Oct 27, 2016

Creating camaraderie + healing through art

In addition to serving children, CHAP also works with adults admitted to the OHSU Knight Cancer Institute. We wanted to share an experience from earlier this month. Thank you for making stories like these possible!! --- Sarah Panetta, Executive Director


"We Are All Connected"

Camaraderie.  Noun.  Mutual trust and friendship among people who spend a lot of time together.

This morning after being at work for just 10 minutes, a patient named Cathy* says to me, "This is a wonderful ministry you have here." She speaks these words as she glides into the Family Room and her eyes pour over the paint, beads and mandalas. Cathy places her walker off to the side and pulls a chair up to the table. "They almost seem... alive,"  she declares as she fingers through the collection of beads. She quickly decides to make a bracelet for her daughter. In order to select just the right colors, Cathy takes a picture of the bead assortment. With the help of her smartphone, she sends the photo to her daughter. Within minutes, her daughter replies: "Yellow with blue accents on a bracelet, please." I tell her this is the hunt & gather phase, as Cathy sorts through all the yellow and aqua blue beads. She is totally pleased with the selection. The increase in her energy is tangible. "This gives some purpose to the day. Oh, my goodness!"

As Cathy completes her bracelet, another woman named Maura* enters the Family Room. I have met her before on this unit. Her best friend Betty* has entered into "comfort care". This is denoted with a laminated piece of paper with the image of a white dove on the patient's door. Thankfully, the staff has already alerted me to the fact that we are losing this dear soul and very soon. Maura's heart is heavy with her friend's impending death. Cathy has met Maura, too. They talk over the bead table. Cathy is extremely sweet and supportive. The 3 of us start talking about singing. I tell Maura that Cathy has written a song and performed it for me. With not much cajoling, Cathy says she will sing it for her. Maura begs her to wait until she can grab Betty's sister, who will surely want to hear this.

Maura produces not just one, but two of Betty's sisters. A patient's spouse has joined our group. Our friend Cathy stands up in front of the five of us. This lady's strong and steady voice fills the room and surely trickles down the hallway. We're all captivated. At one point in the performance, she rips off her knit hat (shaped like a cupcake, no less) for dramatic flair. Her wild and thin hair is set free with this gesture. Cathy is a true performer and she has found her audience. We all clap for her. We learn that Betty was a fabulous singer, a lyric soprano, as one of her sisters tells me. I had been visiting Betty for months, but never knew that detail about her. This generates much conversation about Betty's beautiful voice. Even on the phone, her friends loved the sound of Betty's voice. Cathy wishes that she & Betty could have sung together.

The spouse who slipped in earlier has silently made a bracelet while Cathy was singing. She had been in the background through much of this, but then started opening up. She knew she had entered a safe place in that Family Room. She told us her story, her husband's sudden illness, how she strolls the halls of this hospital every time her husband is resting, trying to keep busy. Her journey is met and held with tenderness by the other women in the room. Cathy says, "This is what this floor is missing - camaraderie. But CHAP brought it with the bead table." Cathy turns to me and says, "Why aren't you here every day?"

When the group starts to say their good-byes, there are hugs and the extension of prayers in all directions. One of Betty's sisters says, "We are all connected." Everyone is amazed by each person's strength and perseverance in the face of cancer. No one's experience is minimized. Every woman honors the next. The time passes as a trifecta of crying, laughing and smiling. They all bear witness to each other. The stories are all slightly different, but in the end the same.  "That was inspirational," adds Betty's sister.

The spouse stays with me to make a few more things. She realizes I have alphabet beads and she wishes to make something with her husband's name on it. She collects more beads, blues and reds, the letters of his name. She helps me tidy up. She's so grateful for the interactions with these great women this morning. It felt like a sisterhood. It was. It is.


Aug 1, 2016

Get well soon - helping a family

Puppet brothers created in-hospital
Puppet brothers created in-hospital

In 2015, we recorded 7,506 healing art experiences in the hospital. During our first 10 years, we've provided nearly 40,000 art experiences in-hospital - always free of charge to the patients and families we serve. We wanted to share one of those stories with you, as an example of what your gifts make possible. 



On a recent Monday morning, I worked with two young siblings in the waiting area outside Pediatric Surgery. The parents and children had been led to the waiting room by Beth, one of the Child Life Specialists at Doernbecher. They were anticipating a long wait while their older brother was in surgery. As she delivered them, Beth extended her arm toward CHAP and told the boy + girl they could make jewelry while they waited for their big brother. The children came to the table right away. After each item they finished, they proudly scurried back to their mom + dad to show off their work.

The next day, I was on the 9th Floor to create art with post-surgery patients. The Child Life Specialist on this unit, Kim, told me she had a child she wanted to bring down to do art with CHAP. We started rounding up patients to join us and quickly had a full Play Room. Within a few minutes, I saw the little brother from the day before. I remembered his name instantly and he smiled back in recognition.

Kim brought the patient she'd mentioned and it just so happened to be the big brother of the child I'd worked with the day before. 

When he arrived, he was full of tears. Kim explained that the boy needed to drink a lot of fluid and he was very upset about it. If he wasn't able to drink enough, we both knew the alternative would be putting in an NG tube - which goes up the nose, down the back of the throat and into the stomach. We wanted to help him avoid that!

