Samadhan

.MISSION STATEMENT: "To establish an infrastructure of accessible services for persons with intellectual disability living in poverty using as far as possible manpower and resources available within target communities, with active community participation, leading to an inclusive society"
Sep 22, 2014

Early Intervention - changing lives

Anishka at Early Intervention Unit, SAMADHAN
Anishka at Early Intervention Unit, SAMADHAN

“Let me talk to Ma’am, please don’t interrupt” is what little Anishka says when we tried to ask the therapist some queries about her development.  This report is about a child who had spent 5 years of her life since birth in lying position with absolutely no appropriate therapy services accesible. Anishka, a 5-year-old bubbly child diagnosed to have spastic cerebral palsy came to SAMADHAN in 2013. It was during the survey conducted by Sarojini, a mother of a disabled child from the local community who is trained in identification of intellectual disability and counselling and is with SAMADHAN for the past 25 years, happened to meet Pooja Mishra, mother of Anishka, and explained about early intervention services and its benefits and when the family got convinced, they brought the child to SAMADHAN.  She had severe spasticity and had tendo achillies,  inflamed band of tissue that connects the calf muscle in the leg to heel bone due to gait abnormalities. The child was in pain and used to cry a lot and was unable to sit on her own or even propped. Major challenge was her obesity caused by long period of inactivity since birth.

To address this issue, the child was prescribed, KAFO, a long-leg device that spans the knee, the ankle, and the foot in an effort to stabilize the joints and assist the muscles of the leg. This was done free of cost and it reduced the pain considerably. Though because of severe spasticity, the improvement is slow in all extremities, the child has started bridging by herself.

Now with regular interventions, Anishka is able to come upto quadruped position that is crawling position and can maintain it as well.

The mother sits through the therapy sessions and the child is now given special education as well to improve her cognition and fine motor abilities. “I have now a lot of hope and I am sure Anishka will be attending nursery class like other children from next year”, says a confident Pooja and we hope she will.

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Jun 24, 2014

New lease of life for Yash

Yash with weight cuffs - strengthening muscles
Yash with weight cuffs - strengthening muscles

YASH

Two-year old Yash alias Chikku was admitted in early intervention unit of SAMADHAN last year was diagnosed by a premier institute in Delhi as having musclular dystrophy, a condition which leads to Muscular dystrophy (MD) is a group of muscle diseases that weaken the musculoskeletal system and hamper locomotion.

ash’ parents, Mamta and Rajesh were from Rajasthan came to Delhi and started a small daily needs store. Theirs is a joint family and in 2011, the whole household was rejoicing the birth of the first child, cute little Yash. As days passed by, family members were bit concerned about the milestones getting delayed and sought the medical advice from Paediatric unit of the popular government hospital in Delhi. Much to their shock, they were told by the doctors that the child has muscular dystrophy and will not survive beyond six months. The devastated family members were then approached by the case worker at SAMADHAN and that became the turning point for the little Yash and his family.

When Yash came to SAMADHAN, he was unable to get up on his own, could not stand without support. The child was started on occupational therapy programme with interventions like balance board activities, bouncing the ball in sitting position, slow vibration given for full body, exercises focussing W sitting to kneeling, weight bearing, rollator walking.

Now the child is 3 years old and started walking without support, at least three rounds within the early intervention unit at SAMADHAN.  The child still needs verbal prompting to do the activities and hence given psychological support to improve his response to stimuli.Yash’s aunt dedicatedly brings him to SAMADHAN and diligently follows the instructions of the occupational therapist at home as well.  The progress in Yash is very encouraging. “ I do not have words to thank the staff and professionals of SAMADHAN for making my son walk and bringing cheer back to our family” says Mamta, mother of Yash. Yes this will not be possible without those who believe in early intervention and support this project.

A big "Thank You" to all of you for contributing towards the new lease of life to these children. We would love to know about your thoughts on our early intervention programme.

 

Developing fine motor skills
Developing fine motor skills

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Mar 20, 2014

Meethi can walk

Meethi at the time of admission at Samadhan
Meethi at the time of admission at Samadhan

Two-year old Meethi was admitted to SAMADHANs   early intervention unit i2013. Her father, Pankaj is a shopkeeper and mother Rimpy is takes care of household chores. Being uneducated she finds it difficult to get a job while Meethi’s delayed development prevents her from taking on even housemaids jobs. The family came from Punjab to Delhi seeking  job opportunities as well as to find help for Meethi. But, once in Delhi, they realized that getting a job was not easy and life in big metropolitan cities difficult and competitive.  They could not even get any help for their infant daughter until many months later they came to SAMADHAN referred by  Mahila Mangal Charitable Trust in Dakshinpuri, which is a   low socio  economic community and  home to a large population of  migrant workers like Pankaj and Rimpy.

 When Meethi was brought to our center, the Pediatrician diagnosed her as deficient in Vitamin D, resulting in rickets and bow legs. She was therefore unable to sit up and was still flat of her back, needing support to be pulled up to a standing position. This was compounded by a general weakness. Therapy provided covered Neuro developmental technique and a variety of strengthening exercises using specific aids.

 Meethi can now stand independently; push herself up to sit, can  take weight on her knees and has started crawling. She is an inspiration and the prime motivator for hesitant mothers. With consistent therapy at our early intervention unit, Meethi now started taking tiny steps forward with help much to our delight.

Now Meethi started crawling
Now Meethi started crawling
Meethi
Meethi's first steps

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