Add Marrow Donors: Eliminate Leukemia Worldwide

by Karelian Registry of unrelated donors of hematopoietic stem cells
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
Add Marrow Donors: Eliminate Leukemia Worldwide
#WMDD2021
#WMDD2021

Dear friends!

Traditionally, in September, we congratulate you, our dear benefactors, on the World Bone Marrow Donor Day! It is thanks to you that our Bone Marrow Donor Registry is developing! We really appreciate your help and we are happy to share with you our success in saving patients from leukemia!

This year, by the date of the World Bone Marrow Donor Day, two of our potential donors are preparing to save the lives of patients with leukemia. Both have already undergone a medical examination and are awaiting messages from the clinics where patients are treated. Saving a life is by far the most important event imaginable!

In total, in 2021 we received 50 requests to search for donors from different countries. In 13 requests, donors from our Registry turned out to be compatible. In 9 of them, clinics requested to conduct a survey of donors. And in the last 2 cases, the clinics chose our donors.

Such events are inspiring! But they happened only because these donors decided to enter the Registry, and you helped pay for their initial examination with your donations. And you helped not only them to join the Registry, but also hundreds of other new donors. Thank you for that!

We are returning to the celebration of the World Bone Marrow Donors Day.

This year, athletes joined the celebration. Under the slogan " Sport - for Life without Leukemia” they held a paintball tournament and an American football match. And very soon there will be two massive races in support of our Registry.

We are grateful to the athletes for their help! This is very important when young and healthy people are ready to help those facing a serious illness. And they urge others not to stay aside.

We will celebrate the World Bone Marrow Donors Day with donor recruitment activities at our Petrozavodsk office and at the blood transfusion station, as well as with remote recruitment.

Let this holiday become a signal for caring people.

Join the Registry! Perhaps your genetic twin really needs your help right now!

Join our community on Instagram and Facebook, support us with donations and tell your friends about us!

Let's rid the world of leukemia together!

Paintballers
Paintballers
"Sport - for Life without Leukemia"
"Sport - for Life without Leukemia"

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Our hero Natalia
Our hero Natalia

Dear friends!

 During the pandemic, we began to ask each other more often, “How is your health and the health of your loved ones?” And it's not just about Covid.

We continue to receive your support in the fight against leukemia during this hard time. Thank you for that! We share with you the news that would not have happened without your financial help.

 Two years have passed since the real miracle: the girl Natalia from the Karelian Registry became a donor of hematopoietic cells for a patient from Russia. Natalia is a medic, and saving people's lives is her profession. Together with her colleagues, Natalia joined our Registry of Bone Marrow Donors a couple of years ago. And shortly after that itwas she who turned out to be compatible with a patient from Russia.

“At that moment, the thought that it was in my power to save a person's life gave me goosebumps. There were no doubts even for a minute: if I can, I must help, and it doesn't matter to whom,” Natalia recalls.

We tell Natalia's story through the media and on our website because she inspires not only you and me, but also new donors.

 By the way, about new donors. It has become even easier for residents of our region to join our Registry.

First, we began to cooperate with the Petrozavodsk Blood Transfusion station, and now blood donors can take a smear and join the Bone Marrow Donor Registry fast and easy.

And second, now we are installing special boxes in which candidates for donors can leave envelopes with signed documents and collected samples for entry into our Registry. We put such boxes in places that are convenient for visiting: in libraries, shops, pharmacies and cafes. And we do it not only in Petrozavodsk, but also in other cities of Karelia, for example, Kondopoga and Kostomuksha

We try to use any possible way to make participation in saving lives more convenient for our donors.

 We also strive to make working with us more convenient for clinics where patients are treated. In the spring we launched an online service that helps to determine whether there is a suitable donor in our database for a specific set of compatibility parameters. This service allows doctors and patients’ relatives to save precious time searching for donors. Of course, we comply with the requirements of maintaining the anonymity of donors, so if there is a compatible donor, we will contact them and arrange a donation at the request of the clinic.

