Health  Nigeria Project #20554

Improving Cancer Outcomes with Patient Education

by Global Oncology (GO) Vetted since 2015
GO
GO's Cancer Education Materials now used in Uganda

GO’s Cancer Education Materials project is starting out strong in 2018. Two new translations for chemo and radiation therapies are now complete: Setswana (Botswana) and Luganda (Uganda). The Setswana booklet has been added to the inventory on our project page, and Luganda is soon to follow. 

Our goal this year is to expand this work to ten new countries and fifteen new languages. We are well on our way with engagements also in Nigeria and the United States. In addition, GO is launching an effort to quantify usage and benefits of the materials – metrics that will fuel this project’s growth.

If you have interest in adapting the materials for your facility or you want to participate in this work, please reach out to Danna@globalonc.org. Thank you for your support!

In recent weeks, the Global Oncology (GO) team completed an adaptation of our Cancer Education Materials to include new information about radiation therapy. We continue working with teams in Botswana, and new partners in Uganda and Nigeria, to translate these cancer education booklets into local languages for distribution to patients and their families.

GO thanks BOTSOGO for their expertise in the field and on the ground, our GlobalGiving donors, and the Varian Foundation for making this new product possible. Visit GO’s project page to download these and our original materials for chemotherapy: http://globalonc.org/Projects/patient-education-materials/

As we approach 2018, GO is talking about future adaptations for palliative care and pediatric oncology. Please reach out to danna@globalonc.org if you are interested in contributing to or using GO’s Cancer Education Materials and would like more information.

Please consider making a donation to this project on November 28th – #GivingTuesday – one of the biggest charitable giving days of the year. Thank You!

Links:

Radiotherapy plays a key role in the treatment of cancer alongside surgery and chemotherapy.  There is a shortage of radiotherapy services in low- and middle-income countries (LMICs), but efforts are underway to increase access in these regions to this curative and pain relieving treatment.

This summer, Global Oncology (GO) is working alongside BOTSOGO (Botswana Oncology Global Outreach) to further develop GO’s original cancer education materials (CEM) – targeted towards chemotherapy patients – to include culturally accurate imagery and information about radiation therapy.  BOTSOGO will begin using the new materials, upon their completion, with partners on the ground in Botswana.  GO aims to unveil the materials in the Fall of 2017 on our newly-launched CEM webpage.  Please email danna@globalonc.org if you are interested in receiving notification.

Expanding GO's cancer education materials to include new treatment modalities continues to be a goal of this multi-year program.  We are seeking additional partners to work with us on translation of existing materials into new languages and develop content for new materials.

GO is thankful to our donors and supporters who continue to make these important developments possible.

Best wishes for a happy and healthy summer.

The GO CEM Team

In February, Varian Medical Systems awarded a grant to GO to support the development of radiation therapy education materials for cancer patients with low literacy levels.  The GO team has spent recent months establishing the foundational knowledge for this work.  Now, with a solid funding base – raised here on GlobalGiving plus the grant from Varian – GO is poised and excited to accelerate progress.

Our research shows that the vast majority of patient education materials for radiation therapy are available in English and written in dense text, well above a sixth grade reading level – generally too advanced to be fully comprehended by patients and their caregivers.

Several cancer centers and nonprofit organizations do show their patients videos explaining the concept of radiation therapy and what patients might experience during radiation treatment.

Overall, however, the literature points to a lack of materials designed for populations with low literacy levels, both in the United Sates and globally.  GO aims to address this need for "RadOnc" education materials, working with our partners – The MEME and a team in Botswana – by developing culturally appropriate materials based on local information and treatment needs.

GO thanks the GlobalGiving community for making this progress possible.  Please contact Danna@globalonc.org if you have a need for or interest in the development and/or use of GO's patient education materials.

First, we express our deepest gratitude to GO's committed supporters for helping us raise over $20,000 towards our Cancer Education Materials project since the start of this campaign in June 2015. Thank you for making this past Giving Tuesday a great success, generously giving over $7,500 towards further development of this work. Included in this sum is a contribution of $1,360 from the Bill & Melinda Gates Foundation in match dollars. We are grateful to those of you who timed your donations perfectly for the matches.

The Cancer Education Materials team continues to share our work and support healthcare groups around the world, refining our materials for particular needs. Currently, the booklets are being used and evaluated with patient populations in Haiti, Rwanda and Botswana. Thanks to your support, we can work with these groups, and others like them, to tailor artwork and content for optimal results with each population.

This fall, GO initiated conversations in Boston to start using the materials with Haitian Creole- and Spanish-speaking patients. This marks GO’s first domestic application of the Cancer Education Materials project. Funds raised on Global Giving will be used, in part, to support design and execution of studies on how the materials help local populations. The goal is to validate the materials for domestic use and then establish partnerships for widespread distribution.

Global Giving has enabled GO to pursue and develop the relationships above and many more. To complement the funds we have raised, GO has also submitted a proposal to develop the presently chemotherapy-focused materials for use in radiotherapy for cancer treatment.

As always, if you have a need for low-literacy education materials designed for patient, family and caregiver use, or you have a means of production and/or distribution, please don’t hesitate to contact us at info@globalonc.org.

Best wishes for happy and healthy holidays. We look forward to sharing more news in 2017.

With gratitude,

GO and the Cancer Education Materials Team

 

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Organization Information

Global Oncology (GO)

Location: Brookline, MA - USA
Website: http:/​/​www.globalonc.org
Project Leader:
Danna Remen
Brookline, MA United States
$19,571 raised of $50,000 goal
 
124 donations
$30,429 to go
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