{"cache_age":"3600","width":"920","description":"Changes in a gene called CACNA1C, which is highly expressed in the brain and the heart,  cause incredibly complex and variable symptoms - some of these can be life limiting. There are limited treatment options. This project supports the running of a worldwide patient registry for this rare genetic disease. It will allow researchers the ability to advance their knowledge of the condition and develop a means for prevention and treatment.","html":"<iframe src='https:\/\/www.globalgiving.org\/dy\/v2\/oembed\/?format=html&url=https%3A%2F%2Fwww.globalgiving.org%2Fprojects%2Fglobal-patient-registry%2F' style='width:920px;height:613px;border:0;'><\/iframe>","type":"rich","title":"Lifesaving Global Rare Disease Patient Registry on GlobalGiving","thumbnail_url":"https:\/\/www.globalgiving.org\/pfil\/56113\/pict_large.jpg","version":"1.0","height":"613"}