Advita Fund USA

Advita Fund USA was founded to help improve access to the most effective treatment to cancer patients. We want to make sure that our patients' lives depend not on their income or birthplace, but on the progress of modern medicine.
May 27, 2016

Anna needs our support!

Yulia
Yulia

In our last report we shared Yulia's story.  She is a young expectant mom who is undergoing cancer treatment in Germany at the same time.  Recently, Yulia told us that in about a month she is scheduled to deliver her baby.  As soon as she feels well enough, she will be re-evaluated and further treatment strategy will be determined.  She cannot wait to meet her son and shared a few of her new pictures with us.  Yulia also asked to express her gratitude for support and care at this difficult time in her life.  Thank you so much!

Another mom who needs our help is Anna, a 39 year-old woman from St Petersburg, Russia.  She has two lovely children. During her second pregnancy in 2012 she was diagnosed with melanoma. After her daughter was born, she had a surgery to remove the tumor from her back. Unfortunately, in 2015 she relapsed, with cancer spreading to her brain, lungs and abdomen. Anna traveled to Israel for a consultation with a melanoma expert, and she was recommended immunotherapy. The medication is innovative and very effective, but also very expensive and not certified in Russia. While in Israel, Anna received 4 cycles of therapy, which cost her family a lot of money. Fortunately, a compassionate use program for this drug opened in Belgium, and Anna was able to enroll in it and receive the medicine for free. A recent examination confirmed that therapy worked well. The majority of metastases had decreased or disappeared without a trace and Anna has a chance for a full recovery! The doctors recommend her to continue the therapy for as long as she benefits. Although Anna receives the medication for free, she still has to cover the cost of travel and lodging, and she asked for our help. 

Thanks again for your support!  And save the date for the Bonus Day on June 15th.  On that day, your donation will get a 50% match from GlobalGiving - a great opportunity to help even more patients.  Hope you can join us!

Anna and her children
Anna and her children
May 9, 2016

Your help has made a difference. Thank you!

Irina
Irina

We’ve had a great Bonus Day! With your help, we were able to transfer 5,000 euros to Stephan Morsch registry to initiate the donor search for Irina. Irina is a patient from Central Russia, who worked as a hospital nurse for nearly 25 years. In 2005, Irina was diagnosed with essential thrombocythopenia; ten years on, she consulted R. Gorbacheva Institute of Hematology and Transplantation in St. Petersburg due to disease progression and learned that she'd need bone marrow transplantation to recover. The donor search alone would have cost Irina and her family 18,000 euros - but thanks to your support, this amount is now 5,000 euros smaller. Irina sends her thanks to everyone who helped her in this difficult time. She is due to resume treatment on May 10.

If you want to help more patients like Irina, we would like to share a story of Inessa with you. Inessa lives in Ufa, a city on the Volga. She began feeling unwell in 2006, but it took her doctors a long time to find out what was wrong with her. Their final diagnosis was aplastic anemia. Unfortunately, last year Inessa's daughter was taken ill too, and she is still recovering after a serious fracture. Inessa's husband is disabled due to ill health. Despite all this, Inessa remains an optimist and says: "If you help someone from the heart and do not count on a favor in return, someday you'll get happiness that you've never even dreamed of!"

At present, St. Petersburg specialists are saying that Inessa needs bone marrow transplantation to get well. This means she will have to raise 18,000 euros on her own, as a foreign donor search is not covered by Russia’s state healthcare program and she only has donor matches in German registry. Inessa and her family would be very grateful for any support.

Many thanks once again – your help is invaluable and highly appreciated. May the month of May be merry for all of you!

Inessa
Inessa
Mar 18, 2016

Support Arina's family in their fight!

Almira and Nina
Almira and Nina

Last time we asked for your help for Ostap, a young boy from Ukraine.  Fortunately, his family had an outpouring of support and were able to raise all the needed funds on their own.  We used your donations to help two other children, 8-year-old girls from Russia: Almira from Buryatia, who needed to travel to Germany to ensure her leukemia remains in remission and Nina from Stavropol, who had to travel to Israel to receive an accurate diagnosis and begin treatment for lymphoma. 

Our most recent patient is Arina from Krasnoyarsk, Russia.  For the last 6 years she has been suffering from neuroblastoma, an aggressive type of pediatric cancer.  In 2009, she had the initial surgery and chemotherapy for a large abdominal tumor. Unfortunately, she relapsed just a few months later. The retesting of the tumor showed that the diagnosis was not correct and she did not receive the right therapy. The treatment was restarted, and Arina needed to undergo 8 more intensive chemotherapy cycles, followed by a maintenance regimen. Yet, disease returned again and spread to Arina's brain. More chemotherapy followed, which helped control cancer, but also made it more difficult for Arina to recover after each cycle.  Seeking alternatives, Arina's parents learned about a novel way to fight neuroblastoma that was available in Germany and decided to take a chance. Although Arina had a hard time tolerating immunotherapy, after six months she finally achieved remission. Upon return home to Krasnoyarsk she was able to start school and enjoy a normal life. Regular visits to Germany for evaluations allowed her doctors to detect even tiniest changes in her condition. Most recently, Arina was found to have an small but active lesion in her head. Due to its difficult location, it is not easy to treat, but the doctors are hopeful. They are offering Arina to undergo bone marrow transplant from a donor, which may give her a chance for a sustained remission.  However, the cost of treatment is very high, and Arina's family is doing all they can to raise the money. 

One great way to help patients like Arina is to sign up for recurring donations - that way we can ensure that no matter when a patient needs help, we have the funds to help them.  You can sign up at https://www.globalgiving.org/projects/help-children-with-cancer-access-treatment/?show=recurring

Thanks again for everything you do!

Arina
Arina
 
   

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