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Aug 8, 2019

In the summer, our work continues

Dear friends!

We would like to share some news about the work of our foundation over the past 3 months.

As you know, the mission of the Karelian Registry is to help patients with leukemia to overcome the disease! We receive requests to find donors for patients from different countries. Since the beginning of 2019, we have got 73 requests from Russia, Britain, Spain, Belgium, Kazakhstan, France and Turkey. Sometimes there were 4 requests a day, which is just surprising!

There were 7 matches with our donors. One of the donors has already donated bone marrow cells for a child from Russia. We reported that last time. And now two more donors are undergoing a medical examination. We believe that everything will turn out well and that they will be able to give patients with leukemia hope for life!

As you know, leukemia knows no boundaries, adults and children from different countries suffer from it. It is important for people from all over the world to unite in the fight against it! Thank you for your participation, kindness and mercy! Thank you for your donations!

Thanks to it, we can pay for the inclusion of new donors in the register. And the more donors will be on the register, the greater the chance that we will be able to find a donor for a specific patient with leukemia and save their life!

In the summer months, we did not hold a campaign to attract donors. But we talked about bone marrow donation at lectures, during specially designed games and workshops on origami (we made paper cranes - a symbol of the fight against leukemia). We destroyed myths and fears by all means, convincing people that being a potential bone marrow donor is safe for the donor and vital for patients, and we invited people to register in our office in Petrozavodsk at any convenient day!

Every week, volunteers and registry staff are ready to consult those who wish to become potential donors. Our opening hours are turned into monthly schedule and published on the social media.

As usual, we offer residents of other cities to join the register by sending documents and samples for analysis by mail. Thus, we have already received dozens of envelopes from different cities of Russia!

It's great that now neither time nor distance is an obstacle to doing good and important deeds!

Thus, over the past 3 months, several dozens of people have become potential donors. Now there are 4954 potential donors in our database and we are waiting from the laboratory for more 56 HLA matching results.

It is important! Thanks to our mutual efforts, more and more people are ready to help patients with leukemia. It means that there is more chances that one of the potential donors will be compatible with a specific patient and will give hope for recovery!

Friends, thank you for being with us for many years! Let's beat leukemia together!

May 13, 2019

Our new achievements

Dear friends!
Thank you for your trust and constant suppor to four actions.During the spring time we had many events.We managed to hold many meetings in different organizations where we talked about the donation of bone marrow, about transplantation,about deadly diseases when only bone marrow transplantation can save a person. And the: we convinced people at our meetings that the donation of bone marrow is safe for the donor.There sult of our meetings has been already visible: samples of 188 people have been sent lately to the laboratory for analysis.Neither distance,nors care my the aboutbonemarrow donations do not prevent people to make a decision and demonstrate readiness to save a person whose life depends on 200 ml of bone marrow.Sucha little amount, butt here is someone's chance to live!

Wecontinueto receive requestswithprayerandhopeforrescue: for today, we have 38 requests for bone marrow donors.Thirty eight sick people don’t have matching donors in the biggest world databases. Only way to find donors for these 38 people is to increasethedatabase.And you, our friends, helpusto doit!Thankyou for your care and support! Thus, thankstoyou,recently wehave found a donorfor a littlegirl who fightsleukemia. The transplantationwentwell.Let’spraytoGod that the diseasewillretreat and that the girl can recover,grow and be happy, and know the joy of loveandmotherhood! Let'swishpatienceandstrength to herparents.Theythankyouallfor your priceless support!

Thedonorisa young mother with name Natalia who lives in Petrozavodsk and raisestwochildren. NataliaworksintheRepublichospital of KareliainPetrozavodsk.Afewyearsago,she became a potential donor of bone marrow, joining our Registry. Here'sherstory."InFebruary, someonekept callingmeforalongtime.Itwas the head of the Karelian RegistryYuriGayevichIoffe.HeaskedifIwasreadytobeadonortothepatient.AndIimmediatelyanswered"Yes". I had no doubt,thoughIdidn'tevenknowverymuchhowitallhappens:would it be dangerous,scaryorpainful.Ididn'tthinkaboutit. If I couldhelp, I wasgoing to help. IntheCells Center, I wastreatedlikeaqueen,Iwasevenembarrassed a little bit. For fivedaysI was given a drug that stimulatedthe release ofstemcellsintothebloodstream.Itwasnotscary,YuriGayevichexplainedmeeverything,and Iwasnotafraid.InitiallyIwasreadyevento the factthat the procedurewouldbeunderanesthesia. The onlysideeffectwasaheadache,but the doctorshelpedmetocopewithit.Onthefifthdaymy stemcells were taken; the whole procedurelastedalmost5hours. On the sameday, the stemcellsweresentwitha couriertothehospitalwhere the transplantwasperformed.Ididn'tknowanythingaboutwhoIhelped, except that itwas a patientfromRussia.I didn’t care really. The mainthing I cared about: to do what Ican.OnlylaterI was toldinthehospitalthatthe patient I helped wasa 13-year old girl.Istartedcrying. I have kidstoo,anditwould be greatifthisgirlrecovered.Inafewyears,ifitgoeswell,Icanget to know who I'vebecome a donorto.AndIwouldlikethat."

