Asociacion Sindrome STXBP1

Org #53558 Vetted since 2018
2016
year founded
$2,500
raised on GlobalGiving
0
years fundraising
0
projects funded

Mission

The Association has the following purposes: A. To raise awareness to society about STXBP1 gen mutation disease, with epileptic encephalopathy and/or global development delay, both motor and cognitive. B. To provide support, information and advice to affected families. C. To promote and give financial support to investigation projects aimed to search early diagnosis, investigation projects to improve quality of life and comfort of affected people; and investigation projects which objectives are search of an effective treatment to reduce the disease symptoms and/or the cure. D. To promote and support professional training related to STXBP1 syndrome.

Project Leaders
Organization Information
C/ Aprestadora, 114, ESC. E, ATC 3
L'Hospitalet de Llobregat, 08902
Spain
+34 665 365 554

Bridge Registry   BRIDGE# 1834817262
Organization Information
C/ Aprestadora, 114, ESC. E, ATC 3
L'Hospitalet de Llobregat, 08902
Spain
+34 665 365 554

Bridge Registry   BRIDGE# 1834817262

Projects (0)

Project Reports

Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work.

WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.