As we are adjusting to life during pandemic, many patients are beginning to regain access to postponed procedures, therapies and treatments. Since July, bone marrow donor searches resumed in foreign donor registries and we are now able to procure matching donor cells and bring them across the borders.
Most recently, we transferred 15,000 euros to a German donor registry to help three young cancer patients with their registry bills. All of these patients have been fighting cancer for many years, and one has been stricken with two cancers in eight years.
In 2012 Evgenia, a young accountant and a single mom, began having fevers and nightly sweats. After months of treatment with antibiotics, she had a proper evaluation and was diagnosed with non-Hodgkin's lymphoma, a type of blood cancer. Evgenia was successfully treated and remained in remission until April 2020. Suddenly she started feeling unwell, and her blood tests came back abnormal. Evgenia was diagnosed with acute myeloid leukemia and urgently hospitalized. This type of blood cancer needs to be treated with a bone marrow transplant from a donor, but Evgenia's parents have passed away and she has no siblings. No matches turned up in the Russian donor registry, but the registries abroad have potential donors.
For patients like Evgenia your support is vital, as Russian government does not pay for donor searches abroad. Thank you so much for offering Evgenia and patients like her a lifeline of support! This week (until Friday, September 18th), you will be able to multiply the impact of your donation by participating in Little by Little campaign. Every donation of up to $50 will get a 50% match from GlobalGiving, and new monthly donations will get an additional 100% match! Please consider joining this generous campaign and helping patients get through this difficult year.
Thanks again for your care and support! Stay safe!
Jul 17, 2020
By Marina - Project Leader
As global coronavirus pandemic swept across the globe, it impacted all of us in a variety of ways and continues to change the way we live. Cancer care too has been severely disrupted: closed borders made travel challenging, research has been interrupted, and patients' treatment has been postponed in many cases.
Patients awaiting results of bone marrow donor search in foreign registries had to adjust to a new reality as registries stopped shipping donors' cells abroad. This meant patients had to either risk postponing bone marrow transplants, or agree to riskier transplants from half-matched relatives. For a minority of patients, a small patchwork of domestic registries may turn up a good match.
For now, uncertainty around pandemic and closed borders led to a freeze in foreign registry searches. We don't know how long it is going to last, but we expect that demand for foreign donors will resume once international travel becomes safe. We will keep you updated on any changes impacting our project and the patients we support during these unprecedented times. For now, please stay safe and take good care of yourselves. Thank you for staying with us!
Jul 9, 2020
Alexei needs our help to beat back cancer
By Marina - Project Leader
Alexei is 3 years old. He is from Ryazan, Russia. When he was just 2 years old, his young parents were shocked to discover that he was diagnosed with neuroblastoma, high risk. This is a type of aggressive solid tumor that arises primarily in children. After undergoing standard therapy Alexei achieved good partial response and needed to continue treatment with immunotherapy to ensure his remission lasts. Unfortunately, this therapy is not yet registered in Russia. By the time the medication was purchased abroad and brought to Russia, Alexei had a massive relapse in his brain.
By a miracle, he survived surgery. In April Alexei was supposed to start chemotherapy in Moscow, but due to coronavirus pandemic, it was postponed. Then Alexei caught an infection, and his hospitalization was moved to a later date once again. As it is very dangerous for Alexei to delay treatment, his family urgently sought treatment abroad.
Sant Joan de Deu hospital in Barcelona agreed to accept Alexei for recently approved immunotherapy with a partial prepayment, and the family immediately flew out. However, they need help with fundraising to ensure Alexei can complete his treatment and have the best chance to beating cancer. This is where your help comes in - we have already transferred 1000 euros for Alexei's treatment. In addition, several other families with chlidren treated in Barcelona have since applied and received our help. This would not have been possible without our supporters, and we are deeply grateful. Thank you so much for keeping the kids like Alexei in your heart and mind even during these trying times!