Childhood Cancer Fund Rugut

The objectives of the Childhood Cancer Fund Rugut is to extend aid and charity to children who are or have been ill with cancer, to help their families, as well as to support the development of the science and practice of oncology in Lithuania. The Fund organizes different projects in order to ensure a versatile help for the families hit with child's oncological disease. The Fund cooperates with other Lithuanian, as well as foreign, organizations and funds.
Sep 15, 2015

Let's Help Children With Cancer - Report 2015-09

Childhood Cancer Fund Rugute, aiming to ensure efficient and effective treatment of children with cancer, continues to help purchase the medications that are important to these children, but are not covered by the state or are not supplied in Lithuania.

During June, July and August of 2015, Fund purchased a quantity of medicine Temozolomide Teva 100 mg and 20 mg for 1731,70 Eur. This medicine was used to treat two girls with CNS tumors. Fund also purchased a quantity of medicine Everolimus 2,5 mg for 1391,83 Eur, This new medicine is needed for Aiste P. who was recently diagnosed with malignant glioblastoma. Her doctors aim to try the new treatment scheme that has not been available in Lithuania until now.

Fund continues to work on improving psychological well-being of the little patients. In order to help them avoid pain and multiple peripheral catheter insertion procedures, Fund purchased 4 items of long-term central venous catheters and the special needles (130 items) for 1991,66 Eur.

Fund did not hesitate to come to aid for Aiste P., whose childhood was put on hold by a second strike of an oncological disease. Right after her fifth birthday, she came down with a seizure. The screening revealed that the girl was about to start a new fight, only this time with glioblastoma, a highly malignant brain tumor. Since the girl was also suspected to have Li-Fraumeni syndrome, she was not eligible for radiotherapy, therefore the doctors made a decision to treat her by chemotherapy and immunotherapy. Although immunotherapy is widely known around the world, this method of treatment is only making its first baby steps in Lithuania. Fund, aiming to give Aiste an opportunity to try this new method of treatment, allocated 15000,00 Eur for it.

A young cancer patient Edgaras V. who has had a long fight with an oncological disease, has another health issue (caused by long-term radiotherapy), fragility of his teeth. Fund allocated 1000,00 Eur for this boy to be treated by professional dentists.

In July Rugute made a 16 year old girl’s, named Ausrine K., dream come true by giving her a new smart phone iPhone 5s 32GB. From now on Ausrine will be able to communicate with her family and friends, to take and share photographs and to store lots of data. We are certain that this new gadget will provide Ausrine with more self-confidence among her pals and other teenagers. The phone cost 639,00 Eur.

On the 5th of July, 2015, a yearly event The Island of Friends took place in Sesuoleliu Manor. It was a day full of adventures for the children, and it also encouraged the families to communicate and to share their experience. We would like to share our lymphoblastic leukemia survivor Emilija’s impressions about this event: Although I am no longer a child, but I do look forward to this wonderful day – The Island of Friends – each year. It is so good to meet all the smiling volunteers, as well as my friends and their parents. As soon as I arrive to the venue, I am immediately greeted by welcoming looks and hugs. It is fun to feel the love in the air, the warmth and the joy around me! I would like to thank you for the unforgettable time spent together and for the smiles that will keep me warm for the rest of the year. My family and I say huge THANK YOU and are already looking forward for the next year’s Island!

Rugute continues to maintain its premises called Rugute’s Home. Children and their families are welcome to come here and stay for a night or two, whenever they need it. Fund organizes blood drives twice a year, and they also take place in Rugute’s Home. Mothers of the deceased children gather together for group sessions once in a while and they are also allowed to use the premises. All in all, it is a place where everyone who’s life has been touched by an oncological disease, is welcome and loved.

Thank you for staying with us in this long and difficult fight with childhood cancer. Thank you for having faith in what we do and for not losing hope. We are proud of our achievements, but we never forget, that it is our donors who make all those things happen. Thank you so much, and best regards to you, on behalf of our children and families!

Jun 22, 2015

Let's Help Children With Cancer - Report 2015-06

Childhood Cancer Fund Rugute continues to provide financial support to families with children that have been diagnosed with oncological diseases. During the last three months, the Fund provided monthly and non-recurring charity of 6,800.00 Eur to such families. The families used this money to purchase necessary medical care supplies and to cover travelling expenses, as well as other costs that they could not have avoided due to their child’s disease.

The Fund helps to purchase specific medications that are needed for individual childhood cancer patients. Some of these medications are not covered by the Government, and some are not supplied in Lithuania at all. Oftentimes, in order to begin to administer the new treatment schemes that have never been administered in Lithuania before, hospitals face a need to purchase advanced antitumor drugs that are successfully used to treat oncology patients in foreign countries.

Physicians of the Oncology and Haematology Unit of Children’s Clinic of Kaunas Clinics requested Childhood Cancer Fund Rugute to help them purchase antitumor medication, needed by a teenage patient Gabija. The doctors are going to try the new treatment scheme where an antitumor medication Avastin (Bevacizumab) is going to be administered to Gabija. The Lithuanian Government does not cover this particular drug, therefor our Fund spent 8,400.00 Eur to purchase a quantity of it.

