MyMusicRx Delivers Music Medicine

by Children's Cancer Association
Vetted

Music has always been a big part of Justus’ life. As a toddler, he loved belting out “Twinkle, Twinkle, Little Star” on his toy microphone; by age three, he was already starting to sing harmonies. “He was quite the little ham,” said his dad Jason.

When Justus turned four, he was diagnosed with encephalitis, a dangerous inflammation of the brain that damaged his ability to walk, talk, and eat. As the family adjusted to this new reality, music was the thread that connected them to life “before” and “after.” “It was hard to get Justus to focus back then,” explained his dad. “But when an instrument was played, it immediately got his attention.”

Though he faces a lifetime of tough therapy, Justus impresses everyone around him with his fearless spirit and can-do attitude. “He’s super-driven and works so hard,” said Phil, a MyMusicRx Specialist. “He loves to vocalize and sing along to whatever we’re doing.”

Of course, as Justus grows, his musical tastes are evolving too. “Twinkle, Twinkle” has been replaced with Taylor Swift, and Bruno Mars is a new favorite. “He loves amped-up party music,” said his dad. “That always gets a big smile.”

Justus was recently named a CCA Hero and was honored at ceremony in May alongside his family and friends.

CCA continues to deliver MyMusicRx to thousands of seriously ill kids like Justus across the U.S. and Canada, serving 5,300 children in the past year. Trained MyMusicRx Specialists engage kids in bedside sing-a-longs, offer instrument lending for self-expression, and provide access to CCA’s digital music medicine program, MyMusicRx.org. Scientifically proven to help pediatric patients manage pain, boost immunity, and decrease emotional stress, CCA uses music medicine to heal.

With your generous donation, we can grow this program and spread the healing joy of music to more children, teens, and families.

Links:

Emma loves music and playing the ukulele, but her interest grew even stronger once she was diagnosed with acute myeloid leukemia (AML), when the MyMusicRx program entered her life.

CCA’s MyMusicRx Specialists visited Emma regularly to sing and play music with her, and even recorded a music video for “Bedstock,” a unique online music festival that helps raise funding and awareness for the program. But even on days when Emma didn’t feel well enough to sing, she said MyMusicRx was just what she needed to lift her spirits.

“When I felt my worst, I still loved someone coming in and playing a song. It lifted me up when I was not doing so well.”

Emma’s mom agreed, saying that MyMusicRx gave Emma a much-needed distraction from her illness. “It’s just a great diversion, because it got her mind on something she’d be doing every day: listening to music and making music, and so it normalizes being in the hospital.”

As Emma continues to recover, she is reveling in simple pleasures like fresh air, good friends, and singing. She’s been taking online classes so she can graduate with her class and has big plans for life after high school. “I want to go to college and have a job and a family and go where life takes me,” she says. “Most of all, I want to be happy.”

CCA continues to deliver MyMusicRx to thousands of seriously ill kids like Matt across the U.S. and Canada, serving 5,300 children in the past year. Trained MyMusicRx Specialists engage kids in bedside sing-a-longs, offer instrument lending for self-expression, and provide access to CCA’s digital music medicine program, MyMusicRx.org. Scientifically proven to help pediatric patients manage pain, boost immunity, and decrease emotional stress, CCA uses music medicine to heal.

With your generous donation, we can grow this program and spread the healing joy of music to more children, teens, and families.

Links:

Keep an ear out for Matt. This talented musician is about to record his first album, “Where It All Started,” with his group Fearless in the Fight. It’s a fitting description for Matt’s approach to cystic fibrosis, something he’s lived with since he was just four months old.

Music is a big part of the Pozsgai family; his brother, Adam, plays drums in Matt’s band, and his sister, McKenna, is a talented vocalist. The three siblings love jamming with the MyMusicRx team during Matt’s frequent hospital admissions. Matt recently gave back to CCA by participating in our Bedstock Online Music Festival, where top artists perform from their beds in a show of support for sick kids across the nation.

When he’s not making music, this outgoing guy loves camping, playing basketball, and hanging out with his buddies. He’s also a talented public speaker, and frequently gives lectures to educate others about his disease. Although his treatments have been a full-time job lately, he’s looking forward getting into the recording studio so he can continue to share his remarkable voice with the world.

CCA continues to deliver MyMusicRx to thousands of seriously ill kids like Matt across the U.S. and Canada, serving 4,400 children in the past year. Trained MyMusicRx Specialists engage kids in bedside sing-a-longs, offer instrument lending for self-expression, and provide access to CCA’s digital music medicine program, MyMusicRx.org. Scientifically proven to help pediatric patients manage pain, boost immunity, and decrease emotional stress, CCA uses music medicine to heal.

With your generous donation, we can grow this program and spread the healing joy of music to more children, teens, and families.

Links:

McKenzie and Jess Singing Together
McKenzie and Jess Singing Together

McKenzie is a little girl with a lot of personality who recently finished a six month hospital stay at Randall Children’s Hospital for Enterovirus D68, a serious respiratory illness. Throughout her long stay, McKenzie expressed her love of music. One of CCA’s MyMusicRx Specialists, Jess, noticed her enthusiasm and worked with her for over two months using both digital and instrumental music to peak her interest. McKenzie always put on a bright smile when Jess entered the room which made creating music together on the MyMusicRx iPad apps very special for both of them. When McKenzie also showed interest in singing songs together, Jess would bring in the guitar to accompany her expressive vocals, which made her feel like the rock star she really is.

CCA continues to deliver MyMusicRx to thousands of seriously ill kids like Chris across the U.S. and Canada, serving 4,000 children in the past year. Trained MyMusicRx Specialists engage kids in bedside sing-a-longs, offer instrument lending for self-expression, and provide access to CCA’s digital music medicine program, MyMusicRx.org. Scientifically proven to help pediatric patients manage pain, boost immunity, and decrease emotional stress, CCA uses music medicine to heal.

With your generous donation, we can grow this program and spread the healing joy of music to more children, teens, and families.

Links:

Chris is an awesome teen who was recently treated in the Children’s Emergency Department at Randall Children’s Hospital at Legacy Emanuel. Unfortunately, Chris was in need of a procedure that required an IV, and being no fan of needles, the IV was making him nervous and anxious. That’s when a nurse went looking for one of CCA’s MyMusicRx in-hospital musicians. After coming into the hospital room and introducing himself, the MyMusicRx Specialist started playing some songs. The music made Chris feel better, so much so that he asked the MyMusicRx Specialist to stay and continue to play during the procedure and help calm his nerves.

CCA continues to deliver MyMusicRx to thousands of seriously ill kids like Chris across the U.S. and Canada, serving 4,000 children in the past year. Trained MyMusicRx Specialists engage kids in bedside sing-a-longs, offer instrument lending for self-expression, and provide access to CCA’s digital music medicine program, MyMusicRx.org. Scientifically proven to help pediatric patients manage pain, boost immunity, and decrease emotional stress, CCA uses music medicine to heal.

With your generous donation, we can grow this program and spread the healing joy of music to more children, teens, and families.

Links:

 

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Organization Information

Children's Cancer Association

Location: Portland, Oregon - USA
Website: http:/​/​www.joyrx.org/​
Project Leader:
Children's Cancer Association
Portland, OR United States

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