Project Name : Run a 70-bed child cancer ward in India
Project ID : 19108
IMPACT Project Report for September to November 2015
Story of Shiva :
Name : Shiva
Age : 13 Years
Diagnosis : Blood Cancer ( ALL )
Address : Peddapuram, East Godavari
Shiva is a thirteen year old boy hailing from East Godavari district. His father pulls a rickshaw and his mother works as a daily wage laborer to make both ends meet.
He has two siblings, one sister who is married and one brother studying in tenth class. Shiva is youngest of the three. He is currently studying in seventh class.
It all started with an eye infection for which Shiva’s parents took him to a local private hospital. After checking his eye, doctor prescribed few medicines and there seemed to be some improvement initially but few days later the infection and pain resurfaced.
To seek a second opinion, Shiva’s parents took him to another private hospital and consulted a doctor there. He was prescribed another set of medicines and even that did not work unfortunately. It is already six month since the pain started and Shiva continues to suffer with pain.
Leaving no stone unturned, Shiva’s parents took him to another hospital where they in turn referred him to a well equipped hospital in the town - Kakinada Private Hospital, where doctors suggested thorough investigations like CBP, LFT, RFT and X-Ray. Doctors then studied the reports from investigations and referred Shiva to MNJ Cancer Hospital in Hyderabad suspecting of cancer. Shiva’s parents did not waste any time and immediately headed to Hyderabad to admit him at MNJ Cancer Hospital.
In MNJ Cancer Hospital, medical oncologist saw the child and prescribed few more investigations including CBP, LFT, RFT, Blood grouping & Bone marrow etc. Paediatric oncologist then studied the reports from investigations and finally confirmed that the child has blood cancer (Acute Lymphoblastic Leukaemia - ALL).
Upon confirmation of diagnosis, Shiva was admitted to IMPACT paediatric oncology ward and has been assigned to an IMPACT Counsellor.
IMPACT Counsellor firstly explained about child’s condition to his Parents. The Counsellor also explained the treatment process and protocol to the patient. After which a group therapy was conducted for the child and also for his companions. Shiva was made to understand the treatment plan and the duration. He had a lot of questions on his condition and Cancer. But after the group therapy he came to grips with the situation and also realized he is not alone his fight against cancer and that there are many other children fighting this disease.
When Shiva first came to MNJ hospital, his condition had deteriorated quite a bit and his parents were both physically and mentally exhausted and also financially depleted from medical treatment costs.
Shiva’s parents were in a shock when they were told about cancer and could not grapple with the harsh reality of cancer. They had a lot of apprehensions about the cancer and how their child would cope with the treatment.
Shiva says IMPACT counsellors Mrs. Sunitha & Mr. Meghnath were of great support in a completely new place and unfamiliar environment and made him feel comfortable.
Having understood the tribulations of the patient and his parents with regards to the costs of treatment and considering their financial background, IMPACT assured the family financial support for purchase of Blood Product and Nutrition.
Many a times Shiva slipped into deep sorrow, thinking about the disease and the risks/uncertainties associated with Cancer, but IMPACT counsellors empathized with him and helped him to overcome his fear by involving him various activities actives like drawing/painting and making him play with other children in the play room.
Shiva said the most painful moment of the treatment was at the time of bone marrow. But he said he will always remember the support he got from IMPACT staff and also emotional support from parents of other patients in the ward, especially parents of Rishi and Fazal .
Now Shiva is under treatment and his health condition is stable.
Future Plans of Shiva :
Shiva wants to go back to school and his parents want to see him in good health. During the course of counselling him and interactions with him, IMPACT counsellors have learnt about his aspirations and interest in computers, communication in English and also dancing.
IMPACT staff along with volunteers is trying to develop these interests in him while he is undergoing treatment and IMPACT is trying its level best to cure him completely over a period of time so that he can go back to school and pursue his dreams.
Quarterly Status Report :
During the period of Sept 2015 to Nov 2015 , a total of 1220 children have been treated for cancer .
Out of which, 120 children were in-patients in the IMPACT ward.
Brief summary of activities
53 children benefited from our Transport Support
3 camps were conducted, one in the month of Sept and two in the month of Oct 2015.
3. Blood Products Support
Totally 472 children got benefited with FREE BLOOD.
