Jul 12, 2017

Our Cleft Infant Nutrition Program

Astrid, before and after
Astrid, before and after
Partner for Surgery helps provide medical care to many children and their families, but there is one particular program that we are very proud of: Cleft Infant Nutrition Program.
Through this unique program, we accomplish three major goal by preventing:
 
  1. Malnutrition, so the child will thrive and qualify for surgery;
  2. Speech impediment, by providing cleft palate surgery before the child reaches the age of one and a half;
  3. Ostracization with the community of family and child.
With around 165 children enrolled in the program at any given time, it is vital that Partner for Surgery continues to raise funds to provide all the care needed for these children. A single month of life saving nutrition to one cleft infant costs $35 in Guatemala.
Our impact in Guatemala has become quite noticeable. In the past, almost all the infants with clefts were first seen at our rural medical missions. Now, over 85% are referrals from government medical personnel and community midwives, which means the infants remain in better health and can qualify for surgery earlier than before.
 
During the Workshop in Congenital Malformations led by the George Washington University/Milken Institute of Public Health, and held at the Universidad Rafael Landívar  on June 2016 in Guatemala, many presentations indicated that inadequate micronutrients in the diet of newly pregnant mothers is an important factor in formation of cleft defects. Now we are studying the possibility of adding a fourth prevention element: education. This effort would focus on educating children in school on how better food preparation and nutrition can reduce cleft anomalies.
In the next few days, Faces of Hope will join us in Guatemala to help provide surgery to dozens of cleft patients who are ready to leave the nutrition program and move to the next step of their life changing journey.
Elda, before and after
Elda, before and after
Orlando, before and after
Orlando, before and after
Playtime after surgery
Playtime after surgery
ACPC, our Guatemalan counterpart
ACPC, our Guatemalan counterpart

Links:

Jun 29, 2017

Our accomplishments in Guatemala and the lives we help change

Linda, one of our volunteers
Linda, one of our volunteers

We frequently hear from our donors that they are amazed at how much Partner for Surgery has been able to accomplish in Guatemala. And yes, we are very proud of the many thousands of people we have provided with medical care but we have not done it alone. In 2008, Partner for Surgery started a Guatemalan partner organization, Associación Compañero para Cirugía (ACPC), with the intent of Guatemalans eventually leading all the day to day activities. Together, we have now become the pre-eminent organization providing health and medical care in many of the Guatemalan rural communities.

An indicator of success can be seen in the significant increase of government medical personnel and community midwives in the referral of newborns with cleft anomalies to our Cleft Infant Nutrition Program. Several years ago, almost all the infants with clefts were first seen at our rural medical missions. Now, over 85% are referrals, which means the infants remain in better health and can qualify for surgery earlier than before.

We are currently looking for both medical and non-medical volunteers for our week long rural medical missions. During the week we visit four villages, numerous Mayan homes and also include a cultural day in the area. These missions provide a unique personal look into the life of rural Mayan communities which have a cultural history of almost 3,500 years. Please let us know if you have an interest in more information such as activities, dates and costs. 

Below we would like to share a couple of patient stories and how with the help of proper medical care we were able to change their lives.

PATIENT STORIES

Juan

Three years ago, Juan looked for help from the national health system after a mass began to form on his neck and face, however he was told that nothing could be done. Living in a very hot area, he would wear a hoodie everyday in order to cover the mass, but he would still get bullied, significantly lowering his self-steem.

In June 2016, we identified him during one of our rural missions, and a surgery was scheduled with a neck specialist from Cape Breton. In the following surgical mission in February 2017, Juan's mass was removed, and so was his hoodie.

Juan simply could not believe the before and after pictures we showed him. A few weeks later, he called us and told us how much we were able to change his life. He found himself a job and a girlfriend.

All he needed for a life change was the opportunity to receive proper health care.

Sandra

Sandra visited us because she felt several lumps on her breasts. Before visiting us, she was scared after she was told she could have breast cancer, and her mind was set that she would not be able to overcome this.

We encouraged her during her visit and asked her to let us help her the best way we knew. We had recently started a breast cancer program with a high focus on education and help with surgeries when needed.

Sandra's pathologies were clean and her lumps were removed during our February surgical mission. She thanked us for giving her another chance in life.

Juan, before and after his surgery
Juan, before and after his surgery
Sandra, in the middle, and our volunteers
Sandra, in the middle, and our volunteers

Links:

Apr 12, 2017

How our nutrition program impacts families

Fredy and his sister Dulce
Fredy and his sister Dulce

In this report I would like to tell you about our activities of the last three months and include a vignette that shows the importance of a new initiative we are developing. Our in-home program to care for children with a cleft defect has become widely known in the rural areas in which we work. Because we use local  to provide infant nutritional support, link families to surgical teams, provide education on care of infants with cleft defects, the program has become integrated within the rural health system. Ten years ago, almost all of the children in our nutrition program were brought to our rural medical mission events—many in a very malnourished state. Now, over 80 percent are referred to us by midwives and local government health promoters. Over the last three months the number enrolled in the program varied from approximately 150 to over 200, depending on the number of children who recently had surgery.  Because the infants health can be maintained while in the program, they typically qualify for surgery at an earlier age than previously. With shorter resident time in the program, cost per child is reduced and available funds can be used to help more children each year. Already this year over 60 children have had cleft repairs and we expect a total of about 250 for the year.

Over the last three months we have made significant progress in building a team of organizations that are committed to educate young students and the parents who already have a child with a cleft on how to prevent this birth defect. What is already known is that approximately 4/5ths of all cleft anomalies are the result of some environmental trigger when a genetic predisposition is present. In Guatemala this trigger is primarily the mycotoxins that are present in the corn which is the staple food in rural communities. We are currently working to create the education program on how to prevent clefts and also how to fund this new effort. 

Fredy’s family is an example of what typically happened before we had a nutrition program for children with clefts. Fredy was born with a cleft lip and palate 12 years ago. When he was one year old his parents took him to a surgical team that repaired his lip but because no organization was monitoring his progress he did not have his palate repaired. Fredy has had little opportunity for school because his open palate made it difficult to understand his speech. Now with the palate surgery he just received and the speech therapy he is now receiving from our health promoters, he will have an improved chance of integrating into his rural society. Fredy has an 8 month old sister, Dulce, who also has a cleft lip and palate but she is in our nutrition program and she will be able to have all the care she needs to develop normally in the future.    

Funding to continue the nutrition program and to add the prevention education aspect is our biggest challenge.  Please consider continuing your support of the GlobalGiving project and would be grateful if you could recommend to us other organizations that may be interested in working with us. 

Fredy
Fredy's family
Another patient, Edvin, his mother and Dr. Nahum
Another patient, Edvin, his mother and Dr. Nahum
Franklin, getting attention beyond medical care
Franklin, getting attention beyond medical care

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