Add Marrow Donors: Eliminate Leukemia Worldwide

by Karelian Registry of unrelated donors of hematopoietic stem cells
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Recruitment of donors
Recruitment of donors

Dear Friends!

The COVID19 pandemic continues, and we continue to work no matter what. Thanks to your support, we have been productive over the past 3 months.

First things first:

1. We accepted and processed 40 requests from different countries for bone marrow donors. Fortunately, for 2 inquiries we have compatible donors in our Registry. It means that 2 terminally ill patients have a chance of recovery. Our donors agreed to undergo the necessary examinations and are now waiting for a decision from the clinics in which the patients are located. We all hope for a happy ending!

2. We continue recruiting new donors. The COVID19 pandemic made us change all plans. We had to stop mass recruitment campaigns at universities and colleges, as well as in our office. Nevertheless, after a pause, we began to receive documents and samples from donors by mail. We also conducted remote recruitment of donors among employees of the construction hypermarket Leroy Merlen Petrozavodsk. Thanks to the manager of the hypermarket Ekaterina for help in recruiting! We definitely will use this experience in the future.

3. One of the very pleasant moments:  in May our Registry turned 19 years old! We had a very cool online concert in honor of our birthday. Our friends from the Art Space, wonderful musicians from Petrozavodsk and professionals from the video studio helped us to organize the concert. More than 1000 spectators joined us, and donors and benefactors from Russia, Germany, Thailand and Switzerland sent their congratulations. You can watch the recording of the concert on YouTube and subscribe to our channel.

 In conclusion, we would like to thank you for your support! Thanks to your donations the Registry continues to grow. And together we help rid the world of leukemia.

 We wish you all to stay safe and healthy in this challenging time! Take care of yourself and your loved ones!

You can help us to improve our work not only with your financial assistance, but also with your feedback about our activities.

Please tell us:

  • What would you like to know about us? What should we talk about in our reports?
  • Do you follow us on social media? If so, can you name them?
  • Would you like to help the Registry not only financially, but also as a volunteer?

To respond, please follow the link:https://forms.gle/PByBEmRZneChHACv6 

You can do this anonymously if you want.

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Work place at home
Work place at home

Dear friends!

Now we are all going through a very difficult period. The coronavirus pandemic threatens the lives of people all over the World. Governments, organizations, and thousands of people are working hard to stop the epidemic and help those affected. We thank them for their work and express our great respect!

The coronavirus made us work differently. But we have never stopped working, thanks to your support. We appreciate it a lot! 

Like many other organizations, we have gradually moved online.

First of all, this refers to the recruitment of new donors. Until mid-March, we hosted donors in our offices in 2 cities. Later, one could join the Registry only sending an envelope with her/his samples by mail. 

But at the end of March, we had to suspend this too, so that our donors would not put them in risk going to the post office. 

We still accept online applications from people who would like to become potential donors, but we have to wait for going forward with them until the threat of the virus will go away. 

At the end of March, we sent a batch of donors’ samples to the laboratory and hope that the results of typing will arrive in a few months.  

In addition, we continue to accept donor searches requests. In 2020 we received twenty-two requests from different countries. On one request, our donor matched pretty well with a patient and now is being in reserve.

Second, because of the virus, we conduct all our information campaigns online. We don't give lectures about bone marrow donation in auditoriums as we did before, but we communicate and answer questions on social media.

Third, the quarantine allowed us to take a closer look at our internal work. We have updated the questionnaires and applications for potential donors on our website and introduce services for remote work with donors. We continue to learn how to do our work better, and we would like to mention here that we get a lot of useful information on GlobalGiving.

Fourth, we continue to collect donations on GlobalGiving. They help us to recruit new donors in the Registry: to pay for laboratory tests of samples, information materials and postal shipments.

Most recently we participated in the 2020 Little by Little March campaign held by GlobalGiving. During this campaign, GG increased each donation by 50%. Thank you to those of you who took part in this campaign! We also remind you that GlobalGiving currently doubles regular donations.

In general, we hope that as soon as the virus recedes, we can make our work even more effective. 

You can help us to improve our work not only with your financial assistance, but also with your feedback about our activities.

Please tell us:

  • What would you like to know about us? What should we talk about in our reports?
  • Do you follow us on social media? If so, can you name them?
  • Would you like to help the Registry not only financially, but also as a volunteer?

To respond, please follow the link: https://forms.gle/PByBEmRZneChHACv6 

You can do this anonymously if you want.

