We have a bit of good news today. The medication for adrenocortical cancer patients, mitotane, is finally being made in Russia. In early fall it should become available to many patients who need it. Although we don't know yet if it will be affordable, the patients will no longer have to wait up to a month to receive it from abroad.
There are many other medications, aside from mitotane, which are difficult to access for cancer patients. One such medication is defibrotide, used to treat veno-occlusive disease of the liver of people having had a bone marrow transplant. This is a rare complication that arises in approximately 2% of bone marrow transplant recipients. However, when it does it is highly lethal. Prompt treatment is required to save a patient, within the hours of the initial symptoms. There is usually no time to raise funds for this medicine, which is very costly - up to $50,000 for the course of treatment. Unfortunately, in Russia it is often difficult to achieve. The only way to improve survival rate for this complication is to have a supply of this medication on hand.
Our goal is to help the hospitals of St. Petersburg treating patients after bone marrow transplants to access this medication as necessary. We will be working with our partner in St. Petersburg, Advita fund, to raise the funds and purchase this medication in the most cost-effective way. We hope you can help us achieve this goal. One of the best ways to support us is a monthly recurring donation. It's an easy and convenient way to help!
Thanks again for your support!
Jul 4, 2018
Supersize your impact!
By Marina Ouano - Project Leader
Happy 4th of July! As we celebrate Independence Day with fireworks and parades, more good news is coming up in just two weeks. Mark your calendars for July 18th - once-a-year event, during which we can earn 50% bonus on donations made that day, up to $500 per supporter.
This year’s Rewards Bonus Day will have more in matching funds and bonus prizes than ever before! On this day, from 9:00am to 11:59pm EDT on Wednesday, July 18th, GlobalGiving will have $120,000 available in matching funds. As a Superstar organization, donations to our projects will be matched at the highest level of 50%!
In addition, we could win $9,000 in bonus prizes and a chance to earn homepage time on GlobalGiving and social media promotion! As in the past bonus days, a 100% recurring match will be given to new recurring donors who sign up for monthly donations and give at least 4 times (up to $200 a month).
The money raised will be used to support kids like Misha who needed to travel from his native Belarus for a checkup in Israel. In 2015, at the age of 5, he was diagnosed with rhabdomyosarcoma, a rare and aggressive type of solid tumor in children that doctors in Belarus do not have much experience with. After lengthy treatment, he achieved remission, but will require careful follow-up for several years to ensure that cancer does not come back. Misha is trying hard to return to normal life: he went back to school and earned good grades this year. He is currently in Israel and undergoing tests and evaluations by the specialists. We hope that he continues to thrive and leaves the cancer worries behind.
Thank you for allowing kids like Misha access appropriate treatment! We value your support and care, and hope you will join us on July 18th to supersize your donation and help even more kids. Have a wonderful summer!
Jun 20, 2018
You are making a difference!
By Marina Ouano - Project Leader
Your donations have been hard at work this year. So far in 2018, the project's funds supported five patients who needed help with travel and lodging expenses. For example, in our last report we told you about Konstantin's story. Thanks to your generous support, his family was able to bring him from Ukraine for a visit to Essen, Germany and get the medical attention he needed.
In addition, we recently heard from Muazzam, a patient with Hodgkin's lymphoma from Tajikistan. This is a 30-year old woman, the mom of a little girl. When she was 27, she enrolled into college to study math - something she dreamed about for years. Unfortunately, soon after she began feeling unwell and started coughing, became short of breath and was constantly tired. After months of malaise, Muazzam finally received a diagnosis and began treatment. In her case, lymphoma resisted standard treatment and Muazzam started losing hope. Fortunately, several new drugs were recently approved for patients with Hodgkin's lymphoma whose disease returned after treatment. Although they weren't available in Tajikistan, Muazzam could access them in Russia, and in late 2016 she traveled to St. Petersburg for the first time.
Since mid-2017 we have helped Muazzam afford traveling to Russia several times. She was able to access new and effective medications and a month ago she shared great news: she achieved remission! This means she is much closer to defeating lymphoma, getting her life back and pursuing her dreams.
Thanks again for continuing to support this project! We will make sure to report back on how your donations change the lives of cancer patients and bring them new hope in their difficult struggles.