Helping Arthritis Patients Fight Disability

 
$1,877
$48,123
Raised
Remaining
Jul 7, 2014

Fighting Arthritis for a better life

Everything around you feels beautiful when you are comfortable and content. Who does not want to enjoy the beauty this world has to offer but alas for many it isn’t so.

This 24 years old is a Rheumatoid Arthritis patient and was wheel chair bound and could not move around without it. This was due her deformed knee joints which resulted in her complete immobility.

Her treatment required complete replacement of her knees, which was impossible due to the costs incurred. Coming from a very impoverished background where her parents worked hard to make ends meet, an operation like this was out of the question.

She was finally brought to Fatima Memorial Hospital where the Arthritis Care Foundation (ACF) sponsored  the replacement of both her knees which costs Rs.400, 000.

The operation was successful and today she is completely free from all the crutches and wheelchairs that held her back giving her a new lease to life. ACF is treating many patients daily at Fatima Memorial Hospital and to continue with our purpose of healthier community we need your kind support. Our mission is to make Pakistan an arthritis free nation.

The disease can strike at any time and without proper care can lead to severe disabilities affecting patients for a lifetime. However, today through early diagnosis and extensive treatment rheumatologists can significantly help prevent disability and death in patients suffering from rheumatic diseases.

Rheumatic Diseases are the most common cause of physical disability all over the world

These stories give us hope and the strength to continue with our mission.

Please donate today and change lives.

Mar 24, 2014

Supporting a brighter future

Muhammad is a young man from Kabirwala from the province of Punjab; the 25 year old was diagnosed with Behcets disease. This is an autoimmune rheumatic disease which may lead to blindness and the blockage of veins and arteries. Apart from losing sight it may also cause heart attacks and strokes and mostly affects the young.

Making ends meet was a problem for Muhammad and add to that the expensive treatment required to ensure that the disease remains stable and does not deteriorate further was simply not possible.

Thankfully the disease was diagnosed in time and the ACF was able to fund his medication which costs around PKR 5000 a month. Arthritis Care Foundation (ACF) was established in 2001 in collaboration with Fatima Memorial Hospital in Lahore, Pakistan which provides Physiotherapy and Diagnostic support to deserving patients.

The disease can strike at any time and without proper care can lead to severe disabilities affecting patients for a lifetime. However, today through early diagnosis and extensive treatment rheumatologists can significantly help prevent disability and death in patients suffering from rheumatic diseases.

These stories give us hope and the strength to continue with our mission.

Please donate today and change lives.

Dec 2, 2013

The Road to Independence

Najma after one hip replacement surgery
Najma after one hip replacement surgery

The story of Najma is a heart wrenching one; a 26 year old married woman from a village near the city of Sargodha in the Punjab province. For the past two years she has been bed ridden as she was in severe pain due to damaged joints. She had been suffering from joint pains for many years but due to the lack of proper care the situation aggravated to such a degree that couldn’t even walk.

Her husband teaches the Holy Quran in the area and earns a meager 15,000 rupees a month (around 140 US Dollars) and proper medical care was just out of reach. Najma had tried local quacks, healers and anybody who she thought will be the answer to her pain but to no avail. 

The ACF funded her right hip replacement last year, after which she was able to walk with some support. Arthritis Care Foundation (ACF) was established in 2001 in collaboration with Fatima Memorial Hospital in Lahore, Pakistan provides Physiotherapy and Diagnostic support to deserving patients.

The ACF than also funded her left hip replacement at a cost PKR 200,000 foundation and today by the grace of God she is able to able without any support and is able to live life to the fullest.

The disease can strike at any time and without proper care can lead to severe disabilities affecting patients for a lifetime. However, today through early diagnosis and extensive treatment rheumatologists can significantly help prevent disability and death in patients suffering from rheumatic diseases.

These stories give us hope and the strength to continue with our mission.

Please donate today and change lives.