Also, following doctor’s request, in order to continue a successful treatment scheme to two children with brain tumors, our Fund purchased medications Temozolomide Teva (100 mg and 20 mg) for 2,372.58 Eur.

One of the most common side effects of chemotherapy is mouth ulcerations that worsen the physical and emotional condition of the young patient: children are unable to eat and suffer severe pain. In order to ease these symptoms, the Fund purchased a quantity of mouthwash solution Aftamed for 613.23 Eur.

In order to be able to analyze the young patients’ weight and to alter their doses of medications accordingly, the Fund purchased 2 electronic scales for 750.20 Eur.

Last March, Fund Rugute made the little Katerina’s dream come true. This is what Katerina wrote us: “I started attending the new school this year. A new teacher, different children... I feel awkward and sad, because I don’t know how to approach them and how to make new friends. I used to have one best friend – we went to school together and rode our bicycles. The children of the new school also gather up at the stadium with their bicycles. I often watch them through the window and dream of my own bicycle, so that I could go riding with them. Perhaps this way I would be able to find a new best friend...“ The Fund allocated 336.16 Eur to fulfill Katerina’s dream and bought her a new bicycle.

The young cancer patients’ treatment is a long, intense and complicated process. Once the child reaches remission, he or she often experiences complications caused by treatment. These children usually suffer from fear, anger and anxiety, due to various medical procedures they have to go through.

For a long time, we have been developing an idea that we should not only care for the little hospital patients, but that we should also help the children that have reached remission, to fully recover from the disease and the treatment. It is obvious that in order for their bodies and souls to get better, it is crucial to provide them with both active and passive recreation, new experiences, joyful adventures and new friends. Positive emotions free their minds; encourage them to enjoy every single day and to discover the world around them.

We were very happy to receive an invitation from Swedish company NFG Fastigheter AB. They offered us to bring our children to Mallorca, Spain, for a week of vacation. From the 18th to the 25th of April, 5 children who had been diagnosed with oncological diseases in the past, and their family members, had a vacation in Can Fanals property on the warm Mediterranean island of Mallorca.

For the past three months, Rugute was also able to continue covering the maintenance costs of Rugute’s Home, the only facility in Lithuania that provides temporary free of charge accommodation to the young cancer patients and their family members. This facility is a shelter for the families that live far away from the hospital, and is especially appreciated by the young cancer patients for its cozy and playful home environment.

We are very grateful to our dear donors of GlobalGiving, who do not hesitate to contribute to the well-being of the little oncology patients in Lithuania.

Thank you for thinking of us, and for being there for our children. 

Mar 24, 2015

Let's Help Children With Cancer - Report 2015-03

During the last three months, Childhood Cancer Fund Rugute provided monthly and non-recurring charity of 2,368.86 Eur to families with children that have been diagnosed with oncological diseases. The families used this money to purchase necessary medical care supplies and to cover their traveling expenses and other costs that they could not have avoided due to their child’s disease.

Following the request of an oncologist of Kaunas Clinics (University of Health Sciences of Lithuania), in order to continue the effective cancer treatment by the medicine Temozolomide, the Fund purchased 8 quantities of Temozolomide Teva 100 mg N5 for one young female cancer patient with a brain tumor. The medicine cost 878.30 Eur.

In order to continue improving the psychological well-being of the little oncology patients, the Fund purchased 3 items of central venous catheters and 360 items of special needles (to be used with these catheters) for 2,051.40 Eur. Long-term central venous catheters and the special needles are known to improve the psychological well-being of the little children who are undergoing treatment, because they allow them to avoid pain and multiple peripheral catheter insertion into the vein procedures.

One of the most common side effects of chemotherapy is mouth ulcerations that worsen the physical and emotional condition of the young patient: children are unable to eat and suffer severe pain. In order to ease these symptoms, the Fund purchased a quantity of mouthwash solution Caphosol and a quantity of mouthwash solution Aftamed for 363.75 Eur.

Within the past three months Rugute purchased 2 professional blood pressure monitors that will ease the patient care and will allow the nurses to estimate the patients’ condition more precisely. Total cost – 462.58 Eur.

The Fund also provided the Children’s Oncohaematology Center of Vilnius Children’s Hospital with a special medical file storage cabinet. The cabinet cost 1,679.80 Eur.

For the past three months, Rugute was also able to continue covering the maintenance costs of Rugute’s Home, the only facility in Lithuania that provides temporary accommodation to the young cancer patients and their family members, free of charge. This facility is a shelter for the families that live far away from the hospital, and is especially appreciated by the young cancer patients for its cozy and playful home environment.

On the 12th of December, 2014, Rugute’s partners from Sweden arrived to Lithuania for the 8th time in a row. The Swedish guests traditionally visited all the childhood cancer patients being treated in Vilnius and Kaunas hospitals. They brought gifts to the children and created a true Christmas miracle for them.

Dear friends, we wish to express our heartfelt thanks to every one of you for kindly contributing to our mission. Every penny, received from you, is spent with great consideration and responsibility. We are so proud of what we have achieved together. Many thanks and best regards to all of you from our little patients and their parents!

 

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