The patient continued to cry. He seemed uncomfortable, clutching his abdomen. In pain at the thought of drinking so much, he moaned. The younger brother looked wide-eyed at him from across the table. 

I re-directed the little one to a project. Kim made a proposition to the patient: “Put 5 beads on your necklace and then take a sip of your drink,” which was medicine with Gatorade to help improve its taste. The patient agreed, and this worked for a little while. 

A few minutes later I heard, "Make 5 brush strokes on your painting and then get some more fluid in you.” It didn’t look like the patient could bear it much longer. Kim recognized she was at a crossroads. 

Kim explained very clearly to the patient that if he didn’t drink this certain amount, the nurse would need to put in an NG tube. He didn’t really know what that meant. Kim said, "Would you like me to show you one?" She grabbed a sample from her medical play supplies. The patient examined the tube at the art table. Kim described how the thin plastic tube would be inserted up his nose, down the back of his throat and into his stomach. The patient considered all this and said, "Okay. I give up on this drinking. I agree to the NG tube." Kim, though surprised, was pleased the patient came to this decision on his own.

The patient had to leave the Play Room to get the NG tube placed. The little brother stayed. He happily made a puppet and used paint. When it was time to go, I said to him, "I'm so glad I got to see you two days in a row. You're such a good artist!" We rolled the CHAP Art Cart out of the Play Room and shifted the tables & chairs back into their original places. I said to him, "I hope your big brother gets well soon." He smiled and went off to reconnect with the rest of the family.

As we've reported before, so much of the time what patients - especially pediatric patients - crave is CONTROL. Often creating art provides the outlet they need to make decisions and take a measure of control over their situation. In this case, making art created space for the patient to interact with the Child Life specialist and gradually gain some control in a difficult situation. Creating art gave the little brother space to manage his fears and worries about what his older brother was experiencing.

Thank you for making it possible for us to do this work!


May 2, 2016

"I thought you were all crazy!"

The minute I arrived on 10 South, she started hugging me and talking in rapid-fire Spanish.  It took a moment to understand…. “Thank you! Thank you!” she was saying. “He is so happy now. I never thought he could paint, he has changed so much and he is so happy! Thank you, thank you!”

When I first met them, newly admitted Raul* lay quietly in bed with Mom and Dad hovering and fussing around him, as nurses settled him in. Although 14 years old, he is non-verbal and appears to have developmental delays, so presents as a much younger child.  “No thank you,” they graciously said, they did not care for any art supplies. The next week, after a few more visits from CHAP staff and encouragement for the adults to participate even if Raul didn’t feel like it, Dad came in for some beads. Their daughter at home is a “Daddy’s girl” he explains, and he would like to make her a necklace. He picks out an assortment of lavender beads and retreats to their room to work.  A bit later he proudly returns with a stunning, intricate and carefully designed necklace and then decides to make a matching bracelet. 

With Dad’s visible pride, success and encouragement, Mom and Raul now decide to come into the art room.   “He doesn’t like to get dirty,” Mom is quick to warn us, as Raul decides to give painting a try. Mom draws a heart on the large paper for Raul, shows him how to dip the brush in the paint and apply it to the paper. She paints alongside him, as he gingerly begins. He dips and paints, dips and paints, over and over again, covering the paper, edge to edge with layer upon layer of color. He looks calm and is smiling; he appears mesmerized by the process. More paper, and he continues to paint!

Dad needs to head home and get back to work, but before leaving, comes in for another set of beads. This time he makes an intricate pink necklace and bracelet for his daughter, telling me all about her, as I close the jewelry for him and bid him safe travels. Raul continues painting regularly with CHAP, but Mom always just watches and helps, despite encouragement to do her own project. Then at Parent Night she admits seeing others painting canvas bags and decides to give it a try.  Reluctant to get started and hesitant with each step, Mary guides her and the project turns out beautifully successful. She tells Mary that at forty-two, she had never painted and had no idea she could learn something new, “at THAT age!”  

When I arrived the next day, after the first round of hugs, she tells me about painting the bag. She texted pictures of it to her husband, who exclaimed it was so gorgeous and couldn’t believe that SHE painted it on her FIRST try! She had to tell him three times that she did it herself, before he finally believed her! 

Several times throughout that Saturday shift, she hugged me and told me “thank you” for a multitude of different things. And today, for the first time, she leaves him alone in the art room with us…painting…while she packed up the room to leave.  Although the adults speak perfect English, she tells me before leaving to pack, that Raul likes it when I speak to him in Spanish.

“You know,” she finally confides to me, “I thought you were all crazy when you kept offering for him to do some art. I just saw him as very sick and thought he should just lie there to get better. Now I know that painting has changed his life! He loves it, he is smiling more than ever, he doesn’t mind getting messy. He has changed so much! He is happy! Thank you!”

*Name changed to honor confidentiality

The numbers are in - thanks to our generous supporters, we provided OVER 7500 healing art experiences in the hospital in 2015. (11,000 total, counting work outside the hospital) THANK YOU FOR MAKING THIS POSSIBLE!


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