4. Hygiene Program / Support
Medicines were procured and administered to several needy children
6. Volunteering Activitie
Events during the Quarter:
(Please see the attached pdf for pictures of events/activities )
Case Study and Success Story
Case Study of Manikanta
Name : Manikanta
Age : 10 Months
Diagnosis : Acute lymphocytic leukemia (ALL)
Manikanta is a ten months old child. He is the only son to their parents who hail from west Godavari district. He is born to them after ten years of their marriage. Before he was born his parents had adopted a girl who goes to Anganwadi school. Manikanta’s father is a welder and runs a welding shop. Unfortunately he met with an accident and passed away just two days before Manikanta got admitted in IMPACT/MNJ Cancer Hospital . His mother is a home maker.
Three months back Manikanta developed a unusual swelling in his stomach and became very weak .
His parents took him to to a private Medical Oncology doctor. After doing his blood test they came to know that blood count is low
Then they visited Palakollu Rathna Hospital for blood transfusion. After two days they went to another hospital Tanuku Sathya Hospital for tests . They said blood count is low and referred to Little Star Hospital. Again performed blood tests and informed them that it seems to be Blood cancer and that it has no cure.
Manikanta and his parents then returned home disheartened.
After twenty days he developed cold symptoms for which he was taken to near by town Bhimavaram and got checked into Varma Hospital. On 23rd they were referred to NIMS Hospital in Bhimavaram. It’s on this day Manikanta’s father met with an accident and passed away.
Manikanta’s uncle took the child to NIMS Hospital.
There the doctors Verified the previous reports and referred him to MNJ Cancer Hospital. On 27th March they came to IMPACT / MNJ Cancer Hospital.
BMA test was done and then confirmed that he has blood cancer ALL.
Psycho Social Issues:
Current Status of the Child :
Induction and consolidation is completed successfully.
Success Story of Parvin
Name : Parvin
Age : 13 years
Diagnosis : Acute promyeloid leukaemia (APML)
Parvin is 12 years old girl. She is studying in 3rd class. She has one younger sister. Her father is an auto driver and mother is a beedi worker (Tobacco).
Parvin is very active girl and belongs to a small beautiful family.
One day she developed fever for which her mother gave her paracetamol tablets for reducing the fever. She responded to the tablet and was feeling good for few days. After few days she started bleeding from the mouth. By seeing this her parents got frightened and took her to a private hospital. The doctors in the hospital referred to another super speciality hospital for BMA test. There the doctors by seeing the BMA report confirmed that it is Blood Cancer ALL. And the doctors referred to MNJ Cancer Hospital.
When it got confirmed that Parvin is suffering from Blood Cancer, initially her mother got afraid about the disease and the treatment.
Her mother’s heart filled with deep sorrow was shocked by knowing that her daughter is suffering from Blood Cancer. At that time she was not in position to accept the truth. Doctors in their home town explained to her mother about the disease and treatment. Doctors advised her mother to go to MNJ Cancer Hospital for better treatment. From there they came to MNJ Cancer Hospital. Now Parvin has successfully completed her six months treatment in IMPACT / MNJ.
With these six months of cancer treatment and completion of her monthly checkups, Parvin’s mother is now very confident and hopeful that the child is going to do well in the future. It is expected that after three years Parvin will be mostly cured.
Parvin’s father was not told that she is suffering from cancer because he is a very sensitive person and could not have taken the bad news about his daughter.
Current Status :
Parvin is out of danger and she is very happy that she can go back to school and her parents are also very happy to see their daughter cheerful and out of danger.
PROGRAM ACTIVITIES AND REPORT
During the period of June 2015 to May 2015 , a total of 1282 children have been treated for cancer by IMPACT in MNJ.
Out of that, 155 children were in-patients in the IMPACT ward.
Brief summary of activities during June-August 2015
1 . Transportation Support
o 38 children were benefited during the month of June-2015,
o 30 children benefited in the month of July-2015
o 22 children got benefited in the Month of August-2015
2. Blood Donation Camps
Two camps were conducted one in the month of June and the other in the month of July 2015. Total of 400 units of blood was collected.
o Blood Products collected in June blood camp - 310 Units
o Blood Products collected in July blood camp - 90 Units
o 175 children got benefited during the month of June-2015
o 146 children got benefited during the month of July -2015
o 60 children got benefited during the month of Aug -2015
o Bed side cleaning
o Hygiene boxes, Masks and sanitizers were distributed
o 10 children got free medicines in June-2015
o 20 children got free medicines in July-2015
o 06 children got free medicines in Aug-2015
International Children’s Day Celebrated by Emcure Lab distributed Fruits to Kids.
