Sep 7, 2021

Let's Help Children With Cancer - Report 2021-09

Since its establishment 17 years ago, the Foundation‘s success is based on sponsors and volunteers‘ enthusiasm. Only with the help of others and financial support we can contribute to a more successful treatment of our little patients. Because of our supporters, together with doctors we can ensure the most advanced treatment regimens. We can also finance research that is not conducted in Lithuania. We can provide the necessary support for families or a cozy home space for a temporary stay with their loved ones at Rugute’s Home. These things sometimes are what the whole world of a little patients consists of.

Thanks to your kindness, the financial support of $ 44,055.33 was transferred to the Foundation during the months of June, July, and August. The Foundation's project "Let's Help Children With Cancer" published on the GlobalGiving platform is not final. The Rugute Foundation, which has helped children recover from the treatment in the hospital, will soon take care of and provide support to those who have yet to be diagnosed with an oncological illness. For a number of years, the goals and needs of the Foundation have not changed, only the children being treated are changing.

For these past few years, the Foundation has been facing a growing need for medicine, research and medical supplies. Pediatric oncohematologists are becoming more and more confident in using the medication provided by the latest treatment protocols. Although such drugs are often not supplied or compensated in Lithuania, they are successfully used to treat children in other countries. Doctors aim to provide advanced genetic testing to as many children as possible, with the most accurate individualized treatment possible based on detailed information on tumor genetic mutations and oncogenes. Most genetic tests carried out in foreign laboratories are not financially compensated by our country. There is no doubt that next-generation medication, advanced research, advanced nursing and medical facilities lead to greater children survival rate and long-term remission. It is a massive ray of hope for children who have been diagnosed with an oncological illness.

Despite the medical support, it is equally important to provide charity to families during the child’s treatment, as the child’s oncological illness worsens the family’s financial situation. There is significant reduction in income (hospitalization of a child requires one parent to stay in the hospital for a long-term, making them unable to work) and significant increase in family sustainability costs. Other family members try to spend as much time as possible with the ill child, so if the family lives far away from the city where the treatment facility is located, more money has to be spent on travel expenses. Hospital care is only provided to the child being treated, so the person caring for the child has to provide food at his or her own expense. These problems burden the family on top of a serious illness and treatment, so we try to alleviate it as much as we can.

The treatment of oncological illnesses with cytostatic medication often has a strong side effect, and the drugs needed to reduce them are not always compensated by the state. Patients also have to purchase various nursing supplies at their own expense. With the Foundation‘s help, families can purchase essential supplies for nursing, food, can cover travel and other expenses as needed, trying not only to improve the physical condition of their children, but also to improve their emotional, psychological and spiritual condition, which influence overall treatment success and recovery.

During the months of June, July and August, we used your support to provide the financial support of 8,700 euros to families. We also helped them purchase medicine, which is not available in Lithuania, for the amount of 4,356 euros. We paid for genetic testing of 3 children – the total amount was 9,075 Eur. We bought 5 central venous catheters – 1,787 euros. To alleviate mouth ulcers, which is incredibly uncomfortable physically and psychologically, the Foundation purchased AftaClear mouthwash, which ‘s cost was 376 Eur.

In conclusion, the Foundation’s ability to help families affected by illness is highly related with the kindness and help of the people who support it. Just as the saying goes: There’s no “I” in team. We are enormously grateful to everyone who decides to join us on this path and help us to help others

Jun 9, 2021

Let's Help Children With Cancer - Report 2021-06

In March, April and May of 2021, we continued the foundation's mission to help children with oncological illnesses. We are grateful to all who contributed to the $ 1777.29 support for children with oncological illnesses through the GlobalGiving system during the months from March to May. Only with the help of financial support we can contribute to a more successful treatment of our little patients. Together with doctors we can ensure the most advanced treatment regimens. We can also finance research that is not conducted in Lithuania. We can provide the necessary support for families or a cozy home space for a temporary stay with their loved ones at Rugute’s Home. We divided the amount of $ 1777.29 into three purposes.

One part of the received donations was used to give Bazile the opportunity to participate in a therapy program at the Dolphin Therapy Center. From the very beginning of the fight against oncological illness, the most anticipated word from the doctor's lips is "remission". Remission means the end of unpleasant and painful procedures, returning home, to a normal childhood or adolescence. Unfortunately, it often happens that after overcoming the worst - oncological - illness, children are accompanied by complications from the treatment they had received. The children then have to overcome the unexpected trials again again, which descend from the treatment they had experienced in the past. Bazile is one such child.

Another part of donations was used to purchase specific medications that are needed by individual childhood cancer patients but are not state-covered or not supplied in Lithuania at all. In order to ensure that the proper treatment is administered to the little patient Deimantas, the Fund bought Temozolomide 100 mg. During these months the Fund also paid 3,025.00 Eur for genetic screening of 1 child. The genetic screening and testing of young cancer patients in one of the most modern laboratories of Europe is a continued project, launched by the Fund in 2015. Its aim is to help Lithuanian doctors to detect the histology of the tumor, to foresee the progress of the illness and to individualize the treatment.

On behalf of our most special children (our greatest fighters), we would like to express, once again, our sincere thanks for your donations. You are very important to us, because you enable us to help the ones who need our help today, because they may not have a bright tomorrow.

Mar 10, 2021

Let's Help Children With Cancer - Report 2021-03

During the months of December, January and February, Rugute continued its activities and provided various support to children with oncological illnesses and to families who raise them.

We are grateful to all who contributed to the $ 3693.04 support for children with oncological illnesses through the GlobalGiving system during the months from December to February. Because of these funds, we bought central vein catheters (4 pcs.) and 360 pcs. of needles suitable for them for 2152 Euros. The Fund constantly ensures that long-term central vein catheter insertion procedures are performed to children with oncological illnesses when needed, which significantly improves the psychological well-being of young patients during the treatment and helps to avoid pain and multiple peripheral catheter insertion procedures. The benefits of such catheter are described by a girl with oncological illness: “When I got sick, every needle-prick seemed like the end of the world. Later it became more difficult to endure the catheter insertion procedures, as the veins from all chemotherapies had become very weak and brittle and felt like burned. A long-term catheter greatly improved the treatment. The nurses were able to inject medication while I was sleeping and I didn't feel anything. I was able to move completely freely.”

During these past few months, we also continued our support to a ten-year-old girl with melanoma. She is the first one in Lithuania to battle melanoma, an oncological illness that is very rare in children. It is for this reason that medicine to treat pediatric melanoma are not included in the list of reimbursable medication. For the treatment of Emilija, we bought the medicine Mekinist 2 mg N30, which costs 3055 Euros.

We would like to give a loud and sincere THANK YOU to all of our loyal and loving donors on GlobalGiving. Children are getting better and happier because of you. They suffer less pain and experience more positive things than they would experience without your help.

 
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