Natalia’s hus band and colleagues supported her during all the process.Natalia didn’t tell her children this story though: she didn’t want them toworry about her.She just told them that she will be in the hospital for a few days, for some small procedure.She says she'll tell them if everything works out, and this story wil lhave a happyending.Now Natalia is a passionate supporter of the Registry and convincesev erybody to be abone marrow donor,"Ishould be done. There are a lot of patient sout there who need our help. And itis absolutely nots cary.encourage my colleagues to join the Registry.Another day a friend asked me, ifI hadto do this procedure with Anesthesia,not just through a vein,would agree to it. I said, initially agreed to everything. "Would n't you agree?" asked her.And she said she probably wouldn't.I was outraged , “You can save a human being life! What if suddenly you need the same kind of help, and some one justs cared and said NO?!“ We have to be kind to each other, Natalia is sure.

4936 potential donors have already listed in the Karelian Registry of Bone Marrow Donors. They are“your”donors too: we can recruit new donors only becauseyou are helpingus.
Thank you! Together we can do anything,and evendefeat leukemia!

Feb 11, 2019

Our working days and small joys

exhibition in Kostomuksha
exhibition in Kostomuksha

Dear friends!

We've been very busy for last three months. What have we done for those three months?

We conducted another campaign to recruit new potential bone marrow donors. Our sites worked in the Karelian cities Petrozavodsk, Kondopoga, and Kostomuksha. For the first time, the action also was held in the small Karelian city of Suoyarvi. In result, 87 new potential bone marrow donors were included in the Registry. We also received letters with potential donors’ smears for HLA-typing from other cities of Russia. We are increasingly using postal services for getting new potential donors from different regions of Russia because it is convenient and takes not much time for those who want to be included in the Registry database.  This time we received 17 envelopes with applications from people who want to be donors.

In the last spring we came up with an exhibition which was opened at the State Petrozavodsk University.  The exhibition introduced students with what bone marrow donation is, who needs transplantation, how to become a bone marrow donor. We explained students why it is so important to become donors and that is not dangerous at all for their health. In the autumn our exhibition was taken to the North Karelian town of Kostomuksha. Then the exhibition visited Kondopoga – another small Karelian city. Many citizens who attended the exhibition decided to become potential donors. After Kondopoga the exhibition was displayed in a small Karelian town Suoyarvi. And again it was so popular among locals that many of the attendees joined The Registry as potential donors.

We learned how to talk about bone marrow donation. We came up with banners that were called "7 steps to bone marrow donation", and advertising agencies helped us to install advertising banners on the streets. It gave an excellent effect:  many people learned about us. We are proud of this project because it became the winner of the II degree of the all-Russian award "Complicity-2018" for contribution to the development of bone marrow donation movement in the category "Formula of Good Deeds". This is a very prestigious award. The all-Russian prize "Complicity" was established in 2010 by the National Health Development Fund and the Coordination Center for the Organization, Development and Promotion of Voluntary Blood Donation at the Public Chamber of the Russian Federation. We would like to note that for us this victory was the second in a row: in 2016, the jury of the "Complicity" honored the series of our recruiting campaigns "Flight of Life" with a diploma of I degree in the nomination "Formula of Good Deeds".

These victories are important for the Karelian Registry because it is a public recognition of our hard work. We are known all over the country, and people understand the importance of what we are doing. We are receiving many letters from different regions of the country where people express their desire to become bone marrow donors and ask us how they can do it.

And we are in a huge need of donors! At last Christmas we received another request to find a donor for a patient from England. And one girl from our database has matched him! Now we are waiting for the doctors to decide when the time is right for the transplantation. At the beginning of 2019, we again were looking for a donor - now for a patient from Russia. And we found him in our Registry! For this case, we are also waiting for the time of transplantation to be determined.

We are able to work because we have you, our benefactors. The more funds we have, the more potential donors we can attract. That's why every year we participate in the Generous Tuesday. This is a Russian version of the world campaign Giving Tuesday.  We received numerous donations during the Generous Tuesday -2018 campaign. It means that we can recruit more new donors to help terminally ill people survive.

Thank you so much for your priceless support! We greatly appreciate it.

Together we can do many things! Even defeating of leukemia is in our power if we fight all together!

our diploma "complicity"
our diploma "complicity"
new donors
new donors

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