Godavari Polymers donated Injections And Tablets.
Meghana Group Entertained the Kids.
Celebrated children birthdays in the ward .
Srinidhi College Visited the Ward.
Wills Foundation And Smile Foundation Entertained the Kids in the ward.
EVENTS AND VISITS TO IMPACT WARD
During the period of March 2015 to May 2015 , a total of 1340 children have been treated for cancer by IMPACT in MNJ.
Out of that, 140 children were in-patients in the IMPACT ward.
Brief summary of activities during March-May 2015
1. Transport support
o 20 children were benefited during the month of March-2015,
o 19 children benefited in the month of April-2015
o 23 children got benefited in the Month of May- 15
2. Blood Donation Camps
o Blood Products collected in March blood camp - 137 Units
o Blood Products collected in May blood camp - 208 Units
o Total to 345 units of blood were collected
o 121 children got benefited during the month of March-2015
o 125 children got benefited during the month of April-2015
o 73 children got benefited during the month of May-2015
o 30 children got free medicines in March
o 70 children got free medicines in March
o 40 children got free medicines in March
o ( Inj.Tigi 50 mg, Inj.ethyal predmoslve 250mg. Endoxan 50 Tabs,Lastet Tab.50mg.,Tomoxefen 20mg. Methofast 50 mg. Syp. Zocovit,Kids care plusInj. Endoxan 500mg. Inj.Colistinea 10 lakhs(Voils) Inj.Clindazine 300 mgInj.Heptatis-B.)
Case Studies of beneficiaries :
Case Study of Lasya
Name : Lasya
Age : 4 Years
Diagnosis : Wilims Tumor
Address : Thatlapila (v), Kakinada, East Godavari Dist
Lasya (B/o. Subramanyam is a 4 years old child. Lasya’s mother is 21 years old women and father is 25 years old men both are agriculture labours. Whole family is depending on agriculture only. Lasya is only daughter to her parents.
Initially lasya was suffering with not passing urine and motion properly. After few days parents identified the problem and immediately they showed to private hospital in the Kakinada. In the Kakinada private hospital child underwent all investigations like CT scan, X-Ray, Ultra Sound, CBP etc. After the investigations reports, doctors have found that child had tumor in the stomach. Doctors advised the family that the child should undergo surgery. Parents accepected the Doctors advice, removed the tumor from her stomach. After completion of surgery doctors referred to MNJ Cancer Hospital in the Hyderabad. In the MNJ Cancer Hospital, did all the investigations and finally confirmed that child had cancer (Wilims Tumor).
After confirmation of diagnosis doctor started the treatment for the cancer (Wilims Tumor). Lasya has taken chemotherapy treatment totally she completed treatment successfully. Now she is under 3 month’s follow up for checkup.
Psycho Social Issues:
In the beginning lasya's parents worried about the childs situation and they were totally scared about the disease. They were very anxious about the child's health . Our counselors played a great role to convince them about child's prognosis. Parents had Financial Problem because they spent lot of money for treatment during the time child was undergoing treatment in private hospital. Their financial background is poor.
Now lasya parents are very happy because lasya has completed her treatment successfully without any delay. Child and mother feels very happy because her daughter has got cured from the dangerous cancer disease.
CASE STUDY OF HEMANTH
Name : Guguloth Hemanth
Age : 7 Months
Diagnosis : AML
Address : Annaram Thanda (v), Choudru gonad (m), Khammam (dist)
Hemanth is a 7 months old child. He hails from khammam district. His father is Studying
B.Ed and his mother is 10th class. Whole family depends on agriculture only.
Hemanth is the first child of his parents. Their financial background is stable.
Initially Hemanth was suffering with fever and rashes on the body. So his parents
Took him to RMP doctor. The doctor could find the problem. So he has referred to another private hospital in khammam.
