Imagine receiving chemotherapy and not being aware of the side effects. What would you think when the mouth sores, nausea, muscle weakness and hair loss began? Perhaps that it was the wrong medicine, or worse. This was the situation at our partner site in Malawi, where the clinicians have limited, if any, time to sit and talk to patients about the treatment process. And because patient literacy is low, traditional educational materials don't help. A result is patients abandoning their treatment.
GO developed patient education booklets that use simple text & culturally appropriate imagery - body language & facial expression - to visually represent complex symptoms. GO makes the booklets available where patients & families aren't adequately counseled on the basic facts of a cancer diagnosis & the importance of adhering to treatment. This work can save lives by improving patient knowledge of the cancer treatment process, reducing stigma, & supporting efforts to provide psychosocial care.
The goal of this work is to close the gaps in cancer patient education by addressing disparities in patient literacy & promoting treatment adherence by helping patients understand their disease. GO's booklets exist in 6 languages: English, Spanish, Creole, Chichewa, Kinyarwanda & Setswana. While current materials focus on the side-effects of chemotherapy, GO is planning to adapt for use in radiation therapy & pediatric oncology. Contact GO if you seek other languages or particular modalities.
This project has provided additional documentation in a PDF file (projdoc.pdf).
GO Patient Education Materials - Stanford Article
GO's One-Stop Global Cancer Project Map (GCPM)
Article Featuring GO's GCPM & Co-founder Ami Bhatt