Add Marrow Donors: Eliminate Leukemia Worldwide

by Karelian Registry of unrelated donors of hematopoietic stem cells
Play Video
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Our hero Yaroslava
Our hero Yaroslava

Dear friends!

 Have you ever thought that once a hundred miles or kilometers was a serious obstacle for people, while now we freely communicate and help each other, although we are tens of thousands of kilometers or miles apart? Distances are no longer a problem. It's amazing!

For example, you provide us with financial assistance, and thanks to this, we are able to hold recruiting campaigns of new donors for the Registry.  In January and February of 2020, more than 50 donors joined the Karelian Registry. Another example is that we help find donors for patients from different parts of the world. In January and February, we received 20 requests from different countries to search for donors. Earlier, we told you happy stories about donors for patients from different countries.

In February, another good city appeared on our “donor map” – Kostomuksha. This city is located in the North of the Republic of Karelia at a distance of 500 kilometers (310 miles) from Petrozavodsk, where our Registry office is located. Now Kostomuksha holds a recruiting action twice a month. This became possible by a girl named Yaroslava.

“I learned about bone marrow donation about 5 years ago. My friend told me about it. I never doubted my decision even for a moment: I wanted to become a potential donor. And when it is necessary, I'm ready to become a real donor!” – recalls Yaroslava.

First, Yaroslava followed her friend's example and joined the Registry, and then she herself became a leader for others. 

Yaroslava continues, “I love doing good things. I also like to tell people new facts. I discovered that bone marrow donation is a completely unknown topic for many people. And out of ignorance, people think it's dangerous for their health. I wanted to destroy these fears and tell the truth about bone marrow donation!”

So Yaroslava decided to become a volunteer of the Karelian Registry. She conducted seven lessons for high school students and organized an information platform for the Registry at the charity event “Giving Tuesday". And now she has decided to organize a recruiting of donors in her city on an ongoing basis. She sends envelopes with documents and samples of new donors to the Registry office in Petrozavodsk.

"Friends and acquaintances support me. And they are very surprised how I manage to have so much energy and time for doing this. After all, I have a small child, and now I have a puppy!” – Yaroslava continues her story with laugh.

We are also surprised and admire Yaroslava's activity. We are sure that thanks to her, hundreds of residents of Kostomuksha will become potential donors!

How great it would be if such wonderful people were in every city! People like Yaroslava - volunteers - would help attract new donors, and people like you - our good benefactors - would help pay for the search of new donors!

Then we will have many potential bone marrow donors, and together we will have much more chances to save the world from leukemia!

We will regularly tell you about our friends and helpers. Please share our stories in social media. We also would like to hear your stories. Send your stories to us, and we will publish them in our next report!

And finally, take part in GlobalGiving’s 2020 March Little by Little Matching Campaign. It runs from 09:00:00 ET on Monday, March 23, 2020, to 23:59:59 ET on Friday, March 27, 2020.

Your help will be multiplied! During Little by Little, all eligible donations up to $50 per unique donor per organization will be matched at 50% for as long as the campaign is live. GlobalGiving’s 100% Monthly Match is also available to the GlobalGiving nonprofit community for all of 2020, and this includes the March Little by Little Campaign week.

Take part in it, please, and tell your friends about it!

We are on Facebook.com

Recruiting of donors in Kostomuksha
Recruiting of donors in Kostomuksha
Lecture for students of the school
Lecture for students of the school
Lecture for college students - 1
Lecture for college students - 1
Lecture for college students - 2
Lecture for college students - 2
Lecture for college students - 3
Lecture for college students - 3
Lecture for the participants of the forum
Lecture for the participants of the forum

Links:

Share on Twitter Share on Facebook
Our hero Olga
Our hero Olga

Dear friends!

We recently told you the results of 2019. Indeed, the year has brought us many important events and achievements. Thank you for being with us! The Registry is working and developing thanks to your financial support.  Over the past 3 months, the Registry has replenished with 50 new names, and this is important!

Special thanks to people with great ideas that help attract new donors!

Today we will tell you about one such person.

Once one girl, when joining the Registry, said, “I am a professional volleyball player and I organize volleyball competitions. Let's dedicate the next volleyball tournament to the bone marrow donation movement.” So we met Olga.

Olga is a bright and active person.  She manages the Sports Training Center. And now she is a potential bone marrow donor and our good friend!

“I learned about the Bone Marrow Donors Registry from local news on the social network,” Olga explained, “I read the article and realized that the procedure for collecting donor bone marrow is safe and there was nothing to fear.  Therefore, I immediately, from the phone, filled out an application to join the Registry. I’m an optimist and altruist, and I am ready to support a good deed.”

In October Olga passed tests to determine compatibility parameters. In early November, Olga and her partner organized regional volleyball competitions. Competitions lasted for 3 days, and 150 athletes from different cities of Karelia participated in them. “In the league, we had already held a campaign to raise funds for cancer treatment. The topic of bone marrow donation has become an amazing discovery for us. And we decided to tell others about it, dedicating the competitions to the bone marrow donation movement in Karelia,” Olga said.