In Khammam childrens hospital they did all the investigations. After the investigations doctors had doubt that it might be cancer. So the doctors spoke to Hemanth parents personally and advised them to go and take treatment in MNJ Hospital.
But Hemanth parents took the child to Suraksha Hospital. Because they came to Hyderabad in the night. In Suraksha Hospital they advised them to go and take treatment in MNJ Cancer Hospital and did all the investigations. Finally the doctors have confirmed that Hemanth had Cancer AML.
Father feels that his mother is unable to understand anything. So he refused to make her understand that
he is suffering with cancer. Everything he was trying to hide before her. But Counsellor educated the
mother regarding the Disease. Counsellors found that Hemanth mother is able to adjust to the situation as
she faces every day.
CASE STUDY OF VIKAS
Name : Vikas
Age : 2 Years 9 Months
Diagnosis : Burkits Lymphoma
Address : Kumberipadu, Muchangipet, Vikashapatnam, AP
Vikas is a 2 year old boy he had one elder brother Aakash, studying in Angavadi School, Child father is Gennu (29), working as a Gardner in Kerala and mother is Jyothi (24). She is house wife. They are living in a remote village at Vizag. They are very poor. The child father is the only care taker to the family as he had no mother and father was a alcoholist.
In the month of December 2014 the child could not eat. Suddenly one day the Childs father found some tumor in the Childs stomach. The childs father has shown the kid Asha Kiran Hospital Orissa. The doctor said C.T Scan facility is not there so referred to Chaitanya Hospital Vizag. In that hospital did C.T Scan & FNAC and said it seems concern and the treatment is very expensive. The child parents feared and went to home. Some of the known persons and elders of the village suggested going Mahathma Gandhi Hospital Vizag. They went but doctors were not there then they went to another NRI Hospital. The doctors said it was cancer there is no treatment, the child will die. Next day the child parents consulted in Mahatma Gandhi Hospital. The doctor suggested to go Hyderabad and given three hospitals name. They came Hyderabad and admitted in Yashoda Hospital. The doctor referred to MNJ Cancer Hospital. In the MNJ Cancer hospital all the investigations done and confirmed Burkits Lymphoma.
The child father is the only person who take care about the total family
Because in the childhood only his mother was died and father is alcoholist.
The child father had lot of pain that he had no sibilings. All are dying in his childhood only.
He is the only person who earns the money.
He thinks that all his brothers died so that is child may be died but he hoping that he will cure and taking treatment.
He married Orissa woman so she does not know the Telugu & Hindi languages. He had to communications in the hospital with the staff or other.
He only the person to support and take care of all situations.
CASE STUDY OF D.SRIKANTH
Name: D. Srikanth
Age: 13 years
Diagnosis: Burkit’s Lymphoma
Address: Swaroop Nagar, Uppal, Ranga Reddy Dist.
D. Srikanth is 13 years old boy studying in 7th class. He is the only son to his parents. His father is went away from home because of some health problems. Don’t know where he is. His mother is the only care gives to him. She works as a sweeper in uppal have race count and also works in some homes. Her son is also works in some homes. Her son is everything to her.
Two months back the child got fever but they ignored it. After 2 days he got arm pain. His mother showed him to a RMP doctor given medicine but not cured. Then they went to boduppal private hospital. Did X-ray doctor said that water formed in lungs and told that water should be removed. But they went to Ongole private hospital.
There removed the water (fluid) and did test but not identified any problem. Then the doctors referred to Ravinder Hospital Nellore. They referred to Narayana Hospital child had breathing problem they put ICN both sides and referred to Madras. Did tests and said child had cancer and asked 10 lakhs for the treatment. They said no money then doctors referred to MNJ Cancer Hospital did investigations and confirmed cancer – Burkits Lymphoma.
Psycho- Social Issues:
ü They had only one son he got the cancer.
ü Before that his father also some health problem and he went off from home.
ü No security to them either physically or financially.
ü They had a very sensitive behavior to the situations.
ü They faced lot of critical situation and finally came to MNJ Cancer Hospital.
ü His mother’s brother is some what supportive to their family.
Only one aim the child has successfully completed the treatment and with no cancer
CASE STUDY OF SRI RAKSHA
Name: Sri RakshaLinks:IMPACT Case Studies