Add Marrow Donors: Eliminate Leukemia Worldwide

by Karelian Registry of unrelated donors of hematopoietic stem cells
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Andrew, volunteer
Andrew, volunteer

Dear friends!

My name is Andrew. For several years now I have been telling you about the work of the Karelian Registry of Bone Marrow Donors and about our assistance to patients with leukemia.

Your donations help the foundation pay for the ongoing costs of recruiting new donors.

Personally, your participation gives me strength and inspires me. I feel like I'm part of a big team bringing together kind people from all over the world.

I am very grateful to you for your support. 

Unfortunately, our familiar world is again being seriously tested. I can't help but say this, because it directly concerns the activities of our foundation.

Against the background of the crisis in Ukraine, ties between countries, between groups of people and individuals within groups are being torn.

Agreements and years of cooperation are sometimes broken in a matter of hours.

At this moment, when little depends on us, it is doubly important to remain ourselves. Don’t give up. Appreciate those with whom you do something together. And keep doing what you have to do. Against all odds. 

This is what the team of the Karelian Registry does.

 And we have some good news!

1. We continue to recruit donors. Offline in Petrozavodsk and online throughout Russia. Now there are 6130 potential donors in our database.

2. We continue to accept and process requests for donors from both Russia and other countries. We stay in touch with clinics and registries from other countries.

3. We are ready to arrange donations for patients from anywhere in the world!

4. The most inspiring news: in February, two of our donors donated hematopoietic cells for patients with leukemia. In the first case, for a man from Germany, in the second - for a girl from Russia. After a few weeks, our donors feel great. We hope that the patients will fully recover and return to their former healthy life!

There is hope for this - thanks to our donors, specialists, partners and, of course, thanks to your support. Your donations allow us to include new donors in the Registry, each of whom is a new hope for life!

Sign up for monthly donations to our project and tell your friends about it. Let them follow your lead!

Let's rid the world of leukemia together! These words are more important than ever.

Let's make sure that any patient from any country in the world finds her/his donor and is cured of leukemia.

It is within our power to do this. Together!

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Happy New Year!
Happy New Year!

Wish for New Year: Rid the World of Leukemia Together!

 

Dear friends, the end of the year is always rich in warm words and emotions. On New Year's Eve and Christmas, we say to you, “Thank you for being with us!”

We wish you happiness and love, kindness and smiles, success and prosperity!

And on the eve of magical holidays, it is customary to make wishes. You know our wish: save the life of every leukemia patient in the world!

And one of these patients is Sofia from Petrozavodsk. A wonderful 25-year-old girl with a radiant smile. Her sweet son Miroslav is only 7 months old. He is growing up a strong baby. Sofia has a relapse of acute lymphoblastic leukemia. 

And we hope that Sofia will be able to wait for her donor, but so far, there is no good match for her in the world’s bone marrow donor registries.

Sofia's story motivates us to work even harder on expanding the bone marrow database next year . We sum up our work in 2021 and move forward as fast as we can. Time is working against us.

We are ready for the meeting 2022 as never before!

Thanks to your help, in 2021:

- We have conducted a successful campaign to recruit potential bone marrow donors. 650 new donors have already been included in the register and another 180 samples are in the laboratory;

- We processed 76 requests for donors from Russia and other countries;

- Twelve of our donors turned out to be compatible with patients. Two of them are waiting for the decision of clinics and another one is being examined right now. 

These are the most inspiring events for us. Thus, at the beginning of 2022, three of our donors have a chance to save the lives of patients with leukemia at once! 

These numbers show how important it is to develop the Registry for the sake of helping patients with leukemia around the world!

Thanks to everyone who has helped us this year: our volunteers, our media and business partners, and you, our dear benefactors!

Only together we can help every patient who needs a transplant of donor hematopoietic cells, including Sofia from Petrozavodsk.

We really appreciate you being with us.

On the eve of the holidays, we have one request for you: invite one of your friends to donate to our GG fund instead of purchasing a gift for you. It's simple and at the same time it is very  important.

