In 2011 died our mother in ALS disease. There are appr. 500 000 ALS patients in the world. We started our organization to accelerate research to find a better treatment. We are meeting many patients like Charles in the video for which we bought an equipment that allow him to write from his eyes. ALS is a disease where patients get handicapped and with short live period. You can make a difference by giving a donation that will help the research team in Paris as well as an handicap center
There are around 500 000 ALS patients in the world. ALS, also known as Lou Gehrig's disease, is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe. Currently there is no known cure or treatment that halts or reverses the disease.
The project focuses on two parts: 1) donate to a handicap center in France to support patient with material equipment 2) donate to the research team in Paris. The aim is to find molecular pathways to slow or block this deadly motor neuron degeneration. The team work on a large and ambitious project that aims to understand the disease contribution of the immune system. The team has demonstrated they could influence ALS development in an animal model.
The research can focus on innovation thanks to the donation we provide them. Innovation is key to work on many different aspects of the disease and finding a more creative approach to research. Helping the handicapped center is also key to ensure we can facilitate the daily life of patients and ensuring they can manage daily activities like communicating. As the disease progress, many people like my mother lost their voice and the possibility to write.