Two tournaments in a row were held under the slogan “Sport for life!”. In between games, athletes approached the Registry booth, asked volunteers some questions, and then filled out questionnaires and handed in samples. It was very cool!

Olga continued, “I know that people of the same spirit work easily and productively on projects. It seems to me that the work of the league and the Registry has something in common. We give people joy from activity and communication. The Registry does the same, and it also fills this joy with special meaning. Good luck to all of us!”  

Olga understands that the probability of full matching the donor and the patient is very small, but this does not upset her. “Leukemia is a terrible disease! I sometimes think that if I have not yet approached anyone as a donor, that’s good! It means my genetic twin does not need my bone marrow cells. So, he is healthy, and leukemia did not affect him. But if she or he needs my help, then I'm ready!”

Thanks to good people, activists like Olga and philanthropists like you,  there are new chances to save the world from leukemia! Together!

We will continue to present stories of our friends. Please share them on social media. We will also be happy to hear your stories.  You can send them to us on Facebook https://www.facebook.com/karelian.registry.ru/

She is volleyballer...
She is volleyballer...
and potential bone marrow donor
and potential bone marrow donor
She organized competitions for volleyballers
She organized competitions for volleyballers
Invited us to talk about donations and leukemia
Invited us to talk about donations and leukemia
Sportsman were interested in donation
Sportsman were interested in donation
And some of them entered ...
And some of them entered ...
the Karelian registry of bone marrow donors!
the Karelian registry of bone marrow donors!
It was possible due to Olga!
It was possible due to Olga!

Links:

Share on Twitter Share on Facebook

Dear benefactors,

Happy New Year 2020!

May 2020 be generous with good events! 

We wish you good moments and positive emotions!

All the best in 2020!

Now let's sum up the results of the past 2019.

The most remarkable achievement of 2019 was that two 2 donors from our Registry donated bone marrow cells for patients with leukemia. We hope that the disease will forever recede, and our dear patients will be completely healthy.

In other eight cases, our donors turned out to be fully compatible with the patients, but it didn’t come to transplantation. In total, over the year we received 127 requests for bone marrow donors from Russia, Turkey, Great Britain, Poland, Germany, France, Belgium, Kazakhstan and other countries. We have never had so many requests before. 

Throughout the year, we continued to actively recruit new potential donors.  Residents of various regions of Russia sent us envelopes with samples, and residents of Karelia entered the Registry during our campaigns or came to our office to join the Registry.

Six hundred one individual decided to become potential bone marrow donors, and now the Karelian Registry counts 5132 people.  The barrier of 5 thousand has been successfully overcome!

And we didn’t stop there:

  • We talked about bone marrow donation in classrooms and in offices, on the volleyball court, football stadium, paintball and at the software programmers’ contests, in the library and in the cinema, as part of business meetings and national conferences, at city events and children's parties, on television and on the radio;
  • We shared happy stories of cancer patients and introduced you to our donors and conducted surveys;
  • We raised funds to recruit new donors in the register;
  • We got acquainted with new organizations and new people who have become our good friends and partners.

The Karelian Registry of Bone Marrow Donors continues to grow. Thank you for being with us! Thanks to your participation and support! Together, in 2020 we will become even closer to our common goal - to defeat leukemia!

Happy New Year!

Sincerely, 

Andrey Varshukov

 

 

Links:

Share on Twitter Share on Facebook

Dear friends!

On behalf of the Karelian registry team, we congratulate you on the past World Bone Marrow Donor Day! This celebration brings together bone marrow donors, doctors, patients, registry volunteers and philanthropists - all who contribute to the fight against leukemia!

Thank you for being with us! Thank you for your kindness and many years of help!

It is symbolic that during the days of the celebration a very important event took place - a man from our registry became a donor for a child from another country on September 24th!

This story developed rapidly. We received a donor request in July. It stated that the disease develops very quickly and if transplantation is not done in the coming months, the patient cannot be saved...The donor was searched all over the world, but only one person from our registry turned out to be compatible. In a short time, we were able to organize a donor examination. Fortunately, he was healthy and was able to donate bone marrow cells. He helped to save the life of this boy! This is a real miracle! And it all happened thanks to you, because with the help of your donations this man was included in the register!

This is the second case in 2019 when a donor donated bone marrow cells for patients with leukemia.

In just 9 months of this year, we received more than 100 requests for donors from around the world. This is more than the number of requests in 2018.

Inquiries and successful donations inspire us to actively attract new donors.

And that is what we are doing! Over the past 3 months, we conducted weekly donor recruits in our office, went to recruit donors in other cities, and received samples by mail from residents of remote places. In collaboration with other organizations, we held lectures and information meetings, dedicated sports competitions to the fight against leukemia, and we organized film screenings about bone marrow donation.

