Multiple Sclerosis Trust

The MS Trust's mission is to make a real difference for people with MS through the provision of information and professional education, by funding practical research and by campaigning for the improvement of MS services. We work to the highest possible standards and actively seek opportunities to work with other organisations to provide real benefit for people with MS.
Sep 1, 2015

We still need more MS Specialist Nurses

The MS Trust has been able to continue to supply accurate and vital information for the people directly affected by MS, their loved ones and the health professionals working in the field of multiple sclerosis.

MS Nurses are a skilled and scarce resource. We recently conducted some research and produced a report; “MS Specialist Nursing in the UK 2014: The case for equitable provision.” We have identified several examples of MS nurses introducing efficient working methods. These included:

  • Development of a protocol for home visits
  • A care pathway determined between local hospital and GP
  • Introduction of patient group education to give people newly diagnosed with MS an overview
  • MS Nurses discharging patients who are able to self-manage their MS with contact details of the MS specialist nurse service.

With the generosity of the MS Trust supporters we are able to develop and share our information for those affected by multiple sclerosis and provide vital education and support for MS specialists.

The 2014 MS Trust Annual Conference received 252 delegates (39 delegates attended courtesy of bursaries granted by the MS Trust.). The MS Trust Conference is the must-attend event for all health professionals working with people with MS. The conference provides an exciting programme covering the latest developments and research in treatments and therapies for all types of MS. There are a wide range of workshops delivered by experts aiming to give up to date, practical knowledge to those in the field. The conference also provides a great opportunity for health professionals to network together with others with an interest in MS.

Please view the MS Trust’s Annual Review online for more detail of how your money has helped us positively.

Links:

Sep 1, 2015

The value of listening

The MS Trust has been able to continue to supply accurate and vital information for the people directly affected by MS, their loved ones and the health professionals working in the field of multiple sclerosis.

Our Information Team have dealt with over 2,700 enquiries through the free enquiry service line and issued 60,000 books and factsheets. Your contribution helps to ensure that these services are able to run effectively.

The MS Trust has also continued to inform people through our ever developing website. Last year the MS Trust website received over 3 million web views. Our vibrant online community also provides a welcome forum for discussions and solidarity. Our Twitter followers are currently at 35,000 and our Facebook group at 6,000 members.

With the generosity of the MS Trust supporters we are able to develop and share our information for those affected by multiple sclerosis and provide vital education and support for MS specialists.

Please view the MS Trust’s Annual Review online for more detail of how your money has helped us positively.

Links:

Jun 3, 2015

MS nurses need our help, but we can't do it alone

Many people assume that MS specialist nurses are trained by the NHS. That is not the case. In fact, the majority of specialist MS training and development in the UK is provided by us – the MS Trust. The MS Trust’s education programme costs over £300,000 to run each year. 

Karen, Consultant MS Nurse “Since my specialist career began, the MS Trust has been a constant. From their outset they identified education of professionals as being key to improving patient care. The specialist education they continue to provide for nurses and therapists is unique. They engage with you, they listen to you, they know you. You’re not just another nurse; you are a person who matters, with views.”

Nikki, Clinical Nurse Specialist in MS “17 years ago there were less than 30 MS nurses, but even then I was able to attend MS Trust education events to support my clinical practice. This has been vital in enabling me to become a competent specialist practitioner. The MS Trust has developed, with input from nurses and other professionals, the national MS care pathway and the MS nurse competency framework, which we use every day to guide our practice.”

We believe MS specialist nurses and therapists offer the best care and support to people affected by MS, and that to do their job, they need regular opportunities to update their knowledge and expertise. The MS Trust runs a week-long residential course for all new in post MS specialists, which provides an essential foundation of MS knowledge in the early stages of their role. The knowledge gained from this course is then built on through our annual MS nurse meeting and multidisciplinary conference, bringing together the top opinion leaders in MS and the specialists who see people dealing with the realities of MS every day.

Pamela, Consultant Occupational Therapist To everyone who supports the MS Trust financially, I’d like to say a huge ‘thank you’. The knowledge and support gained from them has helped me in all aspects of my work, which has had, either directly or indirectly, an impact on people with MS and their carers.” 

We know not everyone has access to the MS specialist nurses and therapists they need, and we will keep fighting to get more. Through our GEMSS programme we continue to build the evidence for the value of MS specialists, identifying the areas needing additional support and working with commissioners. Whilst this work is going on, we must make sure we don’t lose the specialists we have and ensure that those currently in post have ongoing support and education which enables them to offer the best possible care.

Thank you for helping the MS Trust continue to develop and support MS specialist nurses in the UK.            

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