Apply to Join
 Health  Mexico Project #42547

Giving ALAS to children born with immunodeficiency

by Mexican Foundation for Girls and Boys with Primary Immunodeficiencies
Play Video
Giving ALAS to children born with immunodeficiency
Giving ALAS to children born with immunodeficiency
Giving ALAS to children born with immunodeficiency
Llave para el Diagnostico Inmunodeficiencias
Llave para el Diagnostico Inmunodeficiencias

Se han realizado las siguientes actividades:

1. Difusión 

- Campaña de difusión de "Las 10 Señales de Alerta de las Inmunodeficiencias Primarias son la llave para Diagnóstico: https://iniciativaalas.org/senales-de-alerta/  Se elaboró cartel con participación de las 11 asociaciones que integran Iniciativa ALAS. y se envío a cada organización en los 9 países integranes.

- Se mantien la difusión a través de las redes sociales de ALAS en facebook y twitter

- Se han realizado postales con información sobre Covid 19 y manejo de las Inmunodeficiencias Primarias.

- Se participó en Declaración Conjunta internacional sobre COVID 19 https://iniciativaalas.org/declaracion-conjunta-sobre-coronavirus-sars-cov-2-covid-19/ que fue difundida por diversos medios y asociaciones.

 

2. Incidencia Política

- Se inició campaña #TuVOZcuenta que incluye:

a) Realización de 46 entrevistas a familias y pacientes con algún tipo de inmunodeficiencia primaria para elaboración de sus historias sobre inmunodeficiencias primarias

b) Desarrollo de plataforma digital con las historias https://iniciativaalas.org/tu-voz-cuenta/

c) Se encuentra en elaboración documento de propuesta de política pública con base en las historias.

 

Se invitó a la Asociación Argentina para las Inmunodeficiencias Primarias a ser parte de Iniciativa ALAS.                            Actualmente participan 11 asociaciones de 9 países de Latinoamérica. 

 

The following activities have been carried out:

1. Dissemination

- Dissemination campaign of "The 10 Warning Signs of Primary Immunodeficiencies are the key to Diagnosis: https://iniciativaalas.org/senales-de-alerta/    A poster was prepared with the participation of the 11 associations that make up the ALAS Initiative And it is sent to each organization in the 9 member countries.

 - Keep broadcasting through the ALAS social networks on facebook and twitter

 - Postcards with information on Covid 19 and management of Primary Immunodeficiencies have been made.

 - Participated in the International Joint Declaration on COVID 19 https://iniciativaalas.org/declaracion-conjunta-sobre-coronavirus-sars-cov-2-covid-19/ which was disseminated by various media and associations.

 

2. Advocacy 

- #TuVOZcuenta campaign was started, which includes: 

a) Carrying out 46 interviews with families and patients with some type of primary immunodeficiency to prepare their stories about primary immunodeficiencies 

b) Development of digital platform with stories https://iniciativaalas.org/tu-voz-cuenta/

c) A public policy proposal document is being prepared based on the stories.   

 

Argentine Association for Primary Immunodeficiencies was invited to be part of the ALAS Initiative.                                          Currently 11 associations from 9 Latin American countries participate.

Folleto Iniciativa ALAS-Fundacion Jeffrey Modell
Folleto Iniciativa ALAS-Fundacion Jeffrey Modell
Plataforma #TuVOZcuenta
Plataforma #TuVOZcuenta
Documento de Politica Publica (En elaboracion)
Documento de Politica Publica (En elaboracion)
Avance elaboracion documento de politica publica
Avance elaboracion documento de politica publica
Share on Twitter Share on Facebook
Thank you very much for your support, we are happy to share the first ALAS Initiative report.
1. We held the first regional meeting with the participation of 10 Latin American associations of eight countries (México, Colombia, Ecuador, Perú, Chile, Brasil, El Salvador, Nicaragua, to raise awareness about the situations petients  experience due to lack of access to timely diagnosis and treatment of gammaglobulin
2. We established an alliance with Latin American Society for Immunodeficiencies - LASID for the advice of training workshop.

3. We develop educational materials for digital platforms (facebbok, twitter).

4. Screening of the movie "Do Something, the Jeffrey Modell Story in Nicaragua, Colombia, México and Ecuador.

5. Campaign for access to gammaglobulin treatment in Brasil, Nicaragua, Ecuador, El Salvador, y México.

Links:

Share on Twitter Share on Facebook
 

About Project Reports

Project Reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.

If you donate to this project or have donated to this project, you will get an e-mail when this project posts a report. You can also subscribe for reports via e-mail without donating.

Get Reports via Email

We'll only email you new reports and updates about this project.

Organization Information

Mexican Foundation for Girls and Boys with Primary Immunodeficiencies

Location: HUIXQUILUCAN - Mexico
Website:
Facebook: Facebook Page
Twitter: @FumeniAC
Project Leader:
Mayela Garcia
HUIXQUILUCAN, ESTADO DE MEXICO Mexico
$322 raised of $50,000 goal
 
15 donations
$49,678 to go
Donate Now
lock
Donating through GlobalGiving is safe, secure, and easy with many payment options to choose from. View other ways to donate

Mexican Foundation for Girls and Boys with Primary Immunodeficiencies has earned this recognition on GlobalGiving:
Add Project to Favorites

Help raise money!

Support this important cause by creating a personalized fundraising page.

Start a Fundraiser

Learn more about GlobalGiving

Teenage Science Students
Vetting +
Due Diligence

Snorkeler
Our
Impact

Woman Holding a Gift Card
Give
Gift Cards

Young Girl with a Bicycle
GlobalGiving
Guarantee

Sign up for the GlobalGiving Newsletter

WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.