During this year, we have already received 32 requests to search for donors. In six cases our donors turned out to be compatible, but the clinics have not yet offered to organize donations. Well, they act as it is better for the patients. And we are ready to connect at any time and do everything that depends on us.

And this remains possible thanks to your regular help, including donations. Thank you for this from us, the volunteers and staff of the Registry, doctors and patients with leukemia.

 Finally, let's say in the words of our donor Natalia, “I am 30 years old, and I have already managed to commit an act that lights up my life in a special way. I have ALREADY experienced an incomparable sense of belonging to a great cause. And it was surprisingly simple!”

Each of you is also involved in this great cause, and this is priceless!

 Please join our community on Instagram and Facebook, support us with donations and tell your friends about us!

Let's rid the world of leukemia together!

Natalia's donation
Natalia's donation
Boxes for donors documents and samples
Boxes for donors documents and samples

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Tatyana-1
Tatyana-1

Dear friends!

 For many years, we have been developing hematopoietic cells donation together with you. Our goal is to make sure that every patient who needs help can find a compatible donor.

At the beginning of the year, we received a request to find a donor for Tatiana.

Tatiana  was born and raised in Yakutia. Since childhood, she loved airplanes and dreamed of working at the airport. The dream came true: Tatiana was offered a position in the aviation meteorological center of Yakutsk, where she worked for 15 years.

Then Tatiana moved to live in Finland. In a foreign country, it was not easy at first: she had to learn the language, look for a job.

"I attended language courses, then to practical classes, worked as a kitchen worker for free to receive benefits. But it never scared me. Loneliness was scarier," said Tatiana.

Now our heroine is 59 years old. She raised her daughter, learned the language, overcame all the difficulties and was able to get a prestigious job.

"Here, as probably in any country, it is very important to have a job. For more than 10 years, I have been working for a large, well-known company that has branches all over the world. I'm an electronics assembler. I had to forget about meteorology and retrain. The company I work for is engaged in the production and testing of special construction equipment, " Tatiana said.

Life has returned to a stable course. It seemed that all the problems were over. Tatiana began to make plans and dream of grandchildren. But suddenly everything turned upside down.

Two years ago, Tatiana fell ill. It all started with blisters and a red rash, accompanied by severe itching. At first, she was sent to a dermatologist, although Tatiana understood that it was not an allergy,   “I felt something went wrong. My hemoglobin began to drop, it became difficult to climb the stairs, my muscles were very sore. A year ago, after a comprehensive examination, I was diagnosed with myelofibrosis. “ Tatiana can defeat disease only with a bone marrow transplant. To do this, she needs the closest possible genetic donor.

And, alas, so far, no potential donor in the world is suitable for her.

The only hope is if her genetic twin reads Tatiana's story and decides to join the Registry.

We strive to tell the story of Tatiana to as large an audience as possible, so we publish it in the media, in our social networks, in chats with our partners.

Dozens of people from different cities have already responded to our call to join the Registry. And we are sure there will be even more of them!

Thank you for helping to make Tatiana's healing possible!

Each of your donations is an opportunity to pay for the adding several new donors to the Registry’s database of bone marrow donors. Perhaps Tatiana's savior will be among them.

If you are moved by this story, please share it with your family, friends and work colleagues. If they follow your example and make a donation to attract new donors, the chances of Tatiana and hundreds of other patients will increase significantly.

 Let's rid the world of leukemia together!

Tatyana-2
Tatyana-2
Tatyana-3
Tatyana-3

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Happy New Year!
Happy New Year!

Dear friends, we wish you a Happy New Year and Merry Christmas!

Let distress and sorrows remain in the past! Let only success and happy moments await us in 2021!

The year 2020 became a test for all of us! Covid19, lockdown, natural disasters and crises have tested our strength. And it united us even more!

Thank you, dear benefactors, for being with us! Thanks to your financial help, we were able to switch to online mode and help save the lives of patients with leukemia!

