This project provides tangible assistance to those struggling with seizures. Funds raised through this project will help us to grant financial assistance for seizure-response service dogs, provide life-saving movement monitors and grant wish trips for families to participating in Epilepsy Awareness Day at Disneyland and similar events. Epilepsy Awareness Day at Disneyland includes a two-day expo geared to families who have a loved one diagnosed with epilepsy.
Over 3.4 Million Americans are diagnosed with Epilepsy. One in 26 will be diagnosed with epilepsy in their lifetime-1 in 10 will have a seizure. There are so few answers, an epilepsy diagnosis is a frustrating one. Epilepsy is not just a seizure! It's the lack of control, the worried family, forgetting medication, the crippling anxiety, the depression, the body jerks. It's the medication side effects, the isolation, the embarrassing symptoms. It's the scars and wounds and forgotten memories.
CHF provides assistance throughout the United States. Families and individuals struggling with seizures get very little sleep and are stressed. Nighttime and Daytime monitors are not covered by insurance and most are not able to afford this peace of mind. While there are no guarantees, having a line of defense in the fight to eliminate or minimize SUDEP (Sudden Unexpected Death in Epilepsy) is huge for families. This project will provide tangible assistance in this fight.
Our goal is to eliminate or reduce the number of annual deaths in those fighting an epilepsy diagnosis. We receive messages from people often stating that they believe because their loved one was monitored, they had a fighting chance to assist a loved one during a seizure. It is estimated that we lose 1 in 1000 diagnosed with epilepsy each year in the US (remember 3.4 Million Americans are currently diagnosed) and if seizures are not controlled, that number can be be as high as 1 in 100.