A Fulcrum researcher at work. With your help, we'll help kids like Keisha Our work today will benefit kids like Madilyn Maureen's son Liam presenting on FSHD science

Facioscapulohumeral Society/FSH Society

Org #29886
Vetted since 2015
year founded
raised on GlobalGiving
years fundraising
projects funded
* Amounts in US Dollars


The FSH Society is a nonprofit, patient-driven organization supporting research and education for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. Progress on FSHD could benefit a wide range of other areas of medicine, from cancer and diabetes to muscle regeneration and repair. We help patients and families through education and outreach; fund scientific research that is rigorously reviewed by our world-class Scientific Advisory Board; and advocate for increased government and industry investment in research and therapy development

Projects (1)

Project Leaders
Mark Stone, Lisa Schimmel, Jamshid Arjomand
Organization Information
450 Bedford Street
Lexington, MA 01867
United States
Organization Information
450 Bedford Street
Lexington, MA 01867
United States

Project Reports

Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:

Feb 13, 2018
Donated tissue used to make "muscle in a dish" for drug research
Your generous support of our program to deliver muscle tissue from FSH muscular dystrophy patients to researchers has led to the development of an innovative "muscle in a dish" that is now being...
Nov 20, 2017
Getting people to sign up for the tissue donation registry is a challenge
Our national FSHD biospecimen registry is up and running. We have successfully completed a surgical and post mortem donation, with precious FSHD tissues going directly to a cutting-edge laboratory....
Aug 21, 2017
A Call to Action. Help us get people registered!
To all of you who have supported our FSHD Tissue Registry project, we are deeply grateful! We continue to put significant effort into fine-tuning the registry system, with bi-weekly calls between...
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