Nov 5, 2019

World bone marrow donor day and saving lives!

Dear friends!

On behalf of the Karelian registry team, we congratulate you on the past World Bone Marrow Donor Day! This celebration brings together bone marrow donors, doctors, patients, registry volunteers and philanthropists - all who contribute to the fight against leukemia!

Thank you for being with us! Thank you for your kindness and many years of help!

It is symbolic that during the days of the celebration a very important event took place - a man from our registry became a donor for a child from another country on September 24th!

This story developed rapidly. We received a donor request in July. It stated that the disease develops very quickly and if transplantation is not done in the coming months, the patient cannot be saved...The donor was searched all over the world, but only one person from our registry turned out to be compatible. In a short time, we were able to organize a donor examination. Fortunately, he was healthy and was able to donate bone marrow cells. He helped to save the life of this boy! This is a real miracle! And it all happened thanks to you, because with the help of your donations this man was included in the register!

This is the second case in 2019 when a donor donated bone marrow cells for patients with leukemia.

In just 9 months of this year, we received more than 100 requests for donors from around the world. This is more than the number of requests in 2018.

Inquiries and successful donations inspire us to actively attract new donors.

And that is what we are doing! Over the past 3 months, we conducted weekly donor recruits in our office, went to recruit donors in other cities, and received samples by mail from residents of remote places. In collaboration with other organizations, we held lectures and information meetings, dedicated sports competitions to the fight against leukemia, and we organized film screenings about bone marrow donation.

Goodness and mercy have no limits. You, philanthropists from around the world, are helping us, the registry of donors from Russia, financially. Thanks to you, the registry is developing, and our donors donate bone marrow cells to patients from both Russia and other countries. So together we will get rid of leukemia in this world!

 

Friends, we have the opportunity to increase your help! Participate in #GivingTuesday and encourage your relatives, friends, and work colleagues to do so!

#GivingTuesday is a worldwide charity day that inspires people to collaborate and give back. The GlobalGiving 2019 #GivingTuesday campaign will begin on 3rd of December, 2019, at 00:00:00 ET and will end at 23:59:59 ET on 3rd of December, 2019.

This year, projects will compete for part of the $500,000 incentive fund. This means that if, for example, 1% of the total amount of dollars raised by all projects on Tuesday is donated to the Karelian Register project, then another 1% - or $5000 - will come from the Incentive Fund. $5000 means 700 new bone marrow donors included in the registry and in the global database. And every donor gives people with leukemia and other blood diseases a second chance.

Please make your contribution at https://www.globalgiving.org/projects/add-marrow-donors-eliminate-leukemia-worldwide/

And tell your friends about it on your social networks.

Lecture for employees of the business center
Lecture for employees of the business center
Our wonderful donors
Our wonderful donors
Paintball players are entering in the registry-1
Paintball players are entering in the registry-1
At paintball competitions - 2
At paintball competitions - 2
Lecture for students
Lecture for students
Aug 8, 2019

In the summer, our work continues

Dear friends!

We would like to share some news about the work of our foundation over the past 3 months.

As you know, the mission of the Karelian Registry is to help patients with leukemia to overcome the disease! We receive requests to find donors for patients from different countries. Since the beginning of 2019, we have got 73 requests from Russia, Britain, Spain, Belgium, Kazakhstan, France and Turkey. Sometimes there were 4 requests a day, which is just surprising!

There were 7 matches with our donors. One of the donors has already donated bone marrow cells for a child from Russia. We reported that last time. And now two more donors are undergoing a medical examination. We believe that everything will turn out well and that they will be able to give patients with leukemia hope for life!

As you know, leukemia knows no boundaries, adults and children from different countries suffer from it. It is important for people from all over the world to unite in the fight against it! Thank you for your participation, kindness and mercy! Thank you for your donations!

Thanks to it, we can pay for the inclusion of new donors in the register. And the more donors will be on the register, the greater the chance that we will be able to find a donor for a specific patient with leukemia and save their life!

In the summer months, we did not hold a campaign to attract donors. But we talked about bone marrow donation at lectures, during specially designed games and workshops on origami (we made paper cranes - a symbol of the fight against leukemia). We destroyed myths and fears by all means, convincing people that being a potential bone marrow donor is safe for the donor and vital for patients, and we invited people to register in our office in Petrozavodsk at any convenient day!

Every week, volunteers and registry staff are ready to consult those who wish to become potential donors. Our opening hours are turned into monthly schedule and published on the social media.

As usual, we offer residents of other cities to join the register by sending documents and samples for analysis by mail. Thus, we have already received dozens of envelopes from different cities of Russia!