During the pandemic, we completely switched to remote recruitment of donors. To join the Registry, it is now enough to fill out a questionnaire on our website, then receive documents and cotton swabs by courier for getting a smear to determine compatibility parameters, and then send a sample by mail to the Registry.

The Karelian Registry has grown by 190 potential donors, and we have received 62 requests for donor search from around the world.

In seven cases, donors from our Registry turned out to be compatible with patients, but were not selected by clinics for bone morrow cell donation.

Thanks to the fact that the whole world has moved online, we have become closer to our benefactors, partners and beneficiaries:

  • Conducted online concerts in support of bone marrow donation.
    • Organized marathons to raise funds for the Registry’s development.
    • Developed our social media networks and YouTube channel.
    • Participated in grant competitions and specialized conferences.
    • Found new friends and partners

All this gives us inspiration for 2021!

We have ambitious plans:

• Launch of a new website of the Registry.

• Launch of a powerful information campaign and a series of events to attract new bone marrow donors.

We hope to increase the Registry by 2000 people in 2021!!! More potential donors - more chances to save the life of a particular patient!

In the implementation of these big plans, we will need your help and support more than ever!

Let’s rid the world of leukemia together in 2021!

Our new donor Victoria
Our new donor Victoria
Our new donor Oksana
Our new donor Oksana
Our new donor Ekaterina
Our new donor Ekaterina

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#WMDD2020
#WMDD2020

Dear friends, we congratulate you on the World Day of Bone Marrow Donors!

The holiday has been celebrated since 2015, bringing together 106 organizations from 59 countries and 37 million bone marrow donors.

This is your and our holiday, dear benefactors! Thanks to your donations, the Registry recruits new bone marrow donors and pays for their examination. You are our pillars and foundation!

World Bone Marrow Donor Day is a celebration for hundreds of thousands of leukemia patients who have recovered thanks to donors and who hope, hope that they will find a matching donor and defeat the deadly disease. The Holiday gives hope for life! And we together with you give them such hope!

On the eve of the World Bone Marrow Donor Day, we have traditionally organized a campaign to recruit new donors.

Even in the midst of the COVID-19 pandemic,  we mastered to hold remote recruiting campaigns. We value the health of our volunteers and donors, therefore, we take precautions: we offer donors to fill out questionnaires on our website, and if there is no medical withdrawal in the given information, we send them original documents and sets of sticks for taking a swab from the oral cavity by courier or mail.

Since almost all organizations in Russia resumed their work in August and September, we invited them to participate in our campaigns and encourage their employees to donate. There are already interim results: employees of the regional TV channel joined the Registry and made a news report about it. We are also negotiating with several other companies.

At the same time, we are actively engaged in non-public work: we conduct additional medical examinations of donors who joined the register before 2015 and work on requests to search for donors from other countries. By the way, over the years we have received 47 requests for bone marrow donors, and 42 of them from other countries. In August our donor passed the necessary tests, as he was compatible with a patient from another country. Perhaps, he can be the one who will save the patient's life. We hope that nothing will prevent him from doing this. Such stories are inspiring!

In conclusion, we would like to thank you for your support! Thanks to your donations, the Registry continues to grow!

And together we are helping to rid the world of leukemia!

p.s. 

You can help us to improve our work not only with your financial assistance, but also with your feedback about our activities.

Please tell us:

  • What would you like to know about us? What should we talk about in our reports?
  • Do you follow us on social media? If so, can you name them?
  • Would you like to help the Registry not only financially, but also as a volunteer?

To respond, please follow the link: https://forms.gle/PByBEmRZneChHACv6 

You can do this anonymously if you want.

Lecture about Registry
Lecture about Registry
1
1
Our Donor
Our Donor

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Organization Information

Karelian Registry of unrelated donors of hematopoietic stem cells

Location: Petrozavodsk - Russia
Website:
Facebook: Facebook Page
Project Leader:
Yuri Ioffe
Petrozavodsk, Russia
$36,371 raised of $45,000 goal
 
392 donations
$8,629 to go
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