Health
 China
Project #6138

Support HIV/AIDS Treatment for Kids in China

by Pediatric AIDS Treatment Support
Vetted
LingLing
LingLing

Dear Global Giving Friends:

Recently a PATS volunteer- “Yi”-traveled to Fuyang, China to visit PATS children. Yi spent a lot of time with each child, took many pictures, did art lessons with them, visited many of their families, and listened to their stories. We are excited to share Yi’s update with you about one PATS child – Lingling:

“Lingling works at a local hospital as an intern nurse now, and she will return to school to finish her degree in nursing next year. When I asked her what is her take-away from this experience, she said that now she can understand how hard it is to work in the medical field. Before, when she came to hospital as a patient, she always complained about tedious paperwork and long waiting times. However, when she is on the other side now, she began to comprehend why these procedures and rules were set and why it is important for patients to follow them.

She is 18 years-old now, an independent and polite young woman who is grateful for the help she has received over the past 8 years through PATS. I didn’t see pity, senseless or other negative feelings she has against her health condition. On the contrary, she appreciates her stable and happy life and tries her best to fight for a better life in the future. Unlike many kids her age who tried to run away from Fuyang and have nothing to do with their AIDS identity, she talks about her experience with PATS proudly and fondly. She said if it wasn’t for all the support and activities provided by PATS as well as the interesting people she met and befriended, she wouldn’t have had the confidence to work in a hospital given her HIV-positive status. Yet now, receiving help from doctors and nurses worldwide, she wants to be one of them too. She said that there is a doctor she admires very much who encouraged her to help others through the medical field, and this inspired her to set out on her medical career:

 “It’s hard to work as a nurse at a young age like mine. There are patients who distrust me based on my limited experience. Yet the only thing I can do to fix that is trying to achieve perfection.”

 Lingling is very determined and goal-oriented. She mentioned that once one of her patients was very scared of a needle, but she managed to comfort him by sharing her personal stories and expressing her understanding to help him get through the blood test. Her positive attitude is very impressive as is her dedication to helping people through the medial field. She is very proud of what she has achieved and we are very proud of her! Thank you to all of our supporters on Global Giving for supporting youth such as LingLing to have the confidence to achieve their dreams."

Zhen + Yue
Zhen + Yue

PATS children always look forward to the International Children’s Day on June 1st of each year. On that day, there is no school, there is lots of playtime, and kids often receive gifts from their parents. For children living in poverty or without parents it can be a painful reminder of what they do not have.

To fill this void, for the past 10 years, PATS local partner Fuyang AIDS Orphan Salvation Association (AOS) has been organizing events to celebrate this day with children orphaned by AIDS. This year is no exception. PATS and AOS prepared favorite snacks and food and the staff also prepared special gifts for each one of the children. It has been a tradition for PATS/AOS children who go to schools all over the city to come together on this day, and meet friends they may not have seen for a while during the spring semester. When they come together it is like coming home to family: the girls like to exchange storybooks and share songs they like, while boys immediately jump into Ping Pong a competition with each other.

It is a day of celebration, fun, friends, and is worry-free. PATS is grateful to supporters like you that allow these kids to enjoy the simple pleasures of youth throughout the year just like their peers. Please enjoy the attached photos of some of our kids on International Children's Day! Thank you for your support!

Mengting + Xueyan
Mengting + Xueyan
Yue + Ziting + Zhen
Yue + Ziting + Zhen
Zhen Zhen, front and center with glasses
Zhen Zhen, front and center with glasses

Dear Global Giving Friends,

PATS has been fortunate to have a steady stream of dedicated volunteers willing to travel to Anhui, China to work with the children in the program. In December 2015 and January 2016 Yi Wang, a Hampshire College student, traveled to Fuyang, China to work with PATS children. Yi spent a lot of time with each child, took many pictures, taught them arts and crafts, celebrated the New Year, visited with many of their families, and listened to stories about their lives. Yi has written the update below about one of the children she met, Zhenzhen, who is 10 years old, and in 5th grade. We profiled ZhenZhen in a previous update almost a year ago and are excited to let you know how she is doing today. As you may remember, ZhenZhen loves to dance and that is what she most looks forward to when she comes to PATS activities during the weekend.

From Yi Wang, PATS Volunteer

ZhenZhen: A love of dancing and a compassionate heart

“Zhenzhen is a sweet 10-year-old girl. She listened to me very carefully whenever I spoke, and she made me feel respected. Probably due to her good manners, many volunteers speak very highly of her, from her easygoing personality to her strong desire to learn. It is well known that Zhenzhen is a talented dancer. She is such a natural when it comes to dance and is so good at improvising and keeping rhythm. In her daily life, she is often introverted and quiet and acts as a considerate listener, sitting for long periods of time very attentive and patient. Yet on the stage, dancing is her trigger to become a completely different person. Her eyes shine whenever she speaks of it, and her hands tap on her lap when she hears familiar music. I have no doubt in her to make the whole world into her ballroom in the future.

Dancing is something that can transport ZhenZhen to a place where she can be carefree and not worry about the challenges she faces on a daily basis as a result of her HIV status. Someone told a parent of one of her classmates about Zhenzhen’s HIV status last week and word quickly got out that she was HIV-positive. Some boys in her class laughed at her and called her names. Yet she seems to be able to deal with this matter in a very mature way despite her young age. She explained that she is very lucky to have Yue and Zihao (two other PATS kids who live with her in the House of Love) in the same class with her, so they can support each other in the face of teasing and ever present stigma. She is very strong and brave.

 

Yi recalls:

 

“When I heard of this teasing I felt very sorry and asked her how I can help her. Surprisingly, she gave me a big smile and comforted me instead. You can imagine how impressed I am by this little girl. The strength and spirit she has in her body to dance is matched by the strength and spirit in her heart to show compassion to others, even those who are unkind to her. The compassion she showed for other people is what I needed to learn from her. For me, knowing Zhenzhen is such a rewarding experience which helps me with my own self-discovery. Zhenzhen is a great teacher of mine, and I’m so lucky to know her.”

ZhenZhen with new headbands brought by Wang Yi
ZhenZhen with new headbands brought by Wang Yi
When Kay and Nan Nan first met in 11/2013
When Kay and Nan Nan first met in 11/2013

When traveling to Fuyang, Anhui, China for work 12 years ago, Professor Kay Johnson- PATS co-founder- met a 12 year old girl named Nan Nan, who was HIV-positive and extremely sick. It was disheartening to learn that there were no medications for pediatric HIV/AIDS in China at that time (when they were available elsewhere in the world) and there was nothing the local CDC in China could do to help her. Like countless HIV-positive children before her in China, she would die.  ‘You don’t just walk away from a very sick child’ Kay reflects.

Trying to find help to treat Nan Nan, Kay rolled up her sleeves and extensively reached out to her network of doctors, friends, colleagues, and friends’ friends. One day, a colleague introduced Kay to AID for AIDS (AFA, https://aidforaids.org/), a nonprofit dedicated to improving the lives of people affected by HIV, headquartered in New York. Kay got an email from them saying they could help with pediatric medications for Nan Nan: “It’s not easy but we will try” she remembers them saying.   AFA has high requirements before donating medications and they needed a doctor’s prescription and lab tests before they could send them out.  It was a challenge to meet these requirements, but Kay was committed to giving Nan Nan a chance to survive.

The first hurdle was that there was no pediatric AIDS doctor in Fuyang or any city close by who could write the required prescription. There was one doctor in Beijing who had been trained by Harvard doctors. On New Year’s Eve of 2004, when people traditionally gathered with families to celebrate the New Year over meals and toasts, the Director of PATS’ local partner AOS took Nan Nan on a quiet empty train and went to Beijing. Nan Nan was 13 years old then, but due to sickness, malnutrition and lack of care, she was so small she looked like a 7 or 8 year old. The doctor confirmed that Nan Nan had full blown AIDS and provided the prescription to AFA. Very soon AFA sent out the pediatric medication to Nan Nan.  Kay recalls: “without intervention, she wouldn’t have survived that winter.”  Not only did Nan Nan survive but she thrived. Thanks to life saving medication and the supports provided by the PATS program, her CD4 count increased until the HIV virus was undetectable and she was able to attend school, study painting and eventually marry. Today she is the proud mother of a toddler who is HIV-free!

Though pediatric ARV medication is now available in China for HIV-positive children, changing the prescription could jeopardize the health of Nan Nan, whose body has responded so well to her imported drug regimen.  Consequently Aid for AIDS has continued to faithfully send regular packages with the medication she needs to maintain control of her illness. PATS is extremely grateful to partners such as AID for AIDS who allow us to provide the medication needed by Nan Nan and others to not just survive but thrive.

Kay and her collegues in Fuyang
Kay and her collegues in Fuyang
Kay visiting families
Kay visiting families
Kay
Kay
Nan Nan is now a mother of a HIV-Free baby
Nan Nan is now a mother of a HIV-Free baby
Yao
Yao

For the last decade, PATS local partner AOS has brought many of the PATS children to Beijing each summer for "camp". It is a great opportunity for the children to see something outside of their small rural town and see important historical and cultural sites. The children look forward to this trip all year and it is the only opportunity most have to travel anywhere.

Many local university students volunteering with the Red Cross signed up to help with the summer camp and were on hand to engage with the children, serving as tour guides. The kids called them “GeGe” and “Jiejie” (Elder Brothers and Sisters) and had a very fun week in their company.

They visited the Beijing Zoo where they said hi to the pandas and the Science and Technology museum where they participated in some very cool hands-on scientific exhibits.  They also took some art classes and toured many scenic and historical places in Beijing where they loved getting photos to bring back to show friends and family. 

The highlight of the trip was meeting Yao Ming! When the kids first met Yao in person, they were so surprised that 'He was so tall!' Yao played basketball with the kids, and put some kids up on his shoulders so they could shoot baskets. They also met with Peng Liyuan (China’s 1st lady)- which was an incredible honor.

As you can imagine the kids had a blast on the trip and for a short time could focus on the fun of childhood rather than on the heavy and often difficult day-to-day existence they live back home. Thank you for your support that allows us to provide our kids not only with critical medical and educational support, but also from time-to-time with a chance to experience childhood.

Below are some group pictures. We hope you enjoy them!

 

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Organization Information

Pediatric AIDS Treatment Support

Location: Cambridge, MA - USA
Website: http:/​/​www.patskids.org
Project Leader:
Jialing Wang
Marketing & Social Media Coordinator
Cambridge, MA United States

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