It's great that now neither time nor distance is an obstacle to doing good and important deeds!

Thus, over the past 3 months, several dozens of people have become potential donors. Now there are 4954 potential donors in our database and we are waiting from the laboratory for more 56 HLA matching results.

It is important! Thanks to our mutual efforts, more and more people are ready to help patients with leukemia. It means that there is more chances that one of the potential donors will be compatible with a specific patient and will give hope for recovery!

Friends, thank you for being with us for many years! Let's beat leukemia together!

May 13, 2019

Our new achievements

Dear friends!
Thank you for your trust and constant suppor to four actions.During the spring time we had many events.We managed to hold many meetings in different organizations where we talked about the donation of bone marrow, about transplantation,about deadly diseases when only bone marrow transplantation can save a person. And the: we convinced people at our meetings that the donation of bone marrow is safe for the donor.There sult of our meetings has been already visible: samples of 188 people have been sent lately to the laboratory for analysis.Neither distance,nors care my the aboutbonemarrow donations do not prevent people to make a decision and demonstrate readiness to save a person whose life depends on 200 ml of bone marrow.Sucha little amount, butt here is someone's chance to live!

Wecontinueto receive requestswithprayerandhopeforrescue: for today, we have 38 requests for bone marrow donors.Thirty eight sick people don’t have matching donors in the biggest world databases. Only way to find donors for these 38 people is to increasethedatabase.And you, our friends, helpusto doit!Thankyou for your care and support! Thus, thankstoyou,recently wehave found a donorfor a littlegirl who fightsleukemia. The transplantationwentwell.Let’spraytoGod that the diseasewillretreat and that the girl can recover,grow and be happy, and know the joy of loveandmotherhood! Let'swishpatienceandstrength to herparents.Theythankyouallfor your priceless support!

Thedonorisa young mother with name Natalia who lives in Petrozavodsk and raisestwochildren. NataliaworksintheRepublichospital of KareliainPetrozavodsk.Afewyearsago,she became a potential donor of bone marrow, joining our Registry. Here'sherstory."InFebruary, someonekept callingmeforalongtime.Itwas the head of the Karelian RegistryYuriGayevichIoffe.HeaskedifIwasreadytobeadonortothepatient.AndIimmediatelyanswered"Yes". I had no doubt,thoughIdidn'tevenknowverymuchhowitallhappens:would it be dangerous,scaryorpainful.Ididn'tthinkaboutit. If I couldhelp, I wasgoing to help. IntheCells Center, I wastreatedlikeaqueen,Iwasevenembarrassed a little bit. For fivedaysI was given a drug that stimulatedthe release ofstemcellsintothebloodstream.Itwasnotscary,YuriGayevichexplainedmeeverything,and Iwasnotafraid.InitiallyIwasreadyevento the factthat the procedurewouldbeunderanesthesia. The onlysideeffectwasaheadache,but the doctorshelpedmetocopewithit.Onthefifthdaymy stemcells were taken; the whole procedurelastedalmost5hours. On the sameday, the stemcellsweresentwitha couriertothehospitalwhere the transplantwasperformed.Ididn'tknowanythingaboutwhoIhelped, except that itwas a patientfromRussia.I didn’t care really. The mainthing I cared about: to do what Ican.OnlylaterI was toldinthehospitalthatthe patient I helped wasa 13-year old girl.Istartedcrying. I have kidstoo,anditwould be greatifthisgirlrecovered.Inafewyears,ifitgoeswell,Icanget to know who I'vebecome a donorto.AndIwouldlikethat."

Natalia’s hus band and colleagues supported her during all the process.Natalia didn’t tell her children this story though: she didn’t want them toworry about her.She just told them that she will be in the hospital for a few days, for some small procedure.She says she'll tell them if everything works out, and this story wil lhave a happyending.Now Natalia is a passionate supporter of the Registry and convincesev erybody to be abone marrow donor,"Ishould be done. There are a lot of patient sout there who need our help. And itis absolutely nots cary.encourage my colleagues to join the Registry.Another day a friend asked me, ifI hadto do this procedure with Anesthesia,not just through a vein,would agree to it. I said, initially agreed to everything. "Would n't you agree?" asked her.And she said she probably wouldn't.I was outraged , “You can save a human being life! What if suddenly you need the same kind of help, and some one justs cared and said NO?!“ We have to be kind to each other, Natalia is sure.

4936 potential donors have already listed in the Karelian Registry of Bone Marrow Donors. They are“your”donors too: we can recruit new donors only becauseyou are helpingus.
Thank you! Together we can do anything,and evendefeat leukemia!

 
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