Facioscapulohumeral Society/FSH Society

The FSH Society is a nonprofit, patient-driven organization supporting research and education for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. Progress on FSHD could benefit a wide range of other areas of medicine, from cancer and diabetes to muscle regeneration and repair. We help patients and families through education and outreach; fund scientific research that is rigorously reviewed by our world-class Scientific Advisory Board; and advocate for increased government and industry investment in research and therapy development
The most precious gift for medical research
 
Facioscapulohumeral muscular dystrophy (FSHD) cripples nearly 1 million children and adults worldwide. Many patients wish to donate muscles taken during surgery, or their bodies at death, for medical research. The FSH Society is establishing a registry to match donors to researchers who need the tissue. We need funds to cover the cost of recovering and shipping the tissue to labs. Help us to deliver these invaluable gifts into the hands of scientists who are working on a cure project reportread updates from the field
 
   

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