 In conclusion, we would like to thank you once again for the financial assistance that you provide us even in this difficult time. You inspire us to work harder in fighting leukemia and saving lives!

We wish you all to stay safe! Take care of yourself and your loved ones!

Elena, volonteer
Elena, volonteer
Andrei, volonteer
Andrei, volonteer
Natasha , volonteer
Natasha , volonteer

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Our hero Yaroslava
Our hero Yaroslava

Dear friends!

 Have you ever thought that once a hundred miles or kilometers was a serious obstacle for people, while now we freely communicate and help each other, although we are tens of thousands of kilometers or miles apart? Distances are no longer a problem. It's amazing!

For example, you provide us with financial assistance, and thanks to this, we are able to hold recruiting campaigns of new donors for the Registry.  In January and February of 2020, more than 50 donors joined the Karelian Registry. Another example is that we help find donors for patients from different parts of the world. In January and February, we received 20 requests from different countries to search for donors. Earlier, we told you happy stories about donors for patients from different countries.

In February, another good city appeared on our “donor map” – Kostomuksha. This city is located in the North of the Republic of Karelia at a distance of 500 kilometers (310 miles) from Petrozavodsk, where our Registry office is located. Now Kostomuksha holds a recruiting action twice a month. This became possible by a girl named Yaroslava.

“I learned about bone marrow donation about 5 years ago. My friend told me about it. I never doubted my decision even for a moment: I wanted to become a potential donor. And when it is necessary, I'm ready to become a real donor!” – recalls Yaroslava.

First, Yaroslava followed her friend's example and joined the Registry, and then she herself became a leader for others. 

Yaroslava continues, “I love doing good things. I also like to tell people new facts. I discovered that bone marrow donation is a completely unknown topic for many people. And out of ignorance, people think it's dangerous for their health. I wanted to destroy these fears and tell the truth about bone marrow donation!”

So Yaroslava decided to become a volunteer of the Karelian Registry. She conducted seven lessons for high school students and organized an information platform for the Registry at the charity event “Giving Tuesday". And now she has decided to organize a recruiting of donors in her city on an ongoing basis. She sends envelopes with documents and samples of new donors to the Registry office in Petrozavodsk.

"Friends and acquaintances support me. And they are very surprised how I manage to have so much energy and time for doing this. After all, I have a small child, and now I have a puppy!” – Yaroslava continues her story with laugh.

We are also surprised and admire Yaroslava's activity. We are sure that thanks to her, hundreds of residents of Kostomuksha will become potential donors!

How great it would be if such wonderful people were in every city! People like Yaroslava - volunteers - would help attract new donors, and people like you - our good benefactors - would help pay for the search of new donors!

Then we will have many potential bone marrow donors, and together we will have much more chances to save the world from leukemia!

We will regularly tell you about our friends and helpers. Please share our stories in social media. We also would like to hear your stories. Send your stories to us, and we will publish them in our next report!

And finally, take part in GlobalGiving’s 2020 March Little by Little Matching Campaign. It runs from 09:00:00 ET on Monday, March 23, 2020, to 23:59:59 ET on Friday, March 27, 2020.

Your help will be multiplied! During Little by Little, all eligible donations up to $50 per unique donor per organization will be matched at 50% for as long as the campaign is live. GlobalGiving’s 100% Monthly Match is also available to the GlobalGiving nonprofit community for all of 2020, and this includes the March Little by Little Campaign week.

Take part in it, please, and tell your friends about it!

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Recruiting of donors in Kostomuksha
Recruiting of donors in Kostomuksha
Lecture for students of the school
Lecture for students of the school
Lecture for college students - 1
Lecture for college students - 1
Lecture for college students - 2
Lecture for college students - 2
Lecture for college students - 3
Lecture for college students - 3
Lecture for the participants of the forum
Lecture for the participants of the forum

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Our hero Olga
Our hero Olga

Dear friends!

We recently told you the results of 2019. Indeed, the year has brought us many important events and achievements. Thank you for being with us! The Registry is working and developing thanks to your financial support.  Over the past 3 months, the Registry has replenished with 50 new names, and this is important!

Special thanks to people with great ideas that help attract new donors!

Today we will tell you about one such person.

Once one girl, when joining the Registry, said, “I am a professional volleyball player and I organize volleyball competitions. Let's dedicate the next volleyball tournament to the bone marrow donation movement.” So we met Olga.

