In recent months, palliative care has quickly become the topic of discussion for many in the medical professions in Indonesia. As the first team of trained pediatric palliative care nurses in Indonesia, Rachel House's nurses receive many invitations to speak at medical conferences - to share their experiences in building the service and their knowledge in running a home-based palliative service for the marginalized communities in the sprawling urban areas of Jakarta.
Last month at a forum attended by 200 medical professionals from public and private hospitals and teaching universities in West Java, Rachel House was invited to talk about our experience in providing home-based palliative care to patients with cancer and HIV. There were numerous cases shared by medical practitioners to illustrate the dire need for home-based medical care in Indonesia; presently, patients are being sent home with little or no preparation, both for the patients and for the caregivers - causing much suffering for all. Many bemoaned the dearth of trained home care nurses.
At Rachel House, we celebrate the courage and the commitment of our nurses who brave the horrific conditions to reach the children in need.
As awareness of palliative care increases in Indonesia, our team begins to engage many more from the public hospitals in the hope of sharing the knowledge to the wider community so as to allow us all to work towards adding quality to the children's remaining days.
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