Sep 21, 2020

Report 25 - Help Lithuanian Kids in their Battle

 

                                          Kajus

Daer Friend,

     Eleven-year-old Kajus is one of the children with oncological disease. A year ago, we rejoiced in the boy’s success in overcoming the disease. Unfortunately, the disease came back and this time the treatment was very difficult. Bone marrow transplantation was used to treat kayaks. His little three-year-old sister became a donor. A boy from December last year was only at home for a few weeks. During that time, many treatment-related complications had to be overcome. I had a hard time believing my mother’s story of what her son had to go through and endure: "It was so scary when Kajus vomited non-stop. I started counting The number was terrible - 106 times a day. In addition to constant nausea, trips to resuscitation were followed by many more complications and complete isolation from the outside world. Kay and his family needed, and still need, infinite strength in overcoming the disease, because it would still be too bold today to talk about a complete recovery. The boy’s treatment and care required and still requires not only professional ongoing medical care, expensive treatment, but also the help of good people. Lithuanians living in Ireland have already extended their help to Kajas twice, and the organization cares about Lithuanians in Ireland. We sincerely thank the Lithuanians of Ireland who care for her soul Rita for her endless care, love for children, for constant help, support during the most difficult times of the disease. Kaja’s family sincerely thanks all the people with a good heart for their support in nursing.

 

      

                                                              Zemyna

      It is always lovely and sensitive to write about children. Each day begins with the greatest hope and best wishes for them to recover. In my thoughts, I keep traveling from one child to another.

This time about a little Continent, which is healed by the support, love, wishes and prayers of many people.

The mother of this amazing girl, Ligita, shared how the Continents are healing:

"Hello everyone, we are doing well enough, we go to Switzerland every 4 weeks, we didn't miss a single visit due to the quarantine, and the last time, 3 weeks ago, we already flew by plane.

The three travel machine really got tired. We are glad that travel conditions have already eased.

Doctors are very satisfied with the results of the Continent, the girl is doing very well. The tumors are still inactive, it has been used for the last 4 times or no longer has any treatment at all, or due to hedging, it has been used prophylactically once for both eyes.

With one eye, she doesn’t see at all, but her general condition improves, and there’s no more talk of disposal.

Doctors believe that this eye will never regain central vision, but maybe we will be able to develop peripheral vision, so the little one will not see objects clearly, but at least will be able to orientate in the environment, so since the last visit we started covering the eye every hour.

The professor warned that it would be very difficult for the girl to tear the patch, get angry and cry, gave all sorts of advice on how to occupy it for that hour, and start from 10 at least a minute and then gradually extend the stay “blindly” to an hour.

 Well what can I say, my daughter still surprises me with her firmness and patience, even though she is only a year and a half old, but she is extremely understanding and patiently endures all procedures without any crying. When other children scream from needle punctures or taking the Covid-19 test, the Continent just shrugs his forehead and then smiles at the sisters and says thank you the staff already remembers the Continent and calls them their favorite patient.

So even with the covering of the hole, there are no problems yet, we allow us to seal the seeing hole, and it stays perfectly all hour.

It’s too early to say anything, but I suspect that maybe the doctors are wrong that she still sees something because she knows from somewhere where she is and sometimes goes exactly where she needs it.

Let's hope to regain even poor vision

And the vision of the other eye finally started to improve, during the last visit we learned that vision improved from 10% to 16%.

For a child of this age, these are pretty good numbers.

We are happy with the results we have achieved today, but every time we still go to Switzerland with fear, we are afraid to hear bad news, but so far our fate is smiling and the girl's condition is stable.

We have already started preparing for the next trip, we will fly out again on Tuesday and I hope we can share the good news with you again "

Retinoblastoma - a rare oncological disease (malignant eye tumor) is not treated in Lithuania.

We sincerely thank everyone, people of good will, whose victims give children the opportunity to receive treatment in the best foreign clinics.

 

 

 

Sep 21, 2020

Report 23 - Help Lithuanian Kids in their Battle

                                                                                          Emilija

 

I received this message from Emilia's mother Dovile on Friday night.

 

First of all, I admired the photos and the amazing curls that Emilia grew up with.

 

The realization that Emilia has to succeed is not abandoned from the very beginning of her illness.

 

Of course, that will be the case, because that sweet victory is very close.

 

"Good evening Egle.

 

I will report on our trip and the results of Emilia again. We are still in Switzerland, but after all the necessary procedures.

 

The professor reported good news. After the previous treatment, the tumor was destroyed, but allowed another injection into the well, which should be the last at this time. And with news like I won’t dance a dance of happiness.

 

After the next inspection, which will be on October 19th, it will be clearer what we will do next and what the maintenance will be.

 

Emilia feels like never before. Unable to recover from anesthesia normally, she already has endless plans for what she wants to do. "

 

Thank you, dear Deauville, for the joys and worries you share, because we care, like many people, who follow children’s stories, support their treatment, care, and send wishes of recovery!

 

A heartfelt THANK YOU to all the benefactors who give hope for the healing of children

 

 

Jun 29, 2020

Corona Virus Period

Quarantine in hospitals is not over yet. The isolation conditions are still strict, therefore, the help of all of us is very much welcome here.

Every attention is very important here. Every child is the most important.

Today, the oncohematology department is full of children. There are even 20 of them.

Quarantine conditions are easing a bit. However, our children and their caring parents still live in conditions of strict isolation. Food aid facilitates their long hospital stay. Kids can enjoy more delicious food, mom’s cooked lunch.

Several months of complete isolation in the ward, with no contact between people other than medical staff and long waiting days. No chance to run to the nearest store so you can buy your child at least some tastier food. Such is the daily routine of seriously ill children and their parents.

We continue, together with your help, to buy children their favorite food so that they can recover faster, so that the isolation affects their emotional state as little as possible.

A sincere THANK YOU to those who contribute to the food purchased for children, to a more abundant and diverse dinner table.

 
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