Saving children born without an immune system

by Mexican Foundation for Girls and Boys with Primary Immunodeficiencies
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Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Saving children born without an immune system
Dec 4, 2019

Saving children born without an immune system

ALAS Iniciative
ALAS Iniciative
  • We have actively participated in public meetings with the Mexican Congress about modifying the General Health Law to guarantee a proper access to treatment. Additionally, we have been lobbying with relevant actors and stakeholders.

 

  • We had a meeting with a work team composed of health officials of Subsecretary of Health. The team's goal is to identify and eliminate barriers to access to treatment.  We deliver the list of primary immunodeficiencies and confirmatory tests.

 

  • We created a new alliance in Latin America with 10 patient organizations to empower their advocacy.  Is called Iniciativa ALAS www.iniciativaalas.org.

 

  • We participate as speakers in Forum on rare diseases to strengthen public health policy.

 

  • We continue working on the diffusion of the warning signs of PI.
Diffusion of IP warning signs
Diffusion of IP warning signs
Rare diseases forum
Rare diseases forum
Work meeting in the Ministry of Health
Work meeting in the Ministry of Health

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Organization Information

Mexican Foundation for Girls and Boys with Primary Immunodeficiencies

Location: HUIXQUILUCAN - Mexico
Website:
Facebook: Facebook Page
Twitter: @FumeniAC
Project Leader:
Mayela Garcia
HUIXQUILUCAN, ESTADO DE MEXICO Mexico
$5,284 raised of $5,000 goal
 
58 donations
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