Apr 19, 2021

Accessing in-person quality healthcare mid-Covid

Dear Supporters,

With the onset of COVID-19, physically accessing quality healthcare for children with Down syndrome became challenging. However in this very quarter, we were able to see our many of our children access quality healthcare services in-person, thanks to your support. Specifically, the major highlights include:

  • 66 children benefited from referrals KDSP made to the Down syndrome Clinic at Aga Khan University Hospital (AKUH) where they were able to receive appropriate medical advice from renowned specialists 
  • 6 children’s medical tests were facilitated at AKUH through KDSP’s referral
  • 3 children’s life-saving procedures were performed at AKUH, facilitated through KDSP
  • 15 children benefited from the Developmental Pediatrics Consulting Clinics at KDSP led by Dr. Sidra, a renowned Developmental Pediatrician.

Some stories from the field

Yourasha is a 1.8 year old child with Down syndrome whose parents are daily wage earners and recently arrived at KDSP with their daughter concerned about her physical health. Through KDSP’s guidance, they received a chance to consult Dr. Salman at AKUH for a special free of cost appointment that is available for all families who come to KDSP for the first time and have not had any medical screening done prior. Dr. Salman was able to guide the parents about Yourasha’s condition and recommend visits to other specialists. Her mother shares, “The services that we received from AKUH were excellent. Dr. Salman and Dr. Babar were very understanding and listened to our concerns carefully. Thank you KDSP for showing us the way to the best healthcare providers!”

Mannat is a 2.5 year old child with Down syndrome who has recurring pneumonia and needs regular check-ups at AKUH to make sure her lungs are working well as they should. KDSP has supported her treatment at AKUH and she gets to avail the reduction in consulting fees with all consultants who are part of the Down Syndrome Clinic panel. In the words of her mother, “Thank you! We greatly appreciate KDSP’s services and Mannat is doing great now, thanks to AKUH and KDSP’s support.”

Ali is a 5 year old boy with Down syndrome who has had several visits to AKUH recently because of his ill health. He appears to have complexities in his heart and lungs for which he has had consultations with specialists at AKUH as well as tests such as an Echocardiogram and BEP which have been sponsored by KDSP. The child is now in a stable condition with medicines and has even started coming in for early therapies (physical, occupational, speech) to KDSP. His father shares “All appointments were very smooth and we saved a lot of precious time. The doctors were great and extremely helpful with their guidance. Much appreciation for KDSP and its partner organizations.”

Sarim is a child associated with KDSP who came over to have his checkup done by Dr. Sidra. His mother shares, “Thank you KDSP for being extremely supportive. Sarim is doing better after being examined by Dr. Sidra and taking the medicines that she prescribed him.”

 

Thank you for all the generous support you have extended towards providing affordable, quality healthcare to children with Down syndrome. We look forward to your continuous support in helping children with Down syndrome lead healthy and fulfilling lives!

 

Love,

Team KDSP

Apr 19, 2021

Providing basic sustenance mid-Covid

Our very own Ayaan
Our very own Ayaan

Dear Supporters,

With the onset of COVID-19, providing basic food and home supplies for children with Down syndrome and their families became essential. KDSP continued these efforts despite the lockdown being uplifted months back. In this quarter, through your generous contributions KDSP was able to support 40+ families with monthly Easypaisa (digital service) cash transfers and grocery bag distributions.

One of the families that has been receiving support is of Sanaullah’s. He resides in an impoverished area in Korangi in a small home with 5 siblings and a father who is not very supportive. The mother makes multiple efforts to make ends meet and with Sanaullah having additional needs, it becomes extremely challenging for her. With KDSP playing its small part through the monthly cash transfers and grocery bag distributions (besides the other services being provided to Sanaullah at KDSP), it gives Sanaullah’s mother some comfort to run the house daily. The cash transfers helps her pay utility and other essential bills while the monthly grocery bags are provided to her doorstep by a KDSP representative. In her words “I am grateful for all the financial, emotional and informational support that I have continued to receive from KDSP. I can now envision a brighter and stronger future for Sanaullah and am optimistic that one day his dreams will come true.”

Another child Ayaan’s family also benefits through the support. In the words of his mother “We receive grocery bags at our doorstep every month very respectfully. Since grocery is not our worry anymore, we are able to focus on our children and can engage them in different activities. I cannot thank KDSP enough for going out of the way to help its Family Network in such troubling times.”

“I was unaware of the technicalities for this Easypaisa cash transfer service - I did not know how to avail it initially. KDSP representatives very patiently guided me and helped me avail this service. They understood my personal issues and always got back to me with effective solutions”, shares mother of a young girl Mariam.

 

Thank you for the generous support you have extended towards providing monetary support to children with Down syndrome. We look forward to your continuous support in helping children with Down syndrome and their families sustain basic needs, especially as the pandemic stays.

 

Love,

Team KDSP

Delivering grocery bags to parent of a child
Delivering grocery bags to parent of a child
Delivering grocery bags to caretaker of a child
Delivering grocery bags to caretaker of a child
Apr 17, 2021

Back to their second home - KDSP

Child during physical therapy session
Child during physical therapy session

Dear Supporters,

In this very quarter, we were able to welcome our beautiful children at their second home i.e. KDSP to avail one of the most essential services consisting of physical, occupational and speech therapies. The major highlights of this quarter made possible through your continued patronage included:

  • In-person therapy clinics resumed at 50% capacity with 233+ physical, occupational and speech therapy sessions conducted weekly. Some sessions are also virtual given ongoing COVID-19 situation.
  • KDSP presented its paper ‘The Virtual Shift: Early Childhood Intervention Therapies for Pakistani Children with Down Syndrome During COVID-19’ in the 36th Annual Pacific Rim International Conference On Disability & Diversity – Virtual as well as Aga Khan University Hospital’s 23rd National Health Sciences Research Symposium.

Some words from our families and partners:

“I have seen great improvement in Saeed - his walking and grip has improved a lot now that we are coming in physically for therapy”, shared Mother of Saeed

“I have seen greater improvements in Hassan and it is wonderful to connect with the therapists in-person. I feel safe coming to KDSP seeing the strict SOPs that are followed here and the excellent crowd control”, shared Mother of Hassan

“An excellent case study that shows how the Karachi Down Syndrome Program pivoted to providing remote Early Childhood Intervention to children with Down syndrome during COVID-19, using audio and video call tele-therapy in one-on-one sessions” – exclaimed the Chair of Online Learning and Technology, Pacrim ’21

 

Thank you for all the generous support you have extended in helping us provide early therapies to children with Down syndrome. We look forward to your continued support in helping these children reach their developmental milestones timely!

 

Love,

Team KDSP

Child and parent preparing for therapy session
Child and parent preparing for therapy session
Child practicing climbing during physical therapy
Child practicing climbing during physical therapy
All smiles after an occupational therapy session
All smiles after an occupational therapy session
Welcoming our beloved children back at KDSP
Welcoming our beloved children back at KDSP

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