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May 8, 2017

Together We Can Do More: Our Winter and Spring Recruiting Campaigns

                                               Our dear friends!

Thanks to everyone who doesn't remain indifferent to the mission of our Registry!

Thanks to all our donors and donators for their courage, love for people and ongoing support!

In this report, we are glad to share with you results of our activities, our latest news and plans.

Remember, in the last report (February 2017) we told you about a boy from Argentina, for which we received a donation request? On March 15th we received good news: all the samples and documents have arrived in the independent laboratory in New-York, USA and additional exams confirmed that the donor of the Karelian Register and the Argentine boy has a 100% match! We hope the transplantation went well, and now everything will be good for this boy. Such news encourages us to work harder and makes us happy.  

 Another case, which has happened recently, shows how important the work is that we do. In March, one Karelian family tried to raise money for their 2-year son Miroslav, who was diagnosed with leukemia and needed the bone marrow transplantation.  Parents had to find 3 million rubles (around 50 thousand dollars) for the transplantation. Thanks to God and the kind people, the money was gathered and a compatible donor was found in Germany.  Imagine our surprise when the typing results from February campaign came back, three weeks after BMT,  and we found out that one of our new donors, who was included in the registry during this campaign, was fully compatible with the boy! How much easier and faster (not mentioning costs!) the aid would have come to the boy if we had got this donor earlier!

In February and April we carried out two big bone marrow donor recruiting campaigns that resulted in 304 new potential donors added to the Karelian Registry.

 The February action was timed to the International day of children with cancer. February 15th is the International day of children with cancer. It is an important day for us because children suffering with cancer of blood-forming organs (leukemia, malignant lymphoma, Hodgkin's disease) form in 70% of all children with cancer. These children often need bone marrow donors.

Thanks to our volunteer Anton Bolgov, a paper crane, the symbol of our recruiting campaigns, reached a city Anadyr located practically at the edge of the earth – in the far east of the North Siberia, on the coast of the Bering Sea.  Now 9 cities, small and big, participate in our recruiting campaigns.  In total, the project "+500" recruited 448 people, and now the Karelian Registry lists 3836 donors.

The next campaign is planned for June, and we hope that, with help of your donations, we will obtain enough funds to type at least 300 recruited donors and include them into the internationally indexed database of the Karelian Registry. Together we are able to give little boys and girls another chance for life.

                                               Together we can do more and anything!

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Feb 7, 2017

May the Sun be always with you!

Elena Kolechyonok - a sunny girl
Elena Kolechyonok - a sunny girl

Our dear friends! Time flies very fast, and 2016 is now in the history books. We would like to present you a brief summary of our work in 2016 year and plans for 2017.

The year of 2016 was very busy, bright and rich in events and people. It was the year of our 15th anniversary and it will be something to remember and talk about.

It was a year of new bone marrow donor recruiting actions. For the first time in several years, these actions have become regular events in June, September, October, and November. Such cities as Petrozavodsk, Kostomuksha, St. Petersburg, Arkhangelsk, and Rostov-na-Donu participated in our recruiting campaigns. The Register has been growing! We have now 3705 potential donors –an increase of 682 over the previous year!!! 

It was a year of matches: five our donors matched with the patients!  Unfortunately, in three cases, our help was too late... And the latest match is still in process. One of our "September" donors happened to be fully compatible with a three year old boy from Argentina. The whole process, between finding a compatible donor and a transplantation, takes about two months. The Registry prepared and sent all the necessary documents and the samples with donated blood. Now we have to wait and beg the Argentine boy: "Please, live! Help is on your way!"

It was a year of victories, not only ours, but also associated with us. In 2016,  the Registry took part in the national Contest of non-profits “Co-participation”  and was awardedthe first prize in the nomination "Formula of good deeds". Students of "Potanin Foundation" won a grant for the project "500+", and this grant will help us to hold 2017 recruiting campaigns. Four actions have been already planned, and preparations are underway for the first one in the middle of February.