Olga is a bright and active person.  She manages the Sports Training Center. And now she is a potential bone marrow donor and our good friend!

“I learned about the Bone Marrow Donors Registry from local news on the social network,” Olga explained, “I read the article and realized that the procedure for collecting donor bone marrow is safe and there was nothing to fear.  Therefore, I immediately, from the phone, filled out an application to join the Registry. I’m an optimist and altruist, and I am ready to support a good deed.”

In October Olga passed tests to determine compatibility parameters. In early November, Olga and her partner organized regional volleyball competitions. Competitions lasted for 3 days, and 150 athletes from different cities of Karelia participated in them. “In the league, we had already held a campaign to raise funds for cancer treatment. The topic of bone marrow donation has become an amazing discovery for us. And we decided to tell others about it, dedicating the competitions to the bone marrow donation movement in Karelia,” Olga said.

Two tournaments in a row were held under the slogan “Sport for life!”. In between games, athletes approached the Registry booth, asked volunteers some questions, and then filled out questionnaires and handed in samples. It was very cool!

Olga continued, “I know that people of the same spirit work easily and productively on projects. It seems to me that the work of the league and the Registry has something in common. We give people joy from activity and communication. The Registry does the same, and it also fills this joy with special meaning. Good luck to all of us!”  

Olga understands that the probability of full matching the donor and the patient is very small, but this does not upset her. “Leukemia is a terrible disease! I sometimes think that if I have not yet approached anyone as a donor, that’s good! It means my genetic twin does not need my bone marrow cells. So, he is healthy, and leukemia did not affect him. But if she or he needs my help, then I'm ready!”

Thanks to good people, activists like Olga and philanthropists like you,  there are new chances to save the world from leukemia! Together!

We will continue to present stories of our friends. Please share them on social media. We will also be happy to hear your stories.  You can send them to us on Facebook https://www.facebook.com/karelian.registry.ru/

She is volleyballer...
She is volleyballer...
and potential bone marrow donor
and potential bone marrow donor
She organized competitions for volleyballers
She organized competitions for volleyballers
Invited us to talk about donations and leukemia
Invited us to talk about donations and leukemia
Sportsman were interested in donation
Sportsman were interested in donation
And some of them entered ...
And some of them entered ...
the Karelian registry of bone marrow donors!
the Karelian registry of bone marrow donors!
It was possible due to Olga!
It was possible due to Olga!

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Dear benefactors,

Happy New Year 2020!

May 2020 be generous with good events! 

We wish you good moments and positive emotions!

All the best in 2020!

Now let's sum up the results of the past 2019.

The most remarkable achievement of 2019 was that two 2 donors from our Registry donated bone marrow cells for patients with leukemia. We hope that the disease will forever recede, and our dear patients will be completely healthy.

In other eight cases, our donors turned out to be fully compatible with the patients, but it didn’t come to transplantation. In total, over the year we received 127 requests for bone marrow donors from Russia, Turkey, Great Britain, Poland, Germany, France, Belgium, Kazakhstan and other countries. We have never had so many requests before. 

Throughout the year, we continued to actively recruit new potential donors.  Residents of various regions of Russia sent us envelopes with samples, and residents of Karelia entered the Registry during our campaigns or came to our office to join the Registry.

Six hundred one individual decided to become potential bone marrow donors, and now the Karelian Registry counts 5132 people.  The barrier of 5 thousand has been successfully overcome!

And we didn’t stop there:

  • We talked about bone marrow donation in classrooms and in offices, on the volleyball court, football stadium, paintball and at the software programmers’ contests, in the library and in the cinema, as part of business meetings and national conferences, at city events and children's parties, on television and on the radio;
  • We shared happy stories of cancer patients and introduced you to our donors and conducted surveys;
  • We raised funds to recruit new donors in the register;
  • We got acquainted with new organizations and new people who have become our good friends and partners.

The Karelian Registry of Bone Marrow Donors continues to grow. Thank you for being with us! Thanks to your participation and support! Together, in 2020 we will become even closer to our common goal - to defeat leukemia!

Happy New Year!

Sincerely, 

Andrey Varshukov

 

 

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Organization Information

Karelian Registry of unrelated donors of hematopoietic stem cells

Location: Petrozavodsk - Russia
Website:
Facebook: Facebook Page
Project Leader:
Yuri Ioffe
Petrozavodsk, Russia
$37,257 raised of $45,000 goal
 
399 donations
$7,743 to go
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