Jul 29, 2013

Let us help them walk again

Rawa Ikhlaq is ten years old and the first thing you notice when you meet her is her
bright endearing eyes which shine despite her pain. She was diagnosed with
Juvenile Dermatomyositis which is the inflammation of the muscles and was not
able to walk. Today with specialist treatment at Fatima Memorial Hospital with
the support of Arthritis Care Foundation is now able to attend school again.
These stories give us hope and the strength to continue with our mission.

Please donate today and change lives.

Arthritis Care Foundation established in 2001 in collaboration with Fatima Memorial
Hospital in Lahore, Pakistan

provides Physiotherapy and Diagnostic supports to deserving patients.


The disease can strike at any time and without proper care can lead to severe
disabilities affecting patients for a lifetime. However, today through early
diagnosis and extensive treatment rheumatologists can significantly help
prevent disability and death in patients suffering from rheumatic diseases.


The challenges faced in Pakistan are the expensive treatments and acute shortage of
Rheumatologists in the country. Currently there are about 30 qualified
Rheumatologists for a population of almost 180 million whereas the
international requirement is 1 Rheumatologists for 80,000 people. The
staggering figures means that early detection does not take place which further
hinders helping patients with treatment. The Arthritis Foundation with its
limited financial and human resources try to meet the challenges faced in the
sector in our country.


From July 2012 to March 2013, the foundation treated 3804 patients with cost of
almost 4 million rupees (40,000 USD). This was only possible with the support
of countless who have been kind enough to be a part of this mission in
whichever they can.

Apr 29, 2013

April 2013 Update on Helping Arthritis Patients

Title Image
Title Image
Introduction
Arthritis is often commonly referred to as a single disease. In fact, it is an collective term for more than 100
medical conditions that affect the musculoskeletal system, specifically joints where two or more bones meet.[[i]]
Arthritis-related problems include pain, stiffness, inflammation and damage to joint. This can result in joint weakness, instability and deformities that can interfere with the most basic daily tasks. This disease not only affects patients but their families also suffer.
Arthritis is the major cause of disability and chronic pain resulting in a substantial cost to the nation’s economy in terms of incurred medical costs and indirect costs such as loss of earnings and lost production.
As the population is increasing, the number of people with arthritis is also growing in Pakistan. It is a leading cause of disability in Pakistan and thousands suffer from this curable disease due to inadequacy of available treatments and lack of affordability by the general populace. Extra efforts are needed to reach out to the thousands in need. Unfortunately in Pakistan, there is an extreme shortage of Rheumatologists and consequently a lot of patients are diagnosed at an advanced stage of the disease, resulting in less remission, whereas an early diagnosis and treatment may result in total recovery.
ACF Foundation
Fatima Memorial Hospital (FMH) was established in 1977, as a non-profit 200 bedded hospital community hospital for women and children. Free Rheumatology clinics started in 1966 while a structured Rheumatology department
was set up in FMH in 2001. In the same year, free medication and consultancy to arthritis patients started.
The hospital is also the home to the Arthritis Care Foundation which provides Physiotherapy and Diagnostic supports to non-affording patients. On average 50 to 100 patients are provided free medicines every month.
Arthritis Care Foundation (ACF) as a collaborating partner with Fatima Memorial Hospital and is being run by a team of Rheumatologists and Philanthropist with the aim to establish, encourage, assist and support,medical social welfare and educational activities, pertaining to deserving or underprivileged patients, both adult and children, affected by arthritis and other related rheumatic diseases, regardless of their sex, religion, caste, or color, or creed.
The Arthritis Care Foundation generates funds for the following:
Provision of latest treatments, which are highly effective but expensive e.g. Biologic Therapies
Provision of artificial joints for all age groups ranging from children to the elderly
Establishing an endowment fund for providing scholarships to trainees in Rheumatology thereby addressing
the critical shortage of qualified rheumatologists in the country.
Through early diagnosis and advanced treatment methodologies by expert Rheumatologists, Arthritis Care Foundation significantly helps prevent disability and death in patients suffering from rheumatic diseases.
Arthritis Care Foundation in close synergy with Fatima Memorial has made special clinics for dealing with rheumatic diseases. One of the clinics “Akhtar Mubarik Referral Center” provides free Consultation services, diagnostics and medicines to deserving patients suffering from Rheumatic disorders. The service of Consultants, Medical Officers and Nursing Assistants and Physiotherapists are provided free of cost. From July 2011-12, a total of 22, 895 patients visited the Center while medicine worth Rs. 126, 869 was provided by Arthritis Care Foundation. [[i]]
As discussed, Pakistan faces a shortage of qualified rheumatologists for a population of 190 million. [[ii]] Fatima Memorial Hospital (FMH) is renowned for its leadership in Rheumatology treatment and is currently running one of the most respected Arthritis Centers in the country. Our consultants continuously rank with the top tier in the
entire country. In addition, FMH is continuously striving to deploy the latest technology and research for improving the quality of treatment for our patients. Rheumatology department is attached to Fatima Memorial Medical and Dental College (FMHM & D) and FMH. It is also affiliated with College of Physicians and Surgeons Pakistan for training of Post Graduate Medical Students.
The Life of Uzma
Global changes in the donor landscape have made it challenging for us to maintain the forward thrust and extensive operation we have managed historically. Non-availability of expert Rheumatologist coupled with spiraling cost of purchasing and servicing medical equipment, not to mention rising global energy prices, has severely challenged
our existing capabilities and infrastructure to the fullest measure.
We feel that such a cause should continue beyond servicing the local community of deserving poor patients such as women and children to include minorities and other ethnic groups as well. All this requires your funding to continue and grow further as we serve more and more patients.

