some are not supplied in Lithuania. In order to administer new treatment schemes that have never been administered in Lithuania before, hospitals need to purchase advanced antitumor drugs that are successfully used to treat oncology patients in foreign countries. During the last three months, Fund helped to purchase antitumor medicine for 5,081.57 Eur.

Fund also covered 1,050.00 Eur of rehabilitation expenses for one cancer patient, Gabija J. The girl was able to continue her rehabilitation that has had a very positive effect on her treatment.

Rugute used some of its funds to purchase 4 long-term central venous catheters for 1,263.24 Eur. These modern catheters help to improve psychological well-being of the little patients, because they allow them to avoid pain and multiple peripheral catheter insertion procedures.

Upon request of the physician of Oncohaematology Center of Vilnius Children’s Hospital, Fund helped one little cancer patient, Alina, and her mother travel to Würzburg University Clinic, where the girl was supposed to undergo a tumor resection surgery. Fund covered all of the travelling, accommodation and catering expenses for 2,449.56 Eur.

After five years, fund Rugute was once again invited to participate in the impressive Swedish event, called Feast of Joy. On the 5th of September, 14 families hurried to Vilnius airport where a private jet was about to take them to Sweden, the town of Kristianstad. Participating in the Feast of Joy gave unforgettable impressions and lots of entertaining activities to Lithuanian children with oncological diseases.

On the 3rd–10th of October, 5 children (Indre, Liepa, Emilija, Domantas and Alanas) and their family members spent wonderful time in the Mediterranean island of Mallorca. During their visit, the children enjoyed warm seawater, had fun at the outdoor aqua-park, visited the amazing Palma Aquarium and the caves of Campanet, admired the oldtowns of Palma and Alcudia and enjoyed delicious meals every day.

Rugute continues to maintain its premises called Rugute’s Home. Children and their families are welcome to come and stay there, whenever they might need it.

On the 29th of November, Rugute celebrated its 11th birthday. In order to commemorate this occasion, we invited everybody to the involuntary blood drive Share a Droplet. More than 30 donors donated their blood in the cozy atmosphere of Rugute’s home.

Dear donors, thank you for the financial support that our Fund has been receiving via GlobalGiving. It has been another successful year for us. We gain strength through you every day, and will continue our fight with childhood cancer as long as you are with us.

Sep 15, 2015

Let's Help Children With Cancer - Report 2015-09

Childhood Cancer Fund Rugute, aiming to ensure efficient and effective treatment of children with cancer, continues to help purchase the medications that are important to these children, but are not covered by the state or are not supplied in Lithuania.

During June, July and August of 2015, Fund purchased a quantity of medicine Temozolomide Teva 100 mg and 20 mg for 1731,70 Eur. This medicine was used to treat two girls with CNS tumors. Fund also purchased a quantity of medicine Everolimus 2,5 mg for 1391,83 Eur, This new medicine is needed for Aiste P. who was recently diagnosed with malignant glioblastoma. Her doctors aim to try the new treatment scheme that has not been available in Lithuania until now.

Fund continues to work on improving psychological well-being of the little patients. In order to help them avoid pain and multiple peripheral catheter insertion procedures, Fund purchased 4 items of long-term central venous catheters and the special needles (130 items) for 1991,66 Eur.

Fund did not hesitate to come to aid for Aiste P., whose childhood was put on hold by a second strike of an oncological disease. Right after her fifth birthday, she came down with a seizure. The screening revealed that the girl was about to start a new fight, only this time with glioblastoma, a highly malignant brain tumor. Since the girl was also suspected to have Li-Fraumeni syndrome, she was not eligible for radiotherapy, therefore the doctors made a decision to treat her by chemotherapy and immunotherapy. Although immunotherapy is widely known around the world, this method of treatment is only making its first baby steps in Lithuania. Fund, aiming to give Aiste an opportunity to try this new method of treatment, allocated 15000,00 Eur for it.

A young cancer patient Edgaras V. who has had a long fight with an oncological disease, has another health issue (caused by long-term radiotherapy), fragility of his teeth. Fund allocated 1000,00 Eur for this boy to be treated by professional dentists.

In July Rugute made a 16 year old girl’s, named Ausrine K., dream come true by giving her a new smart phone iPhone 5s 32GB. From now on Ausrine will be able to communicate with her family and friends, to take and share photographs and to store lots of data. We are certain that this new gadget will provide Ausrine with more self-confidence among her pals and other teenagers. The phone cost 639,00 Eur.

On the 5th of July, 2015, a yearly event The Island of Friends took place in Sesuoleliu Manor. It was a day full of adventures for the children, and it also encouraged the families to communicate and to share their experience. We would like to share our lymphoblastic leukemia survivor Emilija’s impressions about this event: Although I am no longer a child, but I do look forward to this wonderful day – The Island of Friends – each year. It is so good to meet all the smiling volunteers, as well as my friends and their parents. As soon as I arrive to the venue, I am immediately greeted by welcoming looks and hugs. It is fun to feel the love in the air, the warmth and the joy around me! I would like to thank you for the unforgettable time spent together and for the smiles that will keep me warm for the rest of the year. My family and I say huge THANK YOU and are already looking forward for the next year’s Island!

Rugute continues to maintain its premises called Rugute’s Home. Children and their families are welcome to come here and stay for a night or two, whenever they need it. Fund organizes blood drives twice a year, and they also take place in Rugute’s Home. Mothers of the deceased children gather together for group sessions once in a while and they are also allowed to use the premises. All in all, it is a place where everyone who’s life has been touched by an oncological disease, is welcome and loved.

Thank you for staying with us in this long and difficult fight with childhood cancer. Thank you for having faith in what we do and for not losing hope. We are proud of our achievements, but we never forget, that it is our donors who make all those things happen. Thank you so much, and best regards to you, on behalf of our children and families!

 
   

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