It was a year of new and, we hope, long-term partners and friends. In 2016, we signed a cooperation agreement with the Registry of Hematopoietic Cells Donors and a Public Cord Blood Bank in Samara. One of the main provisions of the agreement is providing information about our donors in search engine of the Samara's Registry, currently the most advanced in Russia. It allows us to enter the most complete information about the potential donor, making the search much easier and faster. Our Registry will provide practical assistance in the organization of the recruiting campaigns of potential donors. We hope the agreement will help the Samara's Registry and us to reach a new level of development.

And certainly, it was a year of our the most important people – our volunteers, our donors, and our sponsors. We won’t be able to work without you, our dear supporters. Today we want to introduce you Elena Kalechyonok, a petite girl, with a great heart and unique personality. She is a specialist of the Karelian Republic Centre of Youth, head of the Youth Public Movement "Avard Association" , our volunteer,  and a potential bone marrow donor.  "I love to help people, - Elena says, I don't know...My heart has been built this way. I cannot live only for myself. When people ask me why I do this (volunteering) - spend a lot of time and energy for people who I even don't know and most likely will never meet… I answer, - 'You also need it. Believe, your heart is eager to help to someone, even though you don't know this person. When you follow your heart and you know that you have just helped somebody, and even more - you have given somebody a second chance for life, it is like...it is like the Sun is always with you. I mean, it doesn't matter what is going on in your life right now, if it is dark and cold outside  - there is always sunny in your heart.”

May the Sun be always with you!

Nov 23, 2016

#Flight of Life: the Fall Recruiting Campaigns

                                                 Dear Friends!

The goal of our work is to save lives. Without your help we won’t be able to operate and add new donors into the Registry.  Thank you for your support!  Together we can do anything!

We would like to inform you that one day only - Tuesday, November 29th  - Global Giving is offering a 50% match on donations made on #GivingTuesday  up to the first $1 million raised. This is the largest amount of matching funds GlobalGiving has ever had at one day!

The campaign begins at 00:00:01 EST (8:00 am Russian time) November 29th and ends at 23:59:59 EST on November 29th. Please make your donation as soon as possibleafter 00:00:01 EST via the link https://www.globalgiving.org/projects/add-marrow-donors-eliminate-leukemia-worldwide/

 

The fall of 2016 was very busy with events. We conducted three bone marrow donor recruiting campaigns through out Petrozavodsk, Saint-Petersburg, Kostomuksha and Rostov-na-Donu.  Rostov-na-Donu city joined our movement in September. Its first campaign attracted many people and received a good feedback from the local student community. We hope that our collaboration will be fruitful and long. All three recruiting actions were very successful: they attracted thousands of people and resulted in recruiting 323 new potential donors.

The fall campaigns ran under hashtag Flight of Life. A few days before each campaign students from the Karelian State University made paper cranes and handed them out to people on the streets and in shopping centers. Students told people about upcoming events and invited them to participate. Here is what one of the volunteers, Mary, said,  “Many people were interested in this event and promised to pass cranes to others and to read more about the bone marrow donation. So I think we did a good job.” More than 1000 of the paper cranes were scattered around the city.

Why paper cranes?  Two years ago students heard the story of the Japanese girl Sadako, who fell ill with radiation sickness after the tragedy in Hiroshima. When she was in the hospital, her doctor told her a legend: a person who made 1000 paper cranes would be cured of any disease. Sadako didn’t finish her work -  she died.  Nowadays, people sick with leukemia have a good chance to survive if they find their genetic twin - a bone marrow donor. Students were inspired by the story and decided to continue the Sadako’s work – to make paper cranes before every campaign as a symbol of life, hope, and desire to help those who are in misfortune.

The September recruiting campaign was coincided with the International Day of Bone Morrow Donor that is celebrated on September 17th.  Millions of people around the world said at that day, “Thank you, Donor!”.

Here are a few facts about The Bone Morrow Donor Movement:

  • 100 institutions from 57 countries celebrated the World Day of Bone Marrow Donor in 2016;
  • 28 million donors are in the global registry;
  • More than 20,000 bone marrow transplants carried out worldwide in 2015;
  • 49% of all bone marrow transplants are international.

                                           Together we can do anything!

Links:

 
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