HUNTER'S HOPE FOUNDATION WAS ESTABLISHED TO ADDRESS THE ACUTE NEED FOR INFORMATION AND RESEARCH WITH RESPECT TO KRABBE DISEASE AND RELATED LEUKODYSTROPHIES. IN ADDITION, WE STRIVE TO SUPPORT AND ENCOURAGE THOSE AFFLICTED AND THEIR FAMILIES AS THEY STRUGGLE TO ENDURE, ADJUST, AND COPE WITH THE DEMANDS OF THE FATAL ILLNESSES. ACCORDINGLY OUR MISSION IS FOUR FOLD:- TO BROADEN PUBLIC AWARENESS OF KRABBE DISEASE AND OTHER LEUKODYSTROPHIES THUS INCREASING THE PROBABILITY OF EARLY DETECTION AND TREATMENT.- TO GATHER AND PROVIDE CURRENT, FUNCTIONAL INFORMATION, AND SERVICE LINKAGES TO FAMILIES OF CHILDREN WITH LEUKODYSTROPHIES.- TO FUND RESEARCH EFFORTS THAT WILL IDENTIFY NEW TREATMENTS, THERAPI... read more HUNTER'S HOPE FOUNDATION WAS ESTABLISHED TO ADDRESS THE ACUTE NEED FOR INFORMATION AND RESEARCH WITH RESPECT TO KRABBE DISEASE AND RELATED LEUKODYSTROPHIES. IN ADDITION, WE STRIVE TO SUPPORT AND ENCOURAGE THOSE AFFLICTED AND THEIR FAMILIES AS THEY STRUGGLE TO ENDURE, ADJUST, AND COPE WITH THE DEMANDS OF THE FATAL ILLNESSES. ACCORDINGLY OUR MISSION IS FOUR FOLD:- TO BROADEN PUBLIC AWARENESS OF KRABBE DISEASE AND OTHER LEUKODYSTROPHIES THUS INCREASING THE PROBABILITY OF EARLY DETECTION AND TREATMENT.- TO GATHER AND PROVIDE CURRENT, FUNCTIONAL INFORMATION, AND SERVICE LINKAGES TO FAMILIES OF CHILDREN WITH LEUKODYSTROPHIES.- TO FUND RESEARCH EFFORTS THAT WILL IDENTIFY NEW TREATMENTS, THERAPIES, AND ULTIMATELY, A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES.- TO ESTABLISH AN ALLIANCE OF HOPE THAT WILL NOURISH, AFFIRM, AND CONFRONT THE URGENT NEED FOR MEDICAL, FINANCIAL, AND EMOTIONAL SUPPORT OF FAMILY MEMBERS AND THOSE AFFLICTED WITH LEUKODYSTROPHIES.
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