Multiple Sclerosis Trust

The MS Trust's mission is to make a real difference for people with MS through the provision of information and professional education, by funding practical research and by campaigning for the improvement of MS services. We work to the highest possible standards and actively seek opportunities to work with other organisations to provide real benefit for people with MS.
May 26, 2016

We're here for MS nurses

We’re here for MS nurses, so that they can be there for people living with multiple sclerosis (MS).

MS nurses have a huge and varied role.  From one patient to the next, they might be training someone on how to use a specific treatment, helping with benefit forms or advising a family on where to seek practical help in the home.  They are routinely described as ‘a vital lifeline’, ‘my guardian angel’, ‘the only one who understands me’.  But they can’t do their job alone. 

To provide the best care possible to people with MS they need a detailed understanding of the condition and up-to-date knowledge of treatments and the latest research. The NHS does not provide training to new MS nurses or ongoing professional development. That’s where the MS Trust comes in. Since 1999, we have trained every new MS nurse, providing them with the in-depth knowledge they need to help people deal with the complexities of MS.  And we take care of their ongoing professional development at the MS Trust Annual Conference; bringing together 300 multidisciplinary MS specialists and world class speakers to ensure MS nurses can access the latest developments on treatments, research and best practice. 

That’s not all we provide. Time spent in clinic is often limited and people don’t have time to get the answers to all of their questions. In order to offer comprehensive care and make a real difference to people’s ability to manage their MS, MS nurses need resources they can pass on to their patients. They need factsheets and books which contain trusted information and offer an additional source of support which can be referred to as needed. Of the 50,000 free publications the MS Trust sends out each year, 70 % is given to MS specialists to distribute as needed in their clinics.

Tracy, a mum living with MS “Living with MS is bearable knowing that someone cares, I am not alone and I have someone to go to if I need advice.”

You might think the NHS should fund these things but it doesn’t; we don’t receive any governments funding to provide this support. Which is why we are asking for your help.

We believe everyone affected by MS should have access to someone who understands how their condition can develop, who can arrange appropriate treatments and support and really can make a world of difference. MS nurses fulfil this vital role, but they can’t do it without our help.

Thanks to the generosity of MS Trust supporters we are able to secure the best quality of care for people with MS, now and in the future.

May 26, 2016

Stem Cell Research Update

The Information Team are continuing to work hard to stay abreast of current developments in the stem cell research arena.  Earlier this year they contributed to the BBC current affairs programme – Panorama and commented on the availability and feasibility of stem cell therapy for people with multiple sclerosis (MS). There has been lots of media hype and speculation whether it is possible for stem cells to become cell types which could slow MS disease activity, repair existing damage or replace faulty parts of the immune system or nervous system. Stem cell therapy is already being used for other conditions, such as cancer of the blood (leukaemia).

Your donation will enable us to continue to research into innovative projects and in turn fulfil our ongoing commitment to improve the lives of everyone living with MS.

We are currently supporting research in to Stem Cells, providing vital funds to the ACTiMuS trial Bristol, looking at the effects of bone marrow stem cell infusion people with progressive MS.  By supporting stem cell research in these ways we remain at the forefront of supporting significant advances in MS treatments.

The MS Trust is also funding a pioneering group in London to conduct the first audit of a real-world UK MS Stem Cell service run beyond a clinical trial.  These findings will enable Health Professionals and MS multidisciplinary teams in future to quickly determine the likelihood of success of treatment, to ensure that only compatible people are treated.  With this detailed and regulated selection in place many will be saved from unnecessary delays and demanding, prolonged tests.

It is thanks to the generosity of the MS Trust supporters like you that we are able to further develop this vital work for those affected by multiple sclerosis.

Feb 24, 2016

Happy to help you

At the MS Trust we believe one of the best ways to help people with multiple sclerosis (MS) is to support them to take more control of their MS. Our information team produces practical, evidence based information so they can:

• make choices that are right for them

• decide how best to deal with their health

• have better informed discussions with their health professionals

Our Information Team pride themselves on their knowledge and experience enabling them to help people living with MS by providing accurate and useful information.  They run the Enquiry Service each day and respond to queries through the telephone, post, email and social media.  They are constantly reviewing their approach and processes to ensure that they are best serving the people that contact us.

In November they conducted a user survey and invited feedback from people using our service. The response was very positive, 94% of callers said that they would use the service again.  The majority of callers also reported an increase in confidence, knowledge and understanding as a result of their contact.  84.6% of the people that responded to the survey indicating that they found the information they received useful.  57% of the November enquirers had contacted us before, showing that they value, trust and respect the information they receive from us.

Our enquirers told us after calling our Enquiry Service;

“The lady I spoke to was extremely helpful and informative so it gave me confidence and filled in the gaps in my knowledge.” Anon

“I feel supported by the MS Trust. I know that I am not on my own.  You can always help.” Anon

This feedback is so encouraging and pleasing for us that we know we are valued by people with MS. Thank you for supporting us with your donations and enabling us to continue this important work.

 
   

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