Because many palliative care needs are excluded from state healthcare or social programs in Russia, families with terminally ill children are left with no aid. Yet, it requires significant spendings to support a child with a genetic, neurological or other life-limiting condition. An average Russian family cannot afford to pay for what it takes to provide proper palliative care. Vera Hospice Charity fund has been providing these families with essentials for years. We ask you to join us and help.
While essential care products, medication and equipment for in-bed patients are mostly imported and highly expensive in Russia, terminally ill patients receive very little or no support within current medical system. The burden of providing for a seriously ill child with no support is even heavier on the families from distant regions of the country. With average monthly income of 512$ per citizen, the number would be much lower if we excluded the better-paid Moscow from this estimation.
Yet, essentials like medication, enteral nutrition, consumables for the tracheostomy, diapers, physiotherapy and others put together exceed the average income greatly. And then there is still rent to pay, food to buy and other children to provide for. In most countries, such families receive regular support, which includes all of the above and more - like palliative care nurse assigned to them or the super expensive personal air-support system. In Russia only you can help these families.
Vera Fund currently supports with 169 families from all over Russia, who need financial aid to be able to pay for the essential items. We support families who: - have a child with documented medical history, incurable and in need of palliative care (some genetic conditions, last stage cancer, etc); - are actively involved into the care process and reasonable in their requests; - do not have an income that allows them to cover both the ill child's needs and everyday living expenses.
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