Chelsea Hutchison Foundation

The Chelsea Hutchison Foundation grants comfort and hope to those affected by epilepsy through providing monitoring resources, vital information, and a safe haven for conversation and community. Our main goal is to raise awareness of SUDEP and to make a positive difference in the lives of individuals and families living with epilepsy. We raise funds to provide education about SUDEP and to provide seizure response dog grants and movement monitors that help to protect against SUDEP. We stay up-to-date on current trends in medical technology in order to be able to provide the most effective devices as they become available. We respect the value and quality of life of every person living wi...
May 1, 2016

Update from The Chelsea Hutchison Foundation

This project is off to a slow start, but we are hopeful things will soon turn.  When funded, this project will help many families dealing with the stresses and issues of seizure disorders.  A weighted blanket is an occupational therapy aid that provides sensory input and comfort, as well as, aiding in sleep in most individuals.  

These blankets are custom made for each recipient and personalized with their name if so desired.  We appreciate your support of this project and hope to be able to provide weighted blankets in the near future.

The Chelsea Hutchison Foundation grants comfort and hope to those affected by epilepsy through providing monitoring resources, vital information, and a safe haven for conversation and community.

Feb 23, 2016

Update from The Chelsea Hutchison Foundation

It is time for another update from The Chelsea Hutchison Foundation on this project.  I can't tell you how much we appreciate your support of our work and you are truly making a difference in the lives of those who struggle.  We receive 10-15 requests a week for help and the support we receive from you helps us keep up with requests.  

To date, we have provided 86 grants for seizure-response dogs.  The photo shown here are for those in line for grants.  We work tiredlessly to be able to support these families.  The stories we hear and the feedback we receive is amazing!  These furry friends make such a big difference!!!

"My service dog's name is Lizzy.  She's changed my life because her pre-alert makes it to where I can do MUCH more, every day.  She alerts me at work, gets medication and doesn't hesitate to change my life every day."  (Margo L. - California.

"What an amazing difference our seizure-response dog Alpha has made in our lives.  For my son, he is a constant companion, protector, and buddy that gives him independence.  F or us as parents, he gives us peace of mind.  Beyond that, he brings us laughter and joy on a daily basis that makes us all a little happier."  (Jennifer R. - Colorado)

"Crosby has helped Thomas live a life without the fear that no one is there if he has a seizure.  Crosby is always by his side, morning, noon and night!"  (Susan D. - Florida)

February 8, 2016 was International Epilepsy Awareness Day and in honor of this date, we have been featuring individuals who have epilepsy and their journies.  Click here to read what this is like for some very special people!

We have some exciting events coming up.  Fly Me to the Moon is May 7th in Lone Tree, CO - our 7th Annual Spring Gala.  The 1st Annual Epilepsy Awareness Day at Elitch Gardens is June 4, 2016 in Denver, CO.  This event was inspired by Epilepsy Awareness Day at Disnleyland which takes place in November in Anaheim, CA.  Our hope is to be able to send families to participate in both events this year.  Details are coming together for our 7th Annual STOMP Out Epilepsy and SUDEP Awareness Walk/Run this September.  It is possible that we will have orchestrated STOMPS in 12 different locations across the United States.  We'd love to see you at any of these events!

Here are links to a few smaller projects we have on GlobalGiving that we thought you might be interested in.

A Seizure-Response Service Dog for Zarek

A Seizure-Response Service Dog for Chelsi

A Seizure-Response Service Dog for Chelsea

Thank you again for your continued support.  

 

Feb 22, 2016

Update from The Chelsea Hutchison Foundation

It is time for another update from The Chelsea Hutchison Foundation on this project.  I can't tell you how much we appreciate your support of our work and you are truly making a difference in the lives of those who struggle.  We receive 10-15 requests a week for help and the support we receive from you helps us keep up with requests.  We currently have 25 requests in hand.

To date, we have provided over 330 life-saving movement monitors.  The photo shown is that of a SAMiAlert monitor in place.  Should this child experience unusual movement or a seizure during the night, the camera will record the episode and alarm this parents.  You can't even believe the peace this brings to a Mother, Father or caregiver.  It is hard to keep up with the requests.  We work tiredlessly to be able to support these families.  The stories we hear and the feedback we receive is amazing!  

"The Chelsea Hutchison Foundation has made a great impact on our life. By providing a sleep moment monitor for my son, it has given my son more independence. They are dedicated to raising awareness . Through the foundation we were given the opportunity to go Disneyland during the Epilepsy Awareness Day. We met so many people and now have life long friends all thanks to CHF."  April L. 

"This organization helped fund our SAMi alert system for my daughter with intractable epilepsy. We couldn't afford a system like this without this wonderful organization! After getting the system I was able to notify her doctor she was having hour long seizures during her sleep. Without this system we would have never known! Thanks so much Chelsea foundation!"  anonymous

"The Chelsea Hutchison Foundation has been wonderful with helping on advice for our son (9). They also were amazing with working a way for us to receive a SAMi video monitor. This has been an extreme help, not only did they assist with our costs involved, but more importantly helped with peace of mind and as parents we are able to sleep better at night, in the event our son has a seizure. We are greatful for their assistance in memory of their daughter. Thankful for all they do!  Annmarie L.

"This is a family-based foundation that was created after the loss of a beautiful girl (their daughter) named Chelsea. They have made it their mission and Chelsea's legacy to ensure no more lives are lost to SUDEP. During the time when I had recently given up my full-time employment (and bread-winner role in my household which made the medical bills that much more overwhelming) to care for our infant daughter with epilepsy, The Chelsea Hutchison Foundation subsidized the cost of Emfit, a movement monitor to detect seizures during my daughter's sleep. This not only took away from some financial stress, but provided an invaluable gift of peace of mind so I was able to sleep at night once again."   Juliann B.

February 8, 2016 was International Epilepsy Awareness Day and in honor of this date, we have been featuring individuals who have epilepsy and their journies.  Click here to read what this is like for some very special people!

We have some exciting events coming up.  Fly Me to the Moon is May 7th in Lone Tree, CO - our 7th Annual Spring Gala.  The 1st Annual Epilepsy Awareness Day at Elitch Gardens is June 4, 2016 in Denver, CO.  This event was inspired by Epilepsy Awareness Day at Disnleyland which takes place in November in Anaheim, CA.  Our hope is to be able to send families to participate in both events this year.  Details are coming together for our 7th Annual STOMP Out Epilepsy and SUDEP Awareness Walk/Run this September.  It is possible that we will have orchestrated STOMPS in 12 different locations across the United States.  We'd love to see you at any of these events!

Here are links to a few smaller projects we have on GlobalGiving that we thought you might be interested in.

A Seizure Response Service Dog for Zarek

A Seizure Response Service Dog for Chelsi

A Seizure Response Service Dog for Chelsea

Thank you again for your continued support.  

 

 

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