KATALEMWA CHESHIRE HOME FOR REHABILITATION SERVICES
A BRIEF REPORT ABOUT 4 HOME BASED CARE VISITS CONDUCTED IN NAMAYINGO, KAMULI, MAYUGE AND IGANGA DISTRICTS, JUNE 2021
Katalemwa Cheshire Home has a programme that extends rehabilitation services to vulnerable children with disabilities in communities through Home Based care visits. We conducted Home visits with an aim of reaching out to vulnerable children that are unable to access rehabilitation services and review children that have previously been rehabilitated.
A field team from KCH comprising of an occupational therapist and social worker visited 29 children with disabilities in the 4 districts of Busoga ( Namayingo, Mayuge, Iganga and Kamuli) and assessed children with hydrocephalus, spina bifida, cerebral palsy, osteomyelitis, epilepsy, visual and hearing impairment.
The Katalemwa Team provided services like reviewing therapy, measuring assistive devices, counseling caregivers, provision of medication and making appropriate referrals to nearby health center and Katalemwa Cheshire Home for further management of their cases.
Finding from these Home Visits;
Most of the children with disabilities visited, their caretakers had neglected cases and were living with single parents.
Children with cerebral palsy were malnourished because parents had minimal information about feeding culture of these children.
Poor medicine adherence, most children with epilepsy had stopped using their drugs due to the reluctancy of their caretakers.
Inconclusion, the children with disabilities in need of home-based care visits are many however Katalemwa has limited resources to reach out to every child with disability. Most children retard at homes therefore need regular visits to monitor progress. KCH encourages donors to support its programs and enhance its outreach activities for vulnerable children with disabilities in the community
KATALEMWA CHESHIRE HOME FOR REHABILITATION SERVICES
SOME OF THE CASE STORIES OF BENEFICIARIES FROM ASSISTIVE DEVICES
Arnold (not real names) is a 16-year-old boy with scoliosis secondary to muscular dystrophy that was identified during an outreach clinic. Due to this condition, he had challenges with mobility, feeding and toileting independently. The family couldn’t afford the cost of rehabilitation therefore just looked on as the condition of their child was deteriorating. The therapists referred him to Katalemwa Cheshire Home to enable him learn some exercises to strengthen his muscles, acquire a corset and a modified wheelchair with toileting and ambulation. During his stay at Katalemwa, the caretaker was taught some exercises that can be performed to avoid further deformities and he received a modified wheel chair.
Arnold is grateful for this support because he no longer feels embarrassed being carried all the time by his peers and wants to go back to school. The arm rest on the wheelchair helps him to feed independently and the family is happy about this support.
Dan (not real name) is a 15year old boy with Cerebral Palsy that was brought to Katalemwa at an older age. The family all along thought that Dan’s condition couldn’t be rehabilitated medically, they sought for spiritual support from traditional herbalists but there was no improvement on the child’s condition. It’s a friend that referred her to Katalemwa and after assessment a wheel chair was recommended for the child and some therapies. The mother underwent some psychosocial support sessions and health education about the condition of the child. After this intensive rehabilitation, the mother appreciates the importance of medical rehabilitation and was able to perform daily exercises on the child. The mother is also grateful about the support of the wheel chair as it will help her move with her child with minimal straining and learnt the therapies that she will continue performing on her child.
CASE STORIES OF CHILDREN WITH DISABILITIES SUPPORTED WITH WHEEL CHAIRS
Katalemwa Cheshire Home has an orthopedic workshop but often times parents of children with disabilities are unable to meet the cost of purchasing these appliances. Therefore, your donations contributed towards the purchase of materials to fabricate assistive devices for the needy children that required wheelchairs and below are the case stories
Sarah (Not real names) is a 8 years old girl with Hydrocephalus, this condition was detected at birth and she sought for Medical attention at Cure Hospital Mbale, here she received surgery. However, the family didn’t continue with rehabilitation because of some financial challenges therefore the child acquired some deformities/contractures. She was identified during a Home-based care conducted by our field staff that referred her to Katalemwa for further management of her condition. During her stay at KCH, she received a wheel chair and has been undergoing numerous exercises to improve her functionality. Apparently, Sarah has improved, she is able to make a few movements, interacts with people and the family is happy about this support. The mother appreciates all the support rendered to her child and she is confident that her child will be able to perform some activities independently with time like feeding. She feels relieved of the burden to carry her all the time because of the new wheel chair she received.
Annet (Not real names) is 8years old with Cerebral Palsy living with her grandmother in Kiboga District. She was identified during an outreach clinic that was conducted by our medical team in that area. She was abandoned by her parents after discovering that she had a disability and needed extra care. Cecilia was malnourished and the grandmother wasn’t aware of rehabilitation services. At the Outreach clinic, she was referred to Katalemwa for intensive rehabilitation, while at Katalemwa, she was enrolled on nutritional therapy, occupational therapy and the grandmother was taught some exercises that she needs to perform on Cecila. She was also given a wheel chair to aid the movement of the child. With the exercises conducted, Annet can move her hands and limbs, interacts with people. The Grandmother is happy about the support rendered to Cecilia, feels relieved of the burden of carrying the child all the time and hopes to continue performing exercises she has learnt to avoid further deformities.
Conclusion; We encourage our donors to continue supporting more children with disabilities to access assistive devices to improve their functionality, mobility, participation and independency.