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 Children  Russia Project #18078

AIR SUPPLY VENTILATORS FOR KIDS WHO CANNOT BREATHE

by VERA Hospice Charity Fund
AIR SUPPLY VENTILATORS FOR KIDS WHO CANNOT BREATHE
AIR SUPPLY VENTILATORS FOR KIDS WHO CANNOT BREATHE
AIR SUPPLY VENTILATORS FOR KIDS WHO CANNOT BREATHE
AIR SUPPLY VENTILATORS FOR KIDS WHO CANNOT BREATHE
AIR SUPPLY VENTILATORS FOR KIDS WHO CANNOT BREATHE
AIR SUPPLY VENTILATORS FOR KIDS WHO CANNOT BREATHE
AIR SUPPLY VENTILATORS FOR KIDS WHO CANNOT BREATHE
AIR SUPPLY VENTILATORS FOR KIDS WHO CANNOT BREATHE
AIR SUPPLY VENTILATORS FOR KIDS WHO CANNOT BREATHE

Dear donors, 

it's been almost five months since we launched the fundrasing project for children who are unable to breathe independently. Now that the project is funded, we want to tell you about the results and about ways to stay with us, helping hundreds of terminally ill children and adults in Russia receive proper palliative care. These last months have been especially challenging for NCO fundraising since Russian economy has started changing. We greatly appreciate your input. 

We are currently running another crowdfunding project - raising funds for children who cannot take regular nutrition and are therefore in constant need of special form of it in order to keep up their lives: http://www.globalgiving.org/projects/enteral-nutrition-for-tube-dependant-children/

Alternative ways to support our cause, including recurring donations, can be found here: http://www.hospicefund.ru/about-us/

Over the months this current project was being run, we have bought air supply machines for children all over Russia and provided supplies for dozens of others, who received their machines earlier. One of the children, whom you helped to return home, was Ilya. Ilya is 15 now, and from our experience, this may be the most difficult age to deal with a life limiting condition. As part of this report, we are publishing Ilya's story and a thank you note from his family.

         Diagnosed with Duchenne muscular distrophy, Ilya has not been able to walk since the age of 7, when his room became the only space for comfortable living for the boy. Dad has made sure everything in the room was arranged in a way for his son to feel as independent. And Mom was always by his side to help.

         8 years later, with the disease progressing, his breathing broke down and Ilya was admitted to hospital and attached to air supply machine. At that point all he could dream about was getting back to his tiny world, where everything was familiar and meant for him to feel active. But there seemed to be no hope of going back home soon: portable ventilator machines cost far too much for the family to afford. Ilya became deeply depressed and felt as though his life had ended already.

         With your your donations and support, Vera Fund have raised enough funds to buy the individual air supply machine for this boy. Once Ilya returned home, his heart melted and soon enough he remembered how to be excited about things and how to enjoy life, even with difficulties and restrictions Duchene has included in it.

         Of course, there are still fears in Ilya's heart and his parents are facing the prospect of progressive deterioration of muscle and loss of movement eventually leading to paralysis, with possible intellectual impairment for their boy. But what matters right now is that Ilya is home, that Mom, Dad and sister are there to surround him with love and care.

         Below is the thank you note we received from Ilya's family. It is addressed to Vera's coordinator who works with the family Alexandra and to all of you, our donors, with deep gratitude:

"Dear Alexandra,

happy holidays to you, your team and to all those people out there who did not turn away from our tragedy and chose to help. We wish you all health and happiness, and anything you may wish for yourselves.Thank you for letting us believe and for keeping up our hopes for a better living of our son!

 With best regards,

 Volchkovs family"

Dear friend!

In September and October we have raised $28,704 through GlobalGiving project for Air support ventilators for children, who are unable to breathe independently. You have received this report as one of its supporters. We would like to thank you for your donation.

There are two essential things we have learned over the years of supporting terminally ill children and adults. One is that there are ways to help even when there are no more ways to cure someone, and the other is that the only way to be successful in charitable work it is through joining efforts and sticking together for the cause. We appreciate each and every one of you as Vera Hospice Charity Fund supporters and hope that the number of our friends, of people who share our belief in the need to help others will keep growing. 

In September 2014 our foundation has spend a total of $244,698 within the program dedicated to helping terminally ill children in need of palliative care and their families. We have helped 202 children (182 in Moscow region and 120 in other parts of Russia). 

Approximately half of the sum was spent on supporting children, whom we have already provided with Air support machines and helped return home. As a rule, monthly expenses for the care of such children and the maintenance of the machine will amount to $1,000-3,000. Another significant expenditure is special nutrition for children with different terminal conditions, who need specific elements in a specific form for proper nutrition.

In September we purchased 2 new air supply ventilators for 2 boys from distant regions of Russia. The average costs of this machines varies from $11,000 to $25,000, depending on age, diagnosis and corresponding specifications. This time Elisey from Kirov and Victor from Surgut will now be able to leave their hospital cells and finally go home to be with their families. 

The boy in the picture is Viktor. He was born with congenital miopaphy and spent the first year of his life locked in the hospital because the only way to breathe for him was through the hospital ventilator. He has never seen the sky, a tree, or a cat, never met his two sisters - until our donors have joined together and made it possible for this boy's fragile life to turn around and start anew. Thank you all for Viktors' story and for the stories of many other children we help every day.

At Vera Hospice Charity Fund, we know that when there are now more ways to cure someone, there are still many ways to make their life brighter. And we know this thanks to what you have made possible. We continue working with terminally ill children and spreading the awareness both among parents who seek ways to fight for their severily ill kids to get the best care they can and donors who need to know how to help effectively. 

Please, stay with us, keep donating and bring your friends to join for the cause. Doing the good together is the only right way to do it.

With best regards,

Vera team

Links:

VERA
VERA's ward happy and traveling with ventilator

Dear VERA donors,

thanks to your support, our first GlobalGiving fundraising project has been doing really well. It means a lot to us at VERA Hospice Charity Fund that 371 people have responded to our appeal and reached out to help severely ill children and their familes all over Russia. With every donation you send, you make a child's pain less intense and a mother's dream to have her baby return home more tangible. 

With only 1 week left to fundraise for individual air supply ventilators, we are cuurently in 1st place among all the September challenge NPO participants with most unique donors who have contributed to our cause and 2nd in funds raised. According to GlobalGiving regulations, the organization with most unique donors will be awarded with 2,000$ at the end of the race, the one that raises most funds will receive a prize of 3,000$. This means that we could raise upto 5,000$ extra if we maintain our positions. 

Please, tell your friends about us, ask them to share this project with others and to contribute if they can. Things are so much easier to accomplish if we join together for a good cause! 

Even when there is no cure for someone, there are so many ways to make their lives better, so many ways to help them!

With best regards,

VERA team

 

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Organization Information

VERA Hospice Charity Fund

Location: Moscow - Russia
Website:
Facebook: Facebook Page
Project Leader:
Maria Bakhtina
Moscow, Moscow Russia

Funded Project!

Combined with other sources of funding, this project raised enough money to fund the outlined activities and is no longer accepting donations.
   

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