A social worker in Haiti using CEMs with a patient
Global Oncology's (GO) cancer education materials (CEMs) made it to Haiti this summer with Harvard medical student and GO volunteer, Laurie Schleimer. Almost 200 booklets were distributed in the first month, with more on the way to meet popular demand.
"It’s a good booklet," said one patient. "It's going to help people to know how to treat the disease and also how to live a better life with it. There are some patients that worry themselves a lot when they have side effects [from chemo]. Even if the patient can’t read, there are other people who can read to them, and the family will have this information too."
Research interviews and focus groups with patients in Haiti, conducted in collaboration between Ms. Schleimer with providers at the Partners in Health hospital in Mirebalais, Haiti, have provided compelling feedback that will inform the next round of revisions.
Thanks to the wide support from our growing GO community, development of CEMs for Guatemala is also taking shape, based at our GO hub in Palo Alto. The current CEMs – designed to support adult chemotherapy – are in the process of being translated into Spanish. In addition, GO volunteers met with the Bass Center Family Advisory Council at Stanford University's Lucile Packard Children's Hospital to receive feedback from parents of children with cancer to help us understand how we can improve the education potential of the materials to reach the youngest patient cohort.
Many thanks to all of you for contributing to this work, both financially as well as with your advocacy, your time or your expertise. We look forward to sharing GO's progress with you in the coming months.
CEMs enrich interaction w/patients in a busy ward