Developing countries bear 80% of the world's cancer burden and receive just 5% of global spending on the disease-a gap in care as well as education. To address this, Global Oncology (GO) developed the 1st low-literacy cancer education materials for Sub-Saharan Africa and Haiti explaining what patients can expect throughout the treatment process. This knowledge can encourage adherence to treatment and reduce suffering. Help us put GO booklets in the hands of cancer patients in need, worldwide.
Imagine receiving chemotherapy and not being aware of the side effects. What would you think when the mouth sores, nausea, muscle weakness and hair loss began? Perhaps that it was the wrong medicine, or worse. This was the situation at our partner site in Malawi, where the clinicians have limited, if any, time to sit and talk to patients about the treatment process. And because patient literacy is low, traditional educational materials don't help. A result is patients abandoning their treatment.
GO developed patient education booklets that use simple text and culturally appropriate imagery-body language and facial expression-to visually represent complex symptoms. We will provide these and training to partners in Africa, Haiti and Guatemala, as well as translate materials to more languages, refine content & assess impact. This work can save lives by improving patient knowledge of the cancer treatment process, reducing stigma & supporting efforts to provide medical & psychosocial care.
The ultimate goal of the project is to close the gaps in cancer patient education worldwide, addressing the wide differences in patient literacy levels and promoting treatment adherence by helping patients understand their disease. The funds we raise here will bring our work to partners in Rwanda, Haiti, and Guatemala in 2015. In 2016, GO will expand our reach to India, as well as add sites in Africa and South America.
This project has provided additional documentation in a PDF file (projdoc.pdf).
GO Patient Education Materials - Stanford Article
GO's One-Stop Global Cancer Project Map (GCPM)
GO Press Release for Collaboration with NCI
Article Featuring GO's GCPM & Co-founder Ami Bhatt