This will only be possible through your understanding of the problems and complexities we face and the challenges that lie ahead. If you feel compassionate about our cause and want to make an impact on the lives of the people by giving them the gift of healthy life, free of pain and suffering, we request you to donate generously. Remember that disability seriously reduces a child’s chances of going to school and an adult’s of finding employment, and therefore increases poverty and dependence. This will not be the future of 5 year old Uzma pictured in figure 2 (attached), who has been treated successfully and now living a normal life free of pain and other joint complications. She is now going to school on a regular basis and her teachers report that she is doing well at school.

With your support there will be many happy Uzmas whose future can be changed permanently for generations to come.

It is not just girls like Uzma who have benefitted from our Center but a countless stream of people from all walks of life and sections of society.

Our Mission Continues

Figure 3- attached illustrates the numbers of various types and volumes of patient flow from 2011 to 2012. It is clear from the diagram below that ‘free outdoor patients general’ are leading with nearly 4,500 treated. This is indeed a monumental achievement!

We are going to continue our fight against this disease. At the same time we are also thankful for your precious donations from the previous years that have made our dream possible. But alas this will all go to waste if we are not able to maintain our momentum.

So we request you to come forward and become a part of this humanitarian movement to work towards the
shared goal of reducing this global silent killer known as Arthritis. Your donations will go a long way towards the fulfillment of our collective mission. We need all the help we can get from socially responsible individuals like you.
Your contributions will mean a lot to us and even more to the poor Arthritis patients whose lives will be positively changed forever by your gift.


References:
[i]National Rheumatology Society Pakistan, Few
Words on Arthritis, http://www.pakrheumatology.org/html/about_arthritis.html,
accessed on March 2013.

[[II]]
Arthritis Care Foundation, Project Report, http://www.arthritiscare.org.pk/index.php?menuid=14&pageid=12,
accessed on March 2013.

[iii] Helping
Arthritis Patients Fight Disability, Report by Mehr Manzoor, posted Dec. 4th
2012,  http://www.globalgiving.org/projects/helping-arthritis-patients-fight-disability/updates/,
accessed on March 2013.

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Figure 1
Figure 2
Figure 2
Figure 3
Figure 3

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Organization

Project Leader

Dr. Shabrnum Sarfraz

Chief Operating Officer
Lahore, Punjab Pakistan

Where is this project located?

Map of Helping Arthritis Patients Fight Disability