It will be your joint contribution to helping patients with leukemia!

 

Let's rid the world of leukemia together in 2022!

Sofia and her sweet son Miroslav
Sofia and her sweet son Miroslav
Alexei,  potential bone marrow donor
Alexei, potential bone marrow donor

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#WMDD2021
#WMDD2021

Dear friends!

Traditionally, in September, we congratulate you, our dear benefactors, on the World Bone Marrow Donor Day! It is thanks to you that our Bone Marrow Donor Registry is developing! We really appreciate your help and we are happy to share with you our success in saving patients from leukemia!

This year, by the date of the World Bone Marrow Donor Day, two of our potential donors are preparing to save the lives of patients with leukemia. Both have already undergone a medical examination and are awaiting messages from the clinics where patients are treated. Saving a life is by far the most important event imaginable!

In total, in 2021 we received 50 requests to search for donors from different countries. In 13 requests, donors from our Registry turned out to be compatible. In 9 of them, clinics requested to conduct a survey of donors. And in the last 2 cases, the clinics chose our donors.

Such events are inspiring! But they happened only because these donors decided to enter the Registry, and you helped pay for their initial examination with your donations. And you helped not only them to join the Registry, but also hundreds of other new donors. Thank you for that!

We are returning to the celebration of the World Bone Marrow Donors Day.

This year, athletes joined the celebration. Under the slogan " Sport - for Life without Leukemia” they held a paintball tournament and an American football match. And very soon there will be two massive races in support of our Registry.

We are grateful to the athletes for their help! This is very important when young and healthy people are ready to help those facing a serious illness. And they urge others not to stay aside.

We will celebrate the World Bone Marrow Donors Day with donor recruitment activities at our Petrozavodsk office and at the blood transfusion station, as well as with remote recruitment.

Let this holiday become a signal for caring people.

Join the Registry! Perhaps your genetic twin really needs your help right now!

Join our community on Instagram and Facebook, support us with donations and tell your friends about us!

Let's rid the world of leukemia together!

Paintballers
Paintballers
"Sport - for Life without Leukemia"
"Sport - for Life without Leukemia"

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Our hero Natalia
Our hero Natalia

Dear friends!

 During the pandemic, we began to ask each other more often, “How is your health and the health of your loved ones?” And it's not just about Covid.

We continue to receive your support in the fight against leukemia during this hard time. Thank you for that! We share with you the news that would not have happened without your financial help.

 Two years have passed since the real miracle: the girl Natalia from the Karelian Registry became a donor of hematopoietic cells for a patient from Russia. Natalia is a medic, and saving people's lives is her profession. Together with her colleagues, Natalia joined our Registry of Bone Marrow Donors a couple of years ago. And shortly after that itwas she who turned out to be compatible with a patient from Russia.

“At that moment, the thought that it was in my power to save a person's life gave me goosebumps. There were no doubts even for a minute: if I can, I must help, and it doesn't matter to whom,” Natalia recalls.

We tell Natalia's story through the media and on our website because she inspires not only you and me, but also new donors.

 By the way, about new donors. It has become even easier for residents of our region to join our Registry.

First, we began to cooperate with the Petrozavodsk Blood Transfusion station, and now blood donors can take a smear and join the Bone Marrow Donor Registry fast and easy.

And second, now we are installing special boxes in which candidates for donors can leave envelopes with signed documents and collected samples for entry into our Registry. We put such boxes in places that are convenient for visiting: in libraries, shops, pharmacies and cafes. And we do it not only in Petrozavodsk, but also in other cities of Karelia, for example, Kondopoga and Kostomuksha

We try to use any possible way to make participation in saving lives more convenient for our donors.

 We also strive to make working with us more convenient for clinics where patients are treated. In the spring we launched an online service that helps to determine whether there is a suitable donor in our database for a specific set of compatibility parameters. This service allows doctors and patients’ relatives to save precious time searching for donors. Of course, we comply with the requirements of maintaining the anonymity of donors, so if there is a compatible donor, we will contact them and arrange a donation at the request of the clinic.

During this year, we have already received 32 requests to search for donors. In six cases our donors turned out to be compatible, but the clinics have not yet offered to organize donations. Well, they act as it is better for the patients. And we are ready to connect at any time and do everything that depends on us.

And this remains possible thanks to your regular help, including donations. Thank you for this from us, the volunteers and staff of the Registry, doctors and patients with leukemia.

 Finally, let's say in the words of our donor Natalia, “I am 30 years old, and I have already managed to commit an act that lights up my life in a special way. I have ALREADY experienced an incomparable sense of belonging to a great cause. And it was surprisingly simple!”

Each of you is also involved in this great cause, and this is priceless!

 Please join our community on Instagram and Facebook, support us with donations and tell your friends about us!

Let's rid the world of leukemia together!

Natalia's donation
Natalia's donation
Boxes for donors documents and samples
Boxes for donors documents and samples

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Tatyana-1
Tatyana-1

Dear friends!

 For many years, we have been developing hematopoietic cells donation together with you. Our goal is to make sure that every patient who needs help can find a compatible donor.

At the beginning of the year, we received a request to find a donor for Tatiana.

Tatiana  was born and raised in Yakutia. Since childhood, she loved airplanes and dreamed of working at the airport. The dream came true: Tatiana was offered a position in the aviation meteorological center of Yakutsk, where she worked for 15 years.

Then Tatiana moved to live in Finland. In a foreign country, it was not easy at first: she had to learn the language, look for a job.

"I attended language courses, then to practical classes, worked as a kitchen worker for free to receive benefits. But it never scared me. Loneliness was scarier," said Tatiana.

Now our heroine is 59 years old. She raised her daughter, learned the language, overcame all the difficulties and was able to get a prestigious job.

"Here, as probably in any country, it is very important to have a job. For more than 10 years, I have been working for a large, well-known company that has branches all over the world. I'm an electronics assembler. I had to forget about meteorology and retrain. The company I work for is engaged in the production and testing of special construction equipment, " Tatiana said.

Life has returned to a stable course. It seemed that all the problems were over. Tatiana began to make plans and dream of grandchildren. But suddenly everything turned upside down.

Two years ago, Tatiana fell ill. It all started with blisters and a red rash, accompanied by severe itching. At first, she was sent to a dermatologist, although Tatiana understood that it was not an allergy,   “I felt something went wrong. My hemoglobin began to drop, it became difficult to climb the stairs, my muscles were very sore. A year ago, after a comprehensive examination, I was diagnosed with myelofibrosis. “ Tatiana can defeat disease only with a bone marrow transplant. To do this, she needs the closest possible genetic donor.

And, alas, so far, no potential donor in the world is suitable for her.

The only hope is if her genetic twin reads Tatiana's story and decides to join the Registry.

We strive to tell the story of Tatiana to as large an audience as possible, so we publish it in the media, in our social networks, in chats with our partners.

Dozens of people from different cities have already responded to our call to join the Registry. And we are sure there will be even more of them!

Thank you for helping to make Tatiana's healing possible!

Each of your donations is an opportunity to pay for the adding several new donors to the Registry’s database of bone marrow donors. Perhaps Tatiana's savior will be among them.

If you are moved by this story, please share it with your family, friends and work colleagues. If they follow your example and make a donation to attract new donors, the chances of Tatiana and hundreds of other patients will increase significantly.

 Let's rid the world of leukemia together!

Tatyana-2
Tatyana-2
Tatyana-3
Tatyana-3

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Organization Information

Karelian Registry of unrelated donors of hematopoietic stem cells

Location: Petrozavodsk - Russia
Website:
Facebook: Facebook Page
Project Leader:
Yuri Ioffe
Petrozavodsk, Russia
$39,007 raised of $45,000 goal
 
424 donations
$5,993 to go
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