New year is gaining momentum, and with it - our work! We continue recruiting campaigns and begin thematic classes about bone marrow donation movement for 11th-grade students Petrozavodsk. Our volunteers successfully made their debut at the University Lyceum and Gymnasium 30 and are waiting for invitations to other schools of the city. We hope that now the theme of bone marrow cell donation will become closer to high school students and won’t scare them away of doing this good deed in the future.
Since the beginning of 2018, the Register has been replenished by 54 donors. Now Karelian Registry counts 4318 donors and receives more and more requests for bone marrow donors from all around the world. In 2017 we received 32 requests, majority of them came from abroad. Four donors from our database turned to be fully compatible with patients. One donation was undertaken on March 2018, and two cases are still in work.
Statistics is indifferent, heartless, it tells you practically nothing, right? We want to share with you one story, we call it “The Argentine story”, to show you what those numbers are about.
Registers are strong by their sizes. The more donors – the more chances to find a matching donor. We are consistently growing but we are still a tiny registry in comparison with giants from Germany or USA. When we receive a request from abroad, usually it means there is no a 100% matching donor in the world biggest registers, and small registries are involved into the search in hope for miracle. And sometimes miracles happen.
In September 2016, during one of our recruiting campaigns, a new donor, a resident of Petrozavodsk, was included in the Registry. And in the end of November 2016 we received a request for the donor from Argentinian search center for 3-year-old boy. This new donor was fully compatible with the boy. Prior to The new 2017, Argentines sent a request for confirmation of the donor's type, which was to take place in New York, USA. After 1.5 months, we got the result, confirming that our donor is fully compatible with the boy. Then the long silence came.
A year later, in the end of November 2017, the Registry received a letter from Argentina with request to provide survey data of the donor for infectious diseases. The donor agreed to a further examination, and, after receiving clarifications from Buenos Aires, we proceeded with examination. To the end of December the donor’s results have been received and in January 2018 the donor passed the full examination by doctors, specialists in different areas. Meanwhile the Registry had been resolving issues with the clinic in Germany that would collect donor cells, and other numerous organizational issues.
In the morning of February 25th 2018 donor got a plane to Berlin, and visited a private clinic on the 26th morning, where the doctors did check up again. On the 28th morning the donor got the final verdict on the validity of her as the donor. The checkup showed that everything was fine, i.e. the donor was healthy. After 5 days of the donor’s stimulation, on March 5th, the cell sampling was done. Immediately, the courier with the container, where the donor’s cells were kept at minus 4 degrees on Celsius, went to the airport, took the plain from Berlin to Frankfurt, and then the direct flight to Buenos Aires. Just 16 hours on the road, and March 6th at 8 am the courier passed this container to the clinic, where the same day TKM was performed.
While there were those events in Berlin, in Buenos Aires, from February 28 the boy had been undertaking deadly chemotherapy (called conditioning) to suppress his bone marrow and thus be prepared to accept a donor cells. And God forbid, if something happened during these days (from the 28th to the 5th) in Berlin - a disease or injury of the donor, or something else that would prevent the donation - the boy would die...
The transplantation of bone marrow was successful. Though having a lot ahead to overcome, the boy was given the second chance for life. So many people worked so hard to make it happen.
There is nothing miracle in making miracles, there are just good will and actions of indifferent people there. We decided to tell you this story to let you know that all of you are participants of it. Even if you donated only once, even if it was tiny sum, it still helped us going forward and growing the bone morrow donors database. You all are miracle makers, do you know that?
Thank You for Being with Us and God Bless You!