Aug 16, 2021

Healthcare & COVID-19

Our very own Hameedullah.
Our very own Hameedullah.

Dear Supporters,

With the onset of COVID-19, it had become increasingly clear that certain groups were at higher risk of severe illness if they became infected with the virus. Individuals with Down syndrome are a vulnerable population as it is and are therefore required to take extra safety precautions. According to The Annals of Internal Medicine, a large study in the United Kingdom, people with Down syndrome who get COVID-19 are four times more likely to be hospitalized—and ten times more likely to lose their life.

To facilitate the children during this time, KDSP partnered with an online medical store ‘Dawaai’ to offer discounted medicines, tests and consultations to them and their families. Dawaai being an innovative pharmacy-led healthcare group aims to provide integrated pharmacy services with convenience and quality. 

Mother of Fatimeh availed Dawaai’s service and was very pleased with her experience. She gave her feeback in the following words, "The partnership with Dawaai was a great initiative by KDSP. The service was quick without any missing items which often happens with online purchases. They have incredible discounts and some ongoing exciting lucky draw schemes with fun prizes. My daughter and I have our fingers crossed as we are placing another order and hoping to win some prizes!"

The health and well-being of children with Down syndrome has always been KDSP’s top priority, increasingly more considering the situation at hand. KDSP’s partnership with the Aga Khan University Hospital (AKUH) has proved to be highly advantageous in terms of support and cooperation, with the following highlights for the past quarter:

  • 26 children benefited from referrals KDSP made to the Down syndrome clinic at AKUH where they were able to receive appropriate medical advice from renowned specialists
  • 6 children benefitted from sponsored consultations at AKUH through the donations made to KDSP
  • 11 families benefitted from the free Behavior Therapy training for parents of individuals with Down syndrome conducted by Aga Khan University Hospital (AKUH).
  • 12 individuals benefitted from life-saving and enhancing surgeries and medical procedures e.g. cardiac and intestine obstruction surgeries.

Mother of Usman expressed, "I felt at ease finding out that my son's consultation at AKUH was free of cost, thanks to the AKUH-KDSP partnership. It's a relief knowing that KDSP will always be supportive wherever my child's health is concerned".

Moreover, a Pediatric Cardiology Clinic was also hosted by KDSP in June that conducted clinical screenings of 15 children with Down syndrome along with counselling for parents regarding congenital heart diseases.

Thank you for all the generous support you have extended towards providing affordable, quality healthcare to children with Down syndrome. We look forward to your continuous support in helping children with Down syndrome lead healthy and fulfilling lives!

Love,

Team KDSP

Consultation with Developmental Pediatrician
Consultation with Developmental Pediatrician
Consultation with Pediatric Cardiologist at KDSP
Consultation with Pediatric Cardiologist at KDSP

Links:

Aug 15, 2021

Setting Back Into Routine

Child participating in his therapy session
Child participating in his therapy session

Dear Supporters, 

Last quarter, our beautiful children returned to their second home – KDSP, to avail their assigned therapies. Due to Covid-19 and government restrictions, organizations still continue to operate on 50% capacity. Feedback from parents however made the Early Childhood Intervention team realize the importance of in-person therapies and how they are more effective compared to virtual sessions. Due to the widespread administration of Covid-19 vaccines in Pakistan, the team feels relatively more relieved to observe the situation settling. The team has been able to conduct 290+ sessions in person and virtual. Therapists at KDSP absolutely love the sight of sweet little children coming in with varying moods to attend their sessions and cannot wait for therapies to resume fully in person.

Father of Yashra expressed, "Yashra had difficulty in supporting her back but within 3 months at KDSP, she had started walking. Yashra joined KDSP during the pandemic and at the time, I was out of work. I am so grateful for all the support KDSP extended, through financial aid, ensuring Yashra could attend all her therapy sessions. I am extremely dedicated to her development and KDSP has taught me a lot". 

Research shows that children with Down syndrome (DS) are at a higher risk for hearing loss as compared with their typically developing peers. Incidence can be as high as 78%, with a majority exhibiting conductive hearing loss. Therefore it is essential to screen for hearing difficulties so speech therapy can be effective. Audiologists have the education and training to determine the presence of any hearing loss and offer treatment options. As part of KDSP's partnership with the 'Ziauddin College of Speech Language & Hearing Sciences (ZCSLHS)', audio logical assessments for these children were introduced April onwards at subsidized rates. This was a great initiative introduced by the team as it resulted in addressing issues related to the hearing capacity of children with Down syndrome.

Family-centered practice is gaining popularity worldwide and parent training programs are being used to shift focus from the traditional model to the ideal family-centered model. Free of cost Occupational and Speech therapy trainings for parents of individuals with Down syndrome were conducted by Aga Khan University Hospital (AKUH) that benefitted 11 families. The team at KDSP strongly believes that parent participation increases effectiveness of therapy sessions and accelerates the progress of the child.

As this quarter comes to an end, we would like to thank you all for the generous support and we eagerly look forward to your continued patronage in helping these children reach their developmental milestones timely!

Love,
Team KDSP

Family waiting for child's therapy session
Family waiting for child's therapy session
Aug 13, 2021

Calming The Waves For Our Family Network

A child enjoying and beaming with joy at KDSP
A child enjoying and beaming with joy at KDSP

Dear Supporters,

When we metaphorically say that KDSP serves as a 'KASHTI' (boat) for our families, we truly live by it - so even though the waters may be rough right now, we have and will continue to sail with the families throughout, eventually helping them reach the shore safely. Hence KDSP’s monthly monetary support initiatives have been a big support for the families in need.

In this quarter, 32 families were helped through the monthly digital cash transfers while 77 households were supported through monthly grocery bags, which consist of high-quality staples to always have food on their table. Items like soap were also included when possible, so as to not have their personal hygiene compromised. Expenses of items which could not be included in these bags, like medicines, any fee or expenses of other necessities, were met through digital cash transfers which the families received from any convenience store near their home through an e-payment platform called 'Easypaisa'.

The monthly grocery bags and cash transfers received through KDSP help us balance our expenses. We are grateful to God for making KDSP a channel to bridge the gaps in our day-to-day expenses. Even though Sami’s father works really hard the entire month, his earning is not enough to make ends meet. Due to the ever-growing inflation and additional expenditure, it falls short, especially during the COVID-19 lockdown. The digital cash transfers and grocery bags provided by KDSP help fulfil our family’s needs and put us at ease. Abdul Sami’s school fee is also covered via the amount received through Easypaisa. We are extremely satisfied with the service, and can’t be grateful enough to KDSP.” - expressed Mother of Sami.

Father of Omer, whose family was severely hit by the pandemic expressed appreciation for KDSP and said, "We have been receiving grocery bags since the lockdown and it has served as a pillar of strength and support for our household, and family since then. We are forever indebted to KDSP for their help, and can only offer gratitude in return."

Parent of Maimoona, emotionally conveyed his love, “With the current economic situation and the ongoing pandemic, KDSP has very generously offered support through the monthly ration drive. Last year when COVID-19 first hit, we were not even sure if we would have lunch or dinner on the table for the next day; KDSP provided us with grocery bags and continues to do so which is honestly a massive help in these trying time. I cannot thank KDSP enough for being there for us like a family, at a time when we could see no glimmer of hope.”

With your generous support, we are certain KDSP will be able to continue putting food and other essentials on so many such tables, and we shall together keep providing relief to the families of individuals with Down syndrome in every phase of their lives.

Love,
Team KDSP

Grocery bag being given to a father
Grocery bag being given to a father
A caretaker being given grocery bag
A caretaker being given grocery bag

Links:

 
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