Dear Vera donors,
the months that have passed since this project was launched have been quite busy at our regional program, which supports the terminally ill children and their families all over Russia and which you have helped.
By now, we have 149 families under care instead of the 38 we started with. Some of these families live in cities with more facilities, others in small villages with hardly any medical care available, but all of them need medical, social, legal and phsycological support on regular basis.
Since August 2015, our program coordinators have made 3036 phone calls and written 3125 letters to these families.
The expences we made included:
- purchase and maintenance of air supply medical ventilators for children with inadiquate ventilation or hypoxia;
- buying and delivering other medical equipment for in-home usage;
- enteral and other medical nutrition for children with disorders that lead to inability to consume food in its regular forms;
- purchase and delivery of certain types of medication;
- sending our doctors to some families in need of professional consultations at home;
- providing care supply material essential for giving proper care and unaffordable to most families;
- covering ritual services for some of the families who lost their children.
In November 2015 we were actively involved in support project in the Crimea. There was severe electricity shortage in the region and the childrens' hospitals had no heating. We've launched a campaing to buy and send electrical generators to them. This project also drew attention of local aothorities to multiple prolems in the sphere of palliative care, which were then taken into account and are curretnly being solved.
Finding ways to cultivate palliative care locally may be the most important part of our job, because when in comes to dealing with families in such distress, personal contact is essential. This is why we pay much attention to finding like-minded doctors and coordinators in each region, including them in our work, brigning them together with our ward families and guiding through the engeneering process of hospice care wherever they are.
We hope that the above information has given you a better picture of what we do. Please, do not hesitate to ask us questions if you have any. And we ask you to let other people know about our cause by sharing this project. The more resources this program attains, the more help we will be able to give.
With best regards and deep gratitude,
Vera Hospice Charity Fund