Multiple Sclerosis Trust

The MS Trust's mission is to make a real difference for people with MS through the provision of information and professional education, by funding practical research and by campaigning for the improvement of MS services. We work to the highest possible standards and actively seek opportunities to work with other organisations to provide real benefit for people with MS.
Sep 1, 2015

The value of listening

The MS Trust has been able to continue to supply accurate and vital information for the people directly affected by MS, their loved ones and the health professionals working in the field of multiple sclerosis.

Our Information Team have dealt with over 2,700 enquiries through the free enquiry service line and issued 60,000 books and factsheets. Your contribution helps to ensure that these services are able to run effectively.

The MS Trust has also continued to inform people through our ever developing website. Last year the MS Trust website received over 3 million web views. Our vibrant online community also provides a welcome forum for discussions and solidarity. Our Twitter followers are currently at 35,000 and our Facebook group at 6,000 members.

With the generosity of the MS Trust supporters we are able to develop and share our information for those affected by multiple sclerosis and provide vital education and support for MS specialists.

Please view the MS Trust’s Annual Review online for more detail of how your money has helped us positively.

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Jun 3, 2015

MS nurses need our help, but we can't do it alone

Many people assume that MS specialist nurses are trained by the NHS. That is not the case. In fact, the majority of specialist MS training and development in the UK is provided by us – the MS Trust. The MS Trust’s education programme costs over £300,000 to run each year. 

Karen, Consultant MS Nurse “Since my specialist career began, the MS Trust has been a constant. From their outset they identified education of professionals as being key to improving patient care. The specialist education they continue to provide for nurses and therapists is unique. They engage with you, they listen to you, they know you. You’re not just another nurse; you are a person who matters, with views.”

Nikki, Clinical Nurse Specialist in MS “17 years ago there were less than 30 MS nurses, but even then I was able to attend MS Trust education events to support my clinical practice. This has been vital in enabling me to become a competent specialist practitioner. The MS Trust has developed, with input from nurses and other professionals, the national MS care pathway and the MS nurse competency framework, which we use every day to guide our practice.”

We believe MS specialist nurses and therapists offer the best care and support to people affected by MS, and that to do their job, they need regular opportunities to update their knowledge and expertise. The MS Trust runs a week-long residential course for all new in post MS specialists, which provides an essential foundation of MS knowledge in the early stages of their role. The knowledge gained from this course is then built on through our annual MS nurse meeting and multidisciplinary conference, bringing together the top opinion leaders in MS and the specialists who see people dealing with the realities of MS every day.

Pamela, Consultant Occupational Therapist To everyone who supports the MS Trust financially, I’d like to say a huge ‘thank you’. The knowledge and support gained from them has helped me in all aspects of my work, which has had, either directly or indirectly, an impact on people with MS and their carers.” 

We know not everyone has access to the MS specialist nurses and therapists they need, and we will keep fighting to get more. Through our GEMSS programme we continue to build the evidence for the value of MS specialists, identifying the areas needing additional support and working with commissioners. Whilst this work is going on, we must make sure we don’t lose the specialists we have and ensure that those currently in post have ongoing support and education which enables them to offer the best possible care.

Thank you for helping the MS Trust continue to develop and support MS specialist nurses in the UK.            

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Jun 2, 2015

Reliable and reassuring

David with his family
David with his family

I was diagnosed with multiple sclerosis (MS) in September 2014. I’d noticed problems with my walking and that I was getting tired much more quickly. In February I went to the GP and she immediately referred me to a neurologist. The neurologist sent me for an MRI scan and the results confirmed that I had MS.

I knew nothing at all about MS. The neurologist explained a bit about it. She told me to accept it, get on with my life, and not let it get in my way. But she didn’t give me any written information. She told me to try not to look on the internet. But I didn’t listen. I did look, and tried to work out what appeared nonsense and what appeared sensible.

And that was how I came across the MS Trust's website, and Making Sense of MS, their information for people newly diagnosed with MS. I was especially struck by the short video clips of people who’d recently been diagnosed discussing what it meant to them. It was just seeing ordinary people in their own homes rather than clinical environments.

They came across as reliable. The message was “Don’t worry overly. You have to understand where you are, and what you can do. But get on with life”. As a result I ordered a number of books from the MS Trust. The ones about telling your kids were really useful for our younger ones. We all understand things much better now.

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