Goodness and mercy have no limits. You, philanthropists from around the world, are helping us, the registry of donors from Russia, financially. Thanks to you, the registry is developing, and our donors donate bone marrow cells to patients from both Russia and other countries. So together we will get rid of leukemia in this world!

 

Friends, we have the opportunity to increase your help! Participate in #GivingTuesday and encourage your relatives, friends, and work colleagues to do so!

#GivingTuesday is a worldwide charity day that inspires people to collaborate and give back. The GlobalGiving 2019 #GivingTuesday campaign will begin on 3rd of December, 2019, at 00:00:00 ET and will end at 23:59:59 ET on 3rd of December, 2019.

This year, projects will compete for part of the $500,000 incentive fund. This means that if, for example, 1% of the total amount of dollars raised by all projects on Tuesday is donated to the Karelian Register project, then another 1% - or $5000 - will come from the Incentive Fund. $5000 means 700 new bone marrow donors included in the registry and in the global database. And every donor gives people with leukemia and other blood diseases a second chance.

Please make your contribution at https://www.globalgiving.org/projects/add-marrow-donors-eliminate-leukemia-worldwide/

And tell your friends about it on your social networks.

Lecture for employees of the business center
Lecture for employees of the business center
Our wonderful donors
Our wonderful donors
Paintball players are entering in the registry-1
Paintball players are entering in the registry-1
At paintball competitions - 2
At paintball competitions - 2
Lecture for students
Lecture for students
Share on Twitter Share on Facebook

Dear friends!

We would like to share some news about the work of our foundation over the past 3 months.

As you know, the mission of the Karelian Registry is to help patients with leukemia to overcome the disease! We receive requests to find donors for patients from different countries. Since the beginning of 2019, we have got 73 requests from Russia, Britain, Spain, Belgium, Kazakhstan, France and Turkey. Sometimes there were 4 requests a day, which is just surprising!

There were 7 matches with our donors. One of the donors has already donated bone marrow cells for a child from Russia. We reported that last time. And now two more donors are undergoing a medical examination. We believe that everything will turn out well and that they will be able to give patients with leukemia hope for life!

As you know, leukemia knows no boundaries, adults and children from different countries suffer from it. It is important for people from all over the world to unite in the fight against it! Thank you for your participation, kindness and mercy! Thank you for your donations!

Thanks to it, we can pay for the inclusion of new donors in the register. And the more donors will be on the register, the greater the chance that we will be able to find a donor for a specific patient with leukemia and save their life!

In the summer months, we did not hold a campaign to attract donors. But we talked about bone marrow donation at lectures, during specially designed games and workshops on origami (we made paper cranes - a symbol of the fight against leukemia). We destroyed myths and fears by all means, convincing people that being a potential bone marrow donor is safe for the donor and vital for patients, and we invited people to register in our office in Petrozavodsk at any convenient day!

Every week, volunteers and registry staff are ready to consult those who wish to become potential donors. Our opening hours are turned into monthly schedule and published on the social media.

As usual, we offer residents of other cities to join the register by sending documents and samples for analysis by mail. Thus, we have already received dozens of envelopes from different cities of Russia!

It's great that now neither time nor distance is an obstacle to doing good and important deeds!

Thus, over the past 3 months, several dozens of people have become potential donors. Now there are 4954 potential donors in our database and we are waiting from the laboratory for more 56 HLA matching results.

It is important! Thanks to our mutual efforts, more and more people are ready to help patients with leukemia. It means that there is more chances that one of the potential donors will be compatible with a specific patient and will give hope for recovery!

Friends, thank you for being with us for many years! Let's beat leukemia together!

Share on Twitter Share on Facebook
 

About Project Reports

Project Reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.

If you donate to this project or have donated to this project, you will get an e-mail when this project posts a report. You can also subscribe for reports via e-mail without donating.

Get Reports via Email

We'll only email you new reports and updates about this project.

Organization Information

Karelian Registry of unrelated donors of hematopoietic stem cells

Location: Petrozavodsk - Russia
Website:
Facebook: Facebook Page
Project Leader:
Yuri Ioffe
Petrozavodsk, Russia
$32,619 raised of $45,000 goal
 
362 donations
$12,381 to go
Donate Now
lock
Donating through GlobalGiving is safe, secure, and easy with many payment options to choose from. View other ways to donate

Karelian Registry of unrelated donors of hematopoietic stem cells has earned this recognition on GlobalGiving:
Add Project to Favorites

Help raise money!

Support this important cause by creating a personalized fundraising page.

Start a Fundraiser

Learn more about GlobalGiving

Teenage Science Students
Vetting +
Due Diligence

Snorkeler
Our
Impact

Woman Holding a Gift Card
Give
Gift Cards

Young Girl with a Bicycle
GlobalGiving
Guarantee

Sign up for the GlobalGiving Newsletter

WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.