Louise and her family
Firstly a big thank you to everyone who has made a donation towards the MS Trust's helpline for people with MS in the UK. We are very grateful for your support.
The last three months (December 2010 to February 2011 inclusive) have been particularly busy for our Information Team who answer the calls, emails and inquiries we receive. We suspect the increase is partly to do with the Government's proposed changes to the NHS which is a real worry for people with MS as MS services are likely to be affected. Our support line will therefore be even more vital as a first point of call for those who are stressed and do not know what to do next.
We have helped the following number of people in the last three months by answering their questions and/or providing them with information about MS related issues:
February 2011 = 933, January 2011 = 685, December 2010 = 267 (Total of 1,885 - the total for the previous three months was 1,431)
The majority of the calls we receive are from people with MS; 1,414 over the last three months. We received 266 calls from MS health professionals including nurses and therapists, and 118 from family members who are affected by MS.
The most common inquiries were about core stability and MS nurses. Our most requested information book was 'Primary progressive MS exposed', and most popular factsheet was 'cognition' (memory and thinking).
Louise, aged 46, is married with two children and was diagnosed with MS in 2003.
Initially Louise didn’t want to know about MS. Then she started researching and found out too much – with MS, it is like asking “How long is a piece of string?” – it is just too big to comprehend. But Louise feels she has now reached a point at which she can’t deny where she is, so she now wants as much information as she can get. The information and support she gets from the MS Trust helps her to make her own choices about the management and treatment of her MS. Louise says "I really appreciate the MS Trust's helpline and information service and know that it is a trusted